just quick question bout diareaha

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baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/2/2009 10:01 AM (GMT -6)   
i havent had diareaha before while havin colitis , altho last 2days i have had, i was goin to get some tablets for it but the pharmistis said you cant take them with inflamed colon so she said not to take them... how else do i stop it? as it so painful havin pain of tht , plus colitis and 2 top it period pain.
Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 1/2/2009 10:28 AM (GMT -6)   
Some of the D could be caused by the hormonal fluctuations. It isn't uncommon for "normal" women to have D during that time.

Have you taken some Tylenol to help with the pain? I find that if I can stop the period cramping, some of the bowel cramping stops as well.

Some doctors will allow the use of Immodium (or generic) to help with D. However, I always have a rebound day after using it - the D is worse then. So I try to avoid it when all possible.

Have you tried using fiber? Fibercon, Benifiber, etc?
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
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baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/2/2009 10:36 AM (GMT -6)   
ive only been given co-codmol for pain, but dont seem 2 be doing anything.
when u say Have you tried using fiber? Fibercon, Benifiber, etc? - im not sure wot that is?
sorry to sound stupid .
Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/2/2009 11:51 AM (GMT -6)   
That's okay. There was a time I didn't know either.

Fiber can be used to bulk up stools when you have D. It can also be used to relieve C. Many of us use fiber to help stay "regular".

Fibercon and Benifiber are pills that have fiber. Metimucil has a form that is a powder that you mix with water to drink. (stay away from the one that is sugar free! the sugar substitutes can cause D.) I prefer the pills. I take two fibercon every night before bed - except when bleeding!

One thing to remember with fiber is to start slow and build up to the full dose. You may experience some extra gas/bloating while your system gets used to it - but it will go away.

Tylenol is acetaminophen - which would be part of the co-codamol that you are taking. Just doesn't have the codine in it.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 1/2/2009 11:53 AM (GMT -6)   
Are you in the states?

Fibercon and Benefiber are fiber supplements found in most pharmacies. Fiber can help bulk up the stool which in turn will decrease diarrhea.

And never ever apologize for sounding stupid! You can't learn these things if you don't ask right???
 @--->--SHERRY--<---@
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baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/2/2009 11:55 AM (GMT -6)   
no im in the UK , also you say not to take when bleeding, i always bleed when goin toilet. ???????
Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/2/2009 12:03 PM (GMT -6)   
Is the bleeding from hemis? a fissure?

If you are bleeding from the colitis, you need to be on more than 4 asacol a day.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/2/2009 12:05 PM (GMT -6)   
Is the bleeding from hemis? a fissure?
soz i dnt know what tht means?

and im guessin the colitis is the cause, i do bleed all time, not yet stopped
Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/2/2009 12:14 PM (GMT -6)   
Is the blood mixed in with the stool?

If it is not and just on the tp or coating the stool you can usually assume hemi's or fissures.

Okay - with the bleeding, let's forget the fiber for now. Have you called your doc recently? If not, now is the time. Tell him/her exactly what your symptoms are: How many times you are going to the toilet per day, How many of them are at night, How many of them have blood, Where the pain is, What type of pain it is, If you are having urgency.

My thoughts are that you are not on enough meds to stop this flare.

What enemas were you on? What problems did you have with them?
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/2/2009 12:28 PM (GMT -6)   
i get quite abit of pain in the tummy, and all of a suddend i need the toilet , pain gets worse. i dnt have to let stools out to have blood. sometimes its just blood. hope tht makes sence?
i go toilet alot durin day and night , it mite be worth me keeping a count, but i spose it prob able 15 - 20 in total


Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/2/2009 3:28 PM (GMT -6)   
Okay - you are describing urgency - the sudden need to dash to the toilet. Quite often with a severe flare bloody mucous is all that I pass. This is a reason to call your doctor ASAP!

15-20 times a day is too many. This is not something you can control by yourself. You need to be under a physician's care right now.

Keep track of your bms. A calendar is a good place to do this. You can show it to your doc with exactly how many times you are going. I use a "U" for urgency, a "B" for lots of blood, a "b" for blood, "L" for loose stools. This way you can actually see when you are improving. A food journal is also useful.

If you haven't already, call your doctor.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


baby230802
Regular Member


Date Joined Dec 2008
Total Posts : 25
   Posted 1/3/2009 9:08 AM (GMT -6)   
i have a doctor that i cn see day to day , but then i see any that is free and mine always busy. or there is my consultate in the hospital which is just for my colitis, and i cn only see him evey 6 months. i can talk to his answer machine but he gets bk when he can but not same as c ing him in person, i understand there busy but i just wana get this sorted.
Was told i had colitis in May 08.
Still have no clue about what sets me off
HATE THIS !!!!
 
took enemas  - NEVER again
 
Now takin 2 Asacol in mornin, 2 at night. (400mg )
Also take Co-codamol 500Mg for pain
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/3/2009 10:49 AM (GMT -6)   
1. You are in a serious flare.
2. You need more aggressive treatment. Certainly a higher dose of Asacol, perhaps different or additional medications.
3. I understand your specialist care is rationed. I know it's a drag, but you need to be seeing the GP often enough that they all know you. If they change something and it doesn't work, go back.
4. It's unfortunate that you decline to use enemas, because those could help a lot with the urgency. The inflammation in UC alway starts in the rectum, and that is the last place that heals. I understand they're unpleasant, but if they help, they're a lot better than spending your day in the loo in pain.
5. The more you know about your condition, the better you can advocate for yourself. Read the information here, on the Crohns/colitis foundation website, books, etc.
6. Generally when you're in a bad flare, there's no point worrying about what sets you off. Everything sets you off and nothing sets you off. While some of us can identify foods or activities that trigger symptoms, flares can also come with absolutely no trigger. The hardest part of this diagnosis is for us to come to an understanding and acceptance that we have a chronic condition. The only absolute cure is surgical removal of the colon, which can have its own challenges. Medications can help us, but we have to be dedicated to taking them every day. As your flare recedes, you may begin to be able to identify some things that seem to always make you feel worse. When you're going 20 times a day, there's absolutely no way to tell. Right now you need to concentrate on medical treatment to start getting things under control.

Good luck, and I hope you feel better soon.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2009 10:56 AM (GMT -6)   

I agree with Judilyn, you need to get more agressive with your treatment or your health will continue to delcine.  UC will not go away; you need to be vigilant.  You also need to spend more time learning about UC.  This is a life long disease characterised by periods of flares and periods of remission.  Right now you are in a flare and are not doing all you can to improve your situation.  You need to start back on rectal meds, sometimes it can take a month or more of treatment to see improvement with rectal meds.  You need to work with your GP to be on a regular schedule with your GI.  With your symptoms you should be in your GI's office weekly until your symptoms improve.  You also need to be very open and honest with both your doctors.  I know it's not easy to talk about these things but they can't guide your treatment unless they know everything.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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