Mommies with experience with breastfeeding and prednisone.

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/2/2009 8:40 AM (GMT -6)   
Hi There,

I'm taking 20mgs prednisone. I have a feeling that my doctor is going to raise my dosage cause my flare is not any better. Actually it's worse. I read on Dr. Hale's (Mother's Milk and Medicine author) forum that prednisone can stunt a babies growth (height), but I think he means in really high doses. Higher than the 30 or 40 mg that my doc may put me on. Also, I know per Dr. Hale about 2% of what I take goes through my milk so....should I worry. Last, the lactation nurse who looked things up for me in his book said not to breastfeed for 4 hours after the prednisone per his book but my other (GI) doctor never mentioned it so....

In general my anxiety has heightened from the prednisone and I am just so worried about my baby even more so than before. I'm breastfeeding to benefit him not to hinder him in anyway. I am so sad breastfeeding has been so wonderful so far and now with this flare it is turning into a nightmare sad I don't want to give up because of fear of something that may not even be an issue. I would feel even worse then.

I'm thinking if he puts me on a higher dose that could potentially be a problem I could pump and dump (formula feed) for several hours after taking the meds then breastfeed at night and in the morning before I take my dose.
Female Currently Breastfeeding
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/3/2009 8:46 AM (GMT -6)   
Oh gracious! I breastfed for four months on 40mg prednisone. My son is amazing...he's 12 months (tomorrow!) and wearing 18-24 months clothes. : ) He's quite the little man, really. Anyway, your anxiety has definitely been heightened b/c of the prednisone, are you on an anxiety medication as well? I was on effexor immediately following his birth, but am now on paxil.

As for the pump and dump...that is such a horrible thing to do...I wouldn't worry about it. I understand the benefits of breastfeeding, and I was so sad when my son needed more...but he got everything he needed from me within the first month (re: immune defenses, nutrients, etc). I would continue nursing as long as you feel healthy enough to. It may be that in order to get your flare under control you may need to take more aggressive measures...and nursing may have to end. I hope not, but your health is extremely important. I would suggest weighing your options and your feelings regarding nursing and your ability to provide the best care to your baby. Being in a flare drains your energy...emotions...just everything...and so does nursing. Because you're dealing with both, you should definitely be chugging the water! : )

I'm sorry you're in this dilemma. As a mother we only want what is best for our children. I keep mentioning the surgery we're going to have b/c it is just such a wonderful avenue for us...I feel that by going the surgery route I will be able to be the best I can be...no more fears regarding medications...no more listening to my son cry while I run to the bathroom...and no more UC pains. : ) I've had a pretty bad go the past week or so and I am even more excited about the j-pouch procedure...I'm ready to have full control again!

Anyway, I know you will do what feel natural and right for you. Just know that I was on 40mg prednisone throughout the pregnancy and four months of breastfeeding. He is growing and developing beautifully!

How old is your baby?

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/3/2009 12:03 PM (GMT -6)   
Thank you Robin I feel better hearing from someone who was in my situation. I am a mess right now. I am also scared because some of the reason that I am a mess is because of the prednisone and I can't imagine going up to 40mg (which is what the on call doc suggested when I called yesterday) If 20mg is causing me anxiety what will 40mg do? My little boy is 3 months old and precious as can be. What a blessing!!!

Please continue to talk about your surgery it makes me excited and happy for you. I go to see my doc this month and I am going to bring it up to him. It may be a choice that I make as well:)

Thank you for posting your info it helps me. O yeah I take Zoloft. It has worked great for me til now with the prednisone.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 1/3/2009 7:02 PM (GMT -6)   
Hi, congrats on your little!!!!

Like the pp, i took 40mg pred while BFing.

I took pred during my entire pg, and was on 10mg when i delivered, however that was not controling my UC, so i was upped to 40mg. I delivered premature, and my baby was in NICU, and i was scared also, so i asked the Neonatologist (baby doctor) if it was ok for me to take. He said YES, and also assured me that there are alot of mom's w/ asmetha (sp) who take pred also. Sadly, i was not able to continue to BF longer than about 6-8wks as my flare was sooooo bad and i needed to restart my 6mp (which i was told not to BF on). My daughter is now 19mo and is a BIG rolly polly little baby girl! :)

Anyways, you can contact LLL or maybe your hospital lactation center and ask them also.
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


JennyLB
Regular Member


Date Joined Jun 2006
Total Posts : 211
   Posted 1/4/2009 9:03 PM (GMT -6)   
I breastfed my daughter while on steroids and recently stopped when she turned a year old. I'm now on 6-MP as well and going to try to get off steroids when that medicine starts working. I was originally on 10 mg when she was born but had to jump to 40 mg after a couple of months due to a flare up. I was on prednisolone because that seemed to be safer than prednisone for higher doses, but they recently stopped making that. What I did though was take my steroids at night right after her last feeding because that was the only time I could get at least 4 hours till her next feeding. Is your son sleeping for a while at night? My doctor said there really wasn't any big difference taking steroids at night. My daughter is small weight-wise, but I don't think that was due to my medication.

Jenny

Pancolitis - dx June 2006
6-MP (just started), Asacol 4000 mg, Pred 40 mg (flaring), Calcium, Mutivitamin, Culturelle

puddle-duck
Regular Member


Date Joined Dec 2008
Total Posts : 31
   Posted 1/5/2009 9:17 AM (GMT -6)   
Have any of you found that stopping to breastfeed or the restart of your periods have caused a flare?  I recently restarted my periods and had a flare, luckily its under control after taking steroid enemas for a couple weeks.   

JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/5/2009 3:28 PM (GMT -6)   
Thanks for all of these posts ladies. I'm due in March and on and off Prednisone. It's nice to see that it is possible to BF and take Prednisone.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
 
1600 mg Asacol a day
Ferrex
Pre-Natal Vitamins
Lovenox
On and off Prednisone, 40 mg then taper
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/6/2009 11:18 AM (GMT -6)   
I fully believe that while pregnant one should not try tapering the prednisone. Our bodies are going through so much as it is, and our babies need consistency. As I mentioned, I was on 40mg prednisone the entire pregnancy and I'm glad I was b/c it did help maintain my flare...but so did the pregnancy hormones. Once I quit nursing and was off the 'roids I was in a flare within a matter of days and wanted to die. : ) Anyway, if you can stay on the prednisone to maintain a flare, I think you should. I was fine, my baby is fine...and apparently many other Mommies and babies are fine. : )

Now...as for the periods and flares...how ironic this question was brought up, as I was thinking about posting a topic regarding this today! I have yet to really experience full period b/c I'm on prednisone, but I became very sick (UC urgency, pouring blood, etc.) during this past week, and I started my period today...with the normal cramping and fun stuff. So, does this happen to others? I thought my UC was super bad b/c of the stress I've been under from the holidays and planning my son's first birthday, which was this past Sunday and a lot of fun! However, I have really sick and losing a decent amount of blood, but nothing like I have in the past.

Anyway, I guess that I too wonder if a flare worsens due to the onset of a period or what it is. I kind of thought I was getting sicker b/c I've had a lot of sugar lately (holidays!) and I've not really been on a strict no sugar, no caffeine, no fried foods diet.

I bought some of those five hour energy shots yesterday and took one last night. The only thing it did was take away the need to pass out. I still didn't get up to do anything...so all my dishes are still dirty and it still looks like a toy monster threw up all over our house...and I'm still tired. I think I'll try another one now and see if I can at least organize the dishes to clean later. : ) These shots ae the ones that are strictly vitamins and no caffeine.

Oh, and as for the stress/anxiety regarding the pregnancy...perhaps you can try something other than Zoloft? I'm not familiar with what is safe during pregnancy, but surely there's something else? Or maybe you could increase the dosage? My anxiety was decent during my pregnancy b/c my hormones really helped me out...but a good friend of mine had just the opposite and she needed meds badly...and doesn't have UC or on 'roids...it was just the pregnancy making her crazy! : )

Anyway, I look forward to reading posts from you ladies. I cannot tell you how comforting it is knowing that you're here and in similar situations. A common bond amongst us is not just the UC but our love for our children and families. : ) Being a Mommy is by far my favorite thing!!!

Have a great day!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/6/2009 11:29 PM (GMT -6)   
Hi Ladies,
I was going to send some of you a personal email asking questions, because I am really struggling with my new 3 month old son, breastfeeding, husband who does not know what to do, full-time job, UC (and predisone side-effects) but I notice that none of you have it available. I am not sure if that is on purpose or if it was something never thought about, but anyway if you are comfortable with it I'd love to be able to email you. As for now I am really upset. I have been crying all day. I was told from the hospital til recent that Asocal was okay when breastfeeding but I went onto Dr. Hale's Mothers Milk and Meds blog and he states that 4800mg is too much. No one (doctors or nurses) ever gave me a dosage limit. Any way at that dose my little guy was getting approx. 400mg of Asocal! Asocal has salicylate in it which is assocated with Reyes Syndrome! Dr. Hale said that 3200 and below is safe. I lowered my dose right away even though I am in a flare. Anyway I looked up salicylate and it is unknown how long that would take to flush out of an infants system and I am so worried. I know part of my worry is due to the prednisone I am taking but still this could potentially hurt my little guy when I forced myself to breastfeed because I thought I was helping him. I took off work tomorrow and I am going to take my baby to the doctor to see if I can get some guidance. My GI appointment is Monday. I have been trying to get in sooner but I am #6 on the weighting list. I feel helpless very small unimportant and unseen right now.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/7/2009 5:19 AM (GMT -6)   
I updated my profile if anyone does want to email me. I'm 31 weeks pregnant with my first and just got over my second flare (fingers crossed). It seems like most of you are ahead of me though in this pregnancy/breastfeeding/medication/UC dilemma.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
 
1600 mg Asacol a day
Ferrex
Pre-Natal Vitamins
Lovenox
On and off Prednisone, 40 mg then taper
 


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/7/2009 6:44 AM (GMT -6)   
Thank you JM21204,

This stuff is tough but my baby is such a blessing. Hopefully once I get myself squared away I can be a good support to others going through this.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/7/2009 8:50 AM (GMT -6)   
I'm going to update my profile right now!

mjw I emailed you just a bit ago. : )
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/7/2009 9:34 AM (GMT -6)   
Thank you Robin:)
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/7/2009 9:38 AM (GMT -6)   
I looked up Remicade in Dr. Hales book Medications and Mother's Milk and it is a Pregnancy Category B and a Lactation Risk L2, which is lower than Asacol. The IV sounds hurific and so do the side effects but this maybe what I need to get me through breastfeeding and one more pregnancy. If I was younger (not advanced maternal age 35 36 in February) I would look into the surgery but my OBGYN told my husband and I to hurry up, so this maybe an answer for us. Then once that is over I could research surgery again.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 1/7/2009 10:43 AM (GMT -6)   
mjw82704

Hi there. I am 39 weeks and due any day so I have been doing my due diligence re. bfing and meds and I wanted to let you in on my research about asacol and bfing. So I called my GI doc in Toronto and he told me the protocol was to remain on your meds throughout bfing which I think is what you have been told. When I asked him about Reyes Syndrome he told me two important things 1) there have never been any documented incidents of asacol being contected to Reyes 2) asacol had a different make-up than asprin does (they are RELATED not THE SAME). He did actually tell me the two different names but I cannot remember them - they have different prefexes.

I also called the Motherisk program (it is a great program located in Toronto at the Hospital for Sick Children. You can get the phone # by googling 'motherisk' and you can speak with cousellors in person when you call. They answer all questions related pregnancy and breatfeeding risks to infants). Anyhow, Motherisk told me that the asacol is fine as well for bfing and when I asked them about the theoretical link to Reyes they said the same thing my doc did - asacols and asprin are related but not the same. Motherisk also told me that the pros of bfing outwieght th drawbacks of the asacol and the hydrocortisone rectal foam that I take.

I guess the thing to watch for is your baby having diaherra.

Hope that settles your nerves a bit. Please excuse my spelling. I was not being overly careful there. jo

I hope that settles some of your concern

*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 1/7/2009 11:01 AM (GMT -6)   
Just wanted to say good luck Joma!!! Here's to a healthy and QUICK delivery for your little one and a speedy recovery for you!! Don't forget to tell them NO pain meds with any ibuprofen in them(my hospital actually gave me a wristband that said this because all the different nurses keep coming in and out. I told every single nurse before she gave me anything that I couldn't have ibuprofen).

Oh and I noticed you are on cortifoam. With my most recent flare(4 weeks after delivery) I went on that for almost 3 weeks. It helped but didn't get me back in remission. I switched back to rowasa(mesalamine) enemas and seriously the next day I had formed stools and no blood. I've been on it for 5 days now and am back in remission. I'm going ot keep up with every night for another week to maintain remission and then maybe wean down to every other. Just wanted to share my story, because with both of my pregnancies I flared pretty badly after giving birth(last time it was 6 weeks PP, this time it was 4) and having a bad flare with a newborn is TOUGH. Come on here and get support during it if you need it!!

I can't wait to hear about your new baby!! Make sure to come on and tell us all about him/her after things have calmed down a bit!
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/7/2009 11:25 AM (GMT -6)   
I'm so happy to hear that some of you respond well to medications! : ) Before we realized that even Remicade wouldn't do the trick we had planned our future pregnancies and nursings with that medication. Anything is better than a pregnancy with prednisone!

I also am very happy to have learned about the support line in Toronto! I'm sad that I was not aware of this specific site and support during my pregnancy and delivery. Oh well...I'm glad to have involvement now! : )

I do have good news to share...I've been battling immune system issues b/c of the prednisone and Remicade...so I've had a few abscesses and staph infections that have resulted in surgical removals and open wound care. The wound on my bicep is fully healed (one hellacious scar) and the one on my should is almost completely healed!!! Yea!!! I had one on my heel and it was better quite a while ago, but the scar tissue still causes some discomfort, but I don't care b/c the pain the abscess caused was the worst! So, I'm just super happy b/c I'm healing and no longer having to go to the hospital every day for bandage changes. There for quite some time I was going twice a day b/c my arm needed frequent changes...such a long story.

Have a great day ladies!!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 1/7/2009 11:28 AM (GMT -6)   
GREAT news Robin. So nice to hear some good news on here isn't it??
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/7/2009 2:39 PM (GMT -6)   
Joma

O my gosh! That is wonderful information! I took off from work today because I was really getting sick over this and the prednisone in general is causing me so much anxiety. The 40mg is still not doing the trick. I am going to see my GI on Monday and discuss Remicade which I can breastfeed and get pregnant while taking (if it works for me). But if my doc says no then I can look into other options. I went to see the pediatrician today for this. I took the Dr. Hale Mother's Milk information with me and he said that Dr. Hale knew more than him in this area and that we should do what Dr. Hale suggests which is dilute the breast milk with formula to make sure that he still gets the benefits of my breast milk but not too much of the Asocal in his system or just lower my Asocal dose if possible. Dr. Hale says around 3200mg is safe. I think that these ideas are on the very conservative side but it feels so good to have options. I thought that I would have to wean him at first and that broke my heart because he has been so healthy. Your information just helped me to feel just that much better. I can't believe that there is an actual number that I can call to talk to someone about these things. I can now go to work tomorrow and not be a wreck because of this. I can find something new to obsess about (LOL Just kidding, prednisone humor).

I am so happy for you that you are almost there. so close to having a precious little one they are such a blessing! I wish I had not waited this long to have kids! I'm 35 will be 36 in February.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 1/7/2009 4:48 PM (GMT -6)   
Hey there
Yes, Motherisk is a great program. It is nice to actually get to speak to someone in person, immediately when you call. I have been calling them throughout my pregnancy every time my meds changed. Just so you know, they will not give treatment recommendations. They will only tell you about the risks of the drugs that you are on or that you ask about. I looked up the number. It is 416-813-6780. As I said, it is in Toronto so it is Eastern Standard time. what they have is a great big data base of research as well as people that can help with a costs/benefits analysis of bfing VS. any drugs you have to take.

I think we, at least I, loose site of just how many pros there are to bfing. So while it is a drag that we have to take the meds, it does not nessessarily mean that we should stop bfing altogether.

jo

LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 1/7/2009 11:33 PM (GMT -6)   
mjw - I hope I'm not being repetitive to the other posters, but to answer your original question I breastfed my DD for 9 months. I had to go on 60 mgs of prednisone when she was 8 weeks old and was also on Asacol. Like you, I was terrified of what the medicine was doing to her and her growth. Between 8 weeks and 4 months old I tapered off the prednisone, but my flare came back worse than ever and I was hospitalized. That was a low point. I think I was trying to taper too quickly off the prednisone (without the supervision of a good GI) in order to not hurt my DD. I talked to her pediatrician many times and we decided that we needed to get me healthy in order to take care of her. I had to go back to 60 mgs of prednisone again, basically start over. At that point, I decided to still breast feed, but to also give my body and break and supplement with formula. For me, it was a great decision, because she was still getting some breastmilk every day, but also formula that I didn't have to worry about the medication and it gave me a chance to recover. From months 4 to 9 we continued on that path and eventually I was almost off, if not completely off (I can't recall) the prednisone. DD was born full-term at 40 weeks, but was always on the little side weight wise. Today she is 2 1/2 years old and very healthy. Still in the 25% percentile for weight, but has always been in the 90% or higher for height.

I've learned that keeping YOU healthy is the best thing you can do to take care of your child. Today, I'm 28 weeks pregnant and flaring slightly and working diligently with a GI, OB, and perinatologist, to get me back on track so I can care for my new baby girl in 12 weeks.

Good luck with your decisions. It's not easy with the abundance of information out there, but you will make the right decision for you and your baby.
Diagnosed UC - 1993
33 year old female
27 weeks pregnant with second child

Current Meds:
6-MP - 50 mg one night 75 Mgs the next
Colazal (3 pills three times a day)
Folic Acid, Omega 3 Fatty Acid (2 capsules)
Colocort Enemas (been taking for 2 weeks to control a flare)


Decoded
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/8/2009 2:40 PM (GMT -6)   

I just found out I'm pregnant.  I am taking 10 mg of prednisone for rheumatoid arthritis and am nursing my five month old daughter.  My daughter wakes up 5 or 6 times per night to nurse...I just don't feel that she is ready to wean yet.  I know that when I call my doctor he is going to tell me to gradually decrease my prednisone dose until it is zero.  That is what we did with the last pregnancy.  I was in a lot of pain and felt very disabled, but I dealt with it for the health of my baby.  My pregnancy never made the arthritis go away like it's supposed to, and eventually I had to go back on prednisone once the danger for the baby developing a cleft palate was minimized. 

Now that I'm pregnant again I don't know how I am going to juggle the health of my two babies and my own health.  If I decrease my prednisone, I will not be able to care for my five-month old.  I tried going down to 7.5 mg and I could hardly pick her up.  I'm tempted to not even tell my rheumatologist that I'm pregnant so that I won't have a hard time getting the medication, but at what risk to my unborn baby?  How could I bear it if he/she was born with a cleft palate and I knew it was my fault?

I need some words of encouragement and advice.  When you were pregnant and taking prednisone, did you do so during your first trimester?  How did you cope with that decision?


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/8/2009 10:02 PM (GMT -6)   
Decoded,
Congratulations on being pregnant. I am so sorry that you have to go through such a hard decision. I can't comment on it because I was not on steroids when I was pregnant but I am sure some of the other mamas can. Also, in this thread Joma listed a number for motherrisk. Maybe you can call there and someone can help you out with resources. I wish you the best.

Melissa
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins


*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 1/9/2009 12:03 AM (GMT -6)   
MJW - I've been thinking about what you said about Reyes syndrome since you posted. Actually..I've been worrying about it. Two questions, is Dr. Hale's info online anywhere or do I need to get a hold of his book? Secondly, was the risk of Reyes Syndrome while the baby is breastfeeding or is it possible for them to get Reyes later on in life after they've stopped? Thanks! I have no choice but to breastfeed(my son is allergic to dairy and soy) AND I need to take my meds or I will flare, so I've been worrying about all of this....ugh!
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 1/9/2009 9:28 AM (GMT -6)   
Hi Jen the information I found is on Dr. Hale's Forum but I also purchased his on-line book to look up other meds. Looking for alternatives, so far Remicaid is the best. Here are the links to his websites the forum and the site where you can purchase the book. The forum has the more specific questions and answers (you have to click on the search button and type in Meselamine) so I would start there, plus it is free. I am going back and forth with this in my mind. I took my baby to his pediatrician and discussed it. The plan that we came up with for now is to pump and mix my milk half and half with formula to dilute the amount that he gets. I am still worried but still researching take a look at Joma's posts in this thread. I am going to call Motherrisk today. It made me feel better that they told her that there are no known cases of this happening the part that scares me of course is known but I am a control freak and this situation just can't be controlled so....I empathize with you. We are going to have to do the best we can as parents making the best decisions we can with what we have.

http://www.ibreastfeeding.com/pages/mmm_2006.html

http://neonatal.ama.ttuhsc.edu/lact/medicationforumspage.html

Here is the exact discussion link below:

http://66.230.33.248/cgi-bin/discus/search.cgi

Wishing you all the best please please let me know if you find out anything different we can all learn from one another.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
In a flare since beginning of December 08
Left-sided colitis diagnosed at age 28 in 2001
Asacol 4 pills 3 times per day
Hydrocortisone and Rowasa Enemas as needed
20mg and tapering for my flare
Prenatal vitamins

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