back again..looking for surgeon in Boston

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princessb
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 1/3/2009 5:27 PM (GMT -6)   
Hi...I was on the forum a year or so ago and left after entering Remicade remission. Now living in the NE and looking for a surgeon in the Boston or NYC area for a j pouch. I have severe pancolitis and cannot be immunosuppressed again due to another condition. Any thoughts?

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/3/2009 5:56 PM (GMT -6)   
Well, I've been to BIDMC for a GI consult & they have an excellent GI department with lots of good surgeosn. I also hear Dr. Bruce Sands at MGH is great. I've had a surgical consult with Dr. David Schoetz at the Lahey Clinic in Burlington, MA, which went really well. I met with their ENT nurses & the surgeon, & he would've been my first choice for either an ileostomy or J-pouch. Good luck! There are lots of good doctors in the area you're looking in, so finding one should be a cinch. Sorry to hear it's at this point, though.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


princessb
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 1/3/2009 6:04 PM (GMT -6)   
Thanks! I was doing well on Remi but had several severe infections. Now I can't go back on, but am flaring with pretty bad dehydration and weight loss. So....surgery. I'm essentially on the SCD diet due to the flare. Anyway...thanks!

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/3/2009 6:32 PM (GMT -6)   
Please feel better and best of luck with the surgery : )
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2009 7:30 PM (GMT -6)   

I would recommend you visit www.j-pouch.org  There are many people on that site who had surgery in Boston and can give you good recommendations.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 1/4/2009 8:53 AM (GMT -6)   
I see Dr. Adam Chiefetz at BIDMC. He trained at Mount Sinai in NYC. He's pretty young but has an amazing reputation. I also heard Bruce Sands is great. Best of luck.
ulcerative proctitis - march 05 diagnosed
current status - trying to see what works - still bleeding!!!!!
hospitalized - 3/08 for 6 days of IV steriods
colazal - 9 pills  asacol - 12 pills, canasa 2x per day, nightly hydrocortisone enemas
VSL#3 Primal Defense Ultra Probiotic (2x per day)
fish oil, flaxseed oil, calcium w/ vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex
 
 


princessb
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 1/14/2009 6:35 PM (GMT -6)   
Thanks! I am scheduled to see Dr Bruce Sands next month. In the meantime, we did restart Remi and pred and Lialda. I am getting better slowly, but this is a temporary fix :( Thanks for all the help!

Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 1/14/2009 7:25 PM (GMT -6)   
If you can arrange an appointment Mass General Hospital has it's own Crohn's and Colitis Center. I've had really good luck with the doctors there...they listen and seem to really care


http://www2.massgeneral.org/gastroenterology/clinical/crohns_colitis.html
http://asilentocean.blogspot.com/  -> My blog
 
Diagnosed 7/27/08
 
Asacol- 2.4g/day
 
Prednisone 20mg/day 40mg/day  20mg/day and tapering again....


jfc8499
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/1/2009 9:25 PM (GMT -6)   
This message is directed at Eva Lou, I am considering J-pouch surgery because of my ulcerative colitis and live on Cape Cod. I noticed in a previous post that you also live on the Cape. I have heard that Dr. David Schoetz at the Lahey Clinic is a very good surgeon and saw that you had a consult with him. Wondering if you ended up choosing Dr. Schoetz and if you would recommend him? I have been dealing with UC for 20 years and am not responding to my medications so it looks like surgery is imminent. Thanks in advance.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16282
   Posted 9/1/2009 11:08 PM (GMT -6)   
JFC you would probably have better luck finding Eva if you start a new topic. This one is old.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 

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