I am on the verge of going on 6MP. I have been in a flare for basically a year with my proctitis. I have been hospitalized, been on steriods, enemas, asacol, colazal, cortifoam and now I have been on sulfasalzine for week. My new GI told me to ween off the hydrocort enemas since i have been on them since July. He said that was a terrible recommendation from my old GI. He bsically wanted to start me on 6MP but I convinced him to give the sulfasalzine a try first. Since 12/24 I would say I am definitely getting worse. Whether it is the tapering of the steriod enema or the sulfa...nothing is helping and nothing has ever helped.
For those out there that are on 6MP.....can you let me know the following?
How did you decided to go on it/ or stay on it when trying to get pregnant?
Is it safe during pregnancy?
How long does it take to put you in remission?
Whats the difference between 6MP and Imuran?
I have an appt with a high risk OB in a few weeks and a follow up with my GI on the 20th. I feel like I need to raise the white flag and surrender to 6MP. I have been bleeding since Jan 08.
Any advice would be appreciated. I did search the forum for old posts and that did help.
ulcerative proctitis - march 05 diagnosed
current status - trying to see what works - still bleeding!!!!!
hospitalized - 3/08 for 6 days of IV steriods
colazal - 9 pills asacol - 12 pills, canasa 2x per day, nightly hydrocortisone enemas
VSL#3 Primal Defense Ultra Probiotic (2x per day)
fish oil, flaxseed oil, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex