Diagnosed with Left Sided UC last month

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snwbunny17
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 1/3/2009 11:15 PM (GMT -6)   
Hello everyone. I was diagnosed with UC in November and am Asacol 12 pills a day. my doc recently put me on Steroid enemas. so far nothing has really worked. i missed the enema's 2 days in a row and now it seems like I'm going backwards..more blood etc... has anyone had experience with this? also how long does it take before the UC goes into remission. i'm just so confused and just want to get better. nothing seems to be working:( I'm guessing I'll have to go on steroid pills if the enemas don't work. any help or suggestions would be greatly appreciated.

ElizaLily
Regular Member


Date Joined Dec 2008
Total Posts : 34
   Posted 1/4/2009 12:18 AM (GMT -6)   
Hi Snwbunny,

It's a very unpredictable disease and it's really tough to take at times. Sometimes you'll think you're doing better and then you'll have a terrible day for no apparent reason. Make sure you have a good Doc and research as much as you can on your own. Take a look at the 'Spinach and Sunflower Seed' diet on one of the other threads- people seem to be doing well on it- I hope to be one of them. Good luck and I hope it's a healthy new year for you!

Eliza
43 year old female
Left sided UC for 25 years
Remission with 6MP for the last 6 years - until now.
Flaring for several months - worst flare ever.
Meds:
4 Salofalk/day
6MP 4x a week
Currently trying the sunflower/spinach diet (thanks, cfromutah!)
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/4/2009 8:44 AM (GMT -6)   
Hi and welcome to Healingwell :) Of course you slid backwards after missing a few doses of a steroid enema. You need to think of the enema like a bandaid - if you have a cut on your finger that is bleeding like crazy and you take the bandaid off too early, will it not start to bleed again/still? You need to be consistant with your medication, especially a steroid AND you have to taper when your symptoms simmer down. It can take a long time before a flare can get under control. It depends on many factors such as how well you are responding to the medication, how severe your flare is etc. However, left sided is, according to my GI, one of the most stubborn to treat. Since you have left sided, I recommend that you ask your doc to replace your Asacol with Colazal. Colazal works really well for left siders. It is designed to release on the left side as opposed to Asacol which release at the beginning of the colon and disperses down. Asacol can sometimes not reach the targeted area for left siders.

Also, have you looked into probiotics yet? If not, I recommend you start one asap. A probiotic is basically good bacteria to replace the overabundant bad in your colon. Your colon is overrun with bad bacteria and that is what is causing most of the grief. You need to create a better flora in your colon so it can heal faster.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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