insomnia cause?

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vmwuc
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/3/2009 7:11 AM (GMT -6)   
i am new to this cite and came across it because i've been up all night trying to find an answer to my question...unsuccessfully.  I was diagnosed with uc in march '08 and have had many complications with my medicine.  I was first on Asacol and Entocort but had really bad reactions to both.  With the Asacol i started to have headaches and joint pain and after about 2 months my blood work came back showing that my liver enzymes were alarming so i was taken off of the Asacol and put on Lialda.  I was taken off of the steroid Entocort due to severe insomnia and restlessness that did not start until about a month on the steroid.  I have been on the Lialda but recently experiencing many flare ups so my doctor put me on 40 mg of prednisone a day and reducing my dosage by 10 mgs every week.  once i tapered down to about 20 mgs the bleeding/mucusy discharge came back however i finished out my prescription and set up an appointment with my doctor(he is about 3 hours away from me)he decided to put me back onto 20 mgs of prednisone which didnt do anything so a week later he upped it to 40 mgs a day again which didnt do anything either (blood/mucus in stool). Yesterday he told me to start to use a mesalamine enima twice daily for 2 weeks. however, the insomnia has returned and im wondering if anyone has had these similar problems and if they think it might be due to the prednisone since ive had insomnia from steroids before or if it is because of the mesalamine enima.  Also, my doctor is strongly encouraging me to get on Remicade but i am concerned with the side effects (increased chance of lymphoma).  Is Remicade the best way to go?

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/3/2009 7:42 AM (GMT -6)   
Hi and welcome to Healingwell. :) Yes, your insomnia is from the pred. If the insomnia gets too bad, you can ask your doc for a sleep aid. As for the Remicade, before jumping on that bandwagon, has the idea of 6mp/Imuran been discussed yet? If not, I would recommend you go this route before resorting to Remi. Docs usually use Remi as the last resort. Where in your colon is your Uc affected?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/3/2009 7:44 AM (GMT -6)   
Ah.... insomnia, just one of the many lovely side effects of Pred.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2009 7:57 AM (GMT -6)   
Definitely pred.  Take it only in the early morning and then ask for an Rx of Ativan or use Bendryl to use for sleep at night.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


vmwuc
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/3/2009 8:15 AM (GMT -6)   
My first doc told me it was in the transverse colon, the doctor now says it is on the left side
Diagnosed with UC March '08
Asacol 4 3x daily
Entocort 2 3x daily
Currently: Lialda 4 daily
  Prednisone 40mgs daily
  Mesalamine Enima 2x daily
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/3/2009 1:45 PM (GMT -6)   
It's kinda bizzar that you would get insomnia from the Entorcort because steroid based enemas don't hardly release into the blood stream the way oral steroids (prednisone) does.

When taking prednisone be sure to take it first thing in the am when you wake up to avoid insomnia.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


vmwuc
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/3/2009 2:55 PM (GMT -6)   
The entocort i was taking was oral not an enema.
19, female
Diagnosed with UC March '08
Asacol 4 3x daily
Entocort 2 3x daily
Currently: Lialda 4 daily
  Prednisone 40mgs daily
  Rowasa Enima 2x daily
Probiotics


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 1/3/2009 3:25 PM (GMT -6)   
i am not on pred but dont sleep at all well i find that i can go to sleep when i first go to bed but wake 3-4 hrs later and then be awake for hours sometimes for the rest of the night i go to bed about 10 as i am so tired by then can not remember the last time i slept all night
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Mesalazine supps 1gm 26/6/08
  Mesalazine 400mg 4 tabsx2 day
  Domperidone 10mg as needed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/3/2009 3:41 PM (GMT -6)   
vmwuc said...
The entocort i was taking was oral not an enema.

I know, that's why I said "It's kinda bizzar that you would get insomnia from the Entorcort because steroid based enemas don't hardly release into the blood stream the way ORAL steroids (prednisone) does."
 
:)



My bum is broken....there's a big crack down the middle of it! LOL :)

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