I'm confused about this whole Colitis thing

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 1/2/2009 11:32 PM (GMT -6)   
Maybe my doc hasn't sat and talked to me long enough about it, as there are so many conflicting things that can and are happening.  I have had Colitis for about 3 years or so now.  Taking 3 Asacol 3 times a day, and suppositories, and enemas as needed.
I thought someone with "active" Colitis always had loose stools.
My stools have not been loose for weeks now. Matter of fact, they are small and round little semi hard turds.  Yet I still have bright red blood when I wipe, and I also have the "urgency" a bit after eating, unless I am taking immodium.   also no longer go to the bathroom many times a day as I used to. For awhile there I lost 14 pounds as I pooped out everything that went in.
I occasionally get upper stomach aches(high up), and when I pass gas(quite frequently) I pass blood also.
 
I have an appointment the 13th of this month, to visit him, and also to schedule my colonoscopy(4th one, as I get one every 3 years, due to my parents both having colon cancer).
I will ask him about all I have just posted, but I was wondering if what is happening to me is normal with this disease?
Thanks all.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/2/2009 11:37 PM (GMT -6)   
Sounds like your uc is not 100% under control...its good you're seeing your gi doc and he may up your asacol to 4x3 and or advise you to use the enemas everynight for 2 weeks to see if that helps you...feel better.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/3/2009 12:38 AM (GMT -6)   
You don't have to have loose stools in order to be in a flare, there are many varying degrees of a flare.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 1/3/2009 3:10 AM (GMT -6)   
ditto....and the varying degrees and location can determine the symptoms.

Of course, some of us may not have symptoms fitting the actual inflammation, but it definitely holds true for me.

After you eat, it'll trigger the peristalsis and if there's any stool on its way to the rectum, you'll have the urge to go.
Add inflammation, the urge will react quicker and you won't easily be able to hold it for too long since the rectum will want to get it out as quickly as possible.

Do start the Rowasa nightly.

You might also want to add a fibre supplement such as Metamucil smooth to soften and bulk/fluff up the stool...

Please don't keep taking imodium.....it may hold back the urge to go, but won't help with the inflammation.

You're also bleeding...could be from a fissure. If it's mixed in with the stool and not dripping into the toilet after you wipe, that'd probably be from flaring.

Hope you feel better soon.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/3/2009 11:54 AM (GMT -6)   
Just to be sure anytime there is blood and you're not feeling well I'd get it checked out. I used to think my bleeding was from an old fissure/hemmie but it turned out to be my UC and that's when my GI doc up'd my rectal med (corti foam) to every night for 2 weeks...so far it appears to be helping but the bleeding still comes and goes : (.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2009 12:12 PM (GMT -6)   

Bowel movements with UC can range anywhere from constipation to diarrhea and everything in between.  I agree that you need to stop taking imodium and should increase your fiber intake, up your water, and get exercise.  Blood is an indication that you still have inflammation that needs to be treated.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/3/2009 12:28 PM (GMT -6)   
Sue,

Is increasing fiber intake when bleeding a good idea?

Thnx
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 1/3/2009 12:33 PM (GMT -6)   
there are a gazillion sources of fibre. A supplement such as metamucil smooth helps a lot.
Moderation is important....common sense rules.

I again stress not using the Imodium.

q
*Heather* Status..Asacol 6 (3 twice daily); flaring since Dec 22, enemas nightly (sigh!!)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2009 12:39 PM (GMT -6)   

Yes, increasing fiber is a good thing and as Quincy stated it should be done in moderation.  All through my years of UC I had a diet that consisted of over 30 grams of fiber per day.  It never made my UC worse but it helped a lot when I had constipation which is what this poster is complaining of now.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 1/3/2009 10:39 PM (GMT -6)   
Just wanted to stress that I only take Immodium when I leave the house and have no idea where I may find a bathroom when needed.

Thanks for all the comments.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/3/2009 11:11 PM (GMT -6)   
My GI was the one that told me to take fibre supplements daily and at the time I still had a bit of bleeding, it was no problem for me...

Always start with a small amount of ffibre since it can and usually does increase bloating and gas which is normal it's just your system adjusting and then once you've adjusted then if necessary increase the amount...and always drink plenty of water with fibre supplements.

I've been taking it every night before bed for around 5 yrs now.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/4/2009 10:13 AM (GMT -6)   

Joylu - I am one of those who understands taking the Imodium when going out and with the ok from my gastro doc - used in moderation as directed.  It will not heal but allow you to live a life while getting healed.  Just be sure you understand what it is doing!

I also have my left-sided UC now confined to rectum and using just Proctofoam now for 2 months.  My symptoms ALMOST clear up and then worse again.  I have appointment on Friday to see what can be done next.  I can't take mesalamine drugs so limited - maybe thinking stronger rectal steroids for a short time.  I do believe that the probiotic Align has really helped the most - have normal stools most days (with anywhere from no blood to blood and mucous). 

Good luck in us both getting into remission - SOON!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 1/4/2009 7:08 PM (GMT -6)   
     Fiber sends my UP into a tailspin.   Absolute NO NO for me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/8/2009 1:07 AM (GMT -6)   
It depends on the severity of the flareup for me.

Perfect stools with no blood = no flareup

Small, thin stools with lots of blood = moderate flareup

Diarrhea with tons of blood and lots of blood clots = severe flareup
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/8/2009 7:31 AM (GMT -6)   
Regarding fiber, my GI said it depends what kind you ingest. You want to have soluble fiber in your diet vs. insoluble fiber, at least in theory. I realize people react differently. Foods that are high in fiber can often be insoluble and make colitis worse - for me that is true. Lots of examples of both on various websites.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
 
1600 mg Asacol a day
Ferrex
Pre-Natal Vitamins
Lovenox
On and off Prednisone, 40 mg then taper
 

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