Hey there, sounds like you and I are in the same boat...I was "diagnosed" with UC 2 years ago....but it didn't become very active until last year at this time. I guess what I was experiencing last year was a 'mild' flare because I was having bloody, diarreah (sp?) stools for monthsssss. The GI that was treating me said it would take awhile for the suppository to take effect, then he switched me to an enema....and continued to give me the same line. Basically, I listed to this quack for about
5 months before I got sick of being sick and listened to one of my friends who has Crohn's and switched to her GI. The first time I saw this new GI, I took him the results of my colonoscopy and everything, and he recommended another colonoscopy...so I had another one done and he said the reason that the suppositories and the enemas weren't working was because those only reach the rectum and the sigmoid and I was infected all the way to the transverse. So he started me on a heavy dose of prednisone and lialda. Once I came off the prednisone, things had made such a significant change for me that I didn't realize that it wasn't "normal" to not have normal BM's. I thought loose stools were ok, considering the condition I had. I wasn't having any pain or discomfort, and the bleeding had stopped, so I just assumed that my BM's were just going to be kinda loose for the rest of my life.
I didn't realize that wasn't normal until I was admitted to the hospital the first week in December. My GI told me he figures that I was having a continuous low-grade flare since I started seeing him; and was puzzled as to why I didn't contact him before, but I had done such a 180* from where I was before, that I didn't think to complain. (What set off the hospitalization was Keflex, an antibiotic that I took ONE dose of for a bronchitis infection...and from there on, they couldn't get my UC under control with out-patient steroids, so IV steroids were needed).
I guess what I'm trying to tell you is; do your homework, ask questions; and don't "settle". Pay close close attention to what you are putting in your mouth and even CLOSER to your stressors. I have heard that UC is not what you're eating; its what's eating you...which I can tell you that I am an emotional person, and if I get all hyped up about
something, it will affect my bowels for sure. Know that nuts, salads and fresh fruits/veggies are typically what will set off most problems because the colon has trouble digesting the little seeds and/or the acids in the fruits are very hard on it as well. ANYTHING that is put in a fryer will knock me down for days...fries, chicken fingers...stuff like that. You are the only one who knows your body...listen to it.
Don't let yourself get down because you have this diagnosis...it's not a death sentence; just a new way to manage your life. :o) Keep me updated; like I said, I think we're kinda in the same boat, being around the same age and rather new to this, although I have a little bit of time on you :). So far, Lialda has been good to me...yes it is very expensive, but it's hard to put a price on your health.
Have a great weekend. :)
Married, 24yrs old
:Diagnosed with Severe UC in 2006:
First hospital admission b/c of flare: December 1-6, 2008
Lialda - 1.2g 3x/day
Currently coming off of Prednisone