Anxiety and UC

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glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/4/2009 10:38 PM (GMT -6)   
I have severe uc and have tried many different meds. Currently I am on remicade and I think it is working so far. I have had lots of problems with urgency over the past 5 years since my diagnosis. Lately, it doesn't matter if I am having a good day or not. When I got to the store, out, anything holiday related, driving, anywhere I freak out to find the bathroom. This is a worse freak out than normal. If there are a lot of lines, people near the bathroom, or a lot of people there I seem to get instant cramps. I think this might be anxiety, actually I'm pretty sure. I also teach and it seems that I can't wait to get through with class to run to the bathroom. AHH! Has anyone else experienced this? I really don't want more drugs.
 
Holly
 
Remicade every 6w
Entocort 3mg
Cipro 500mg
 
 
24yrs old/ college student/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/5/2009 12:33 AM (GMT -6)   
Hi...I haven't experienced it, but you should consider a fibre supplement to help bulk up the stool and hopefully help you hold it in better.

Are you taking URSO for PSC? (just interested, nothing to do with your problem at this time)

You could also consider to take suppositories to help with minor rectal inflammation if urgency is increasing.

Some food changes during the day may help with gut activity increase.

Are you also using probiotics...they may help indirectly by keeping the flora of your digestive tract balanced.


The anxiety would be thought fuelled...you can try cognitive behaviour concepts to change your thinking process.

You could add kegel exercises to help strengthen your sphincter.

It's great the Remi is helping.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/5/2009 1:12 AM (GMT -6)   
I know EXACTLY what you mean. For me its was like anytime I was getting in the car for a long period of time, the second I'd pull away I would have to go. Now I have adapted and I have a sixth sense for knowing where bathrooms are. I start a new university a week from Monday and I can guarantee you that within a week I will know where all the bathrooms are in the buildings I'm in!
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


cagio1
Regular Member


Date Joined Mar 2007
Total Posts : 56
   Posted 1/5/2009 2:47 AM (GMT -6)   
Hi,
I have the same experience.  I have determined that that stress is one of MY main causes of urgency, onset of flares etc.  I have recently started behavioral therapy to help assist me in working with my "thoughts" so that they are not constantly anxious and worry filled.  So far so good.   You may want to try.
cagio
DX with (pan colitis) UC 9/02 while pregnant
Rowasa (when needed)
Boniva Calcium multivitamin
Iron (when issues appear)
Mild bronchial asthma too
Predinose 300 mg (flaring now)
6MP 50mg started beginning of July 08


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/5/2009 7:52 AM (GMT -6)   
Have had the smae problem.... Most times I can get over it by keepin my mind busy with something else. Texting, talking to someone. Its when I have nothing to do but think how my gut feels that the urgency hits. As for shopping, If I don't already know thats the first thing I do when entering a store. Grab the nearest clerk and ask where the bathroom is. Got really scared a couple times when I was told there was no public bathroom.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/5/2009 7:55 AM (GMT -6)   
I have the same exact problem.  I went to a therapist and they told me to just practice, practice, practice (leaving the house) but it's easier said than done.  I now take a 1/2 a Xanax when needed and it completely takes the anxiety away and makes me feel normal.

Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/5/2009 8:17 AM (GMT -6)   
this is a subject that i deal with every day. over the 14 years i have had uc, my gut/brain function has developed a really bad sense of humor that involves an entire thought/reaction process. it is like it has its own consciousness...it knows when i am leaving the house, knows what routes i am taking, and knows which ones have no bathroom access.... the routes i take that have bathrooms - no problem, no anxiety, etc. no bathroom access = panic attack material. this is not a conscious thought process in my own mind....the whole time i am trying to calm myself and consciously relax....no....it is something different - a nerve reaction that we have no control over.... unfortunately this leads to urgency, diarrhea, and the possibility of crapping oneself in public....

ativan helps, but isnt the cureall for me....it makes me tired so i generally only take it at night. it sucks that in order to relax we need to take a drug that ultimately makes us useless for the day....but then again how useful is a panic attack?

bummer.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/5/2009 7:11 PM (GMT -6)   
Thanks I feel a lot better knowing that I'm not alone. Sometimes its worse than others. I appreciate the replies!

Quincy- I am not taking urso, I was but it was not helping. My LFTs are actually okay but the psc has developed some abnormalities in my liver. I recently met with a transplant surgeon. A liver transplant is in my near future and they want to remove my colon first because it will be safer. I'm not sold on it yet, but we will see after my next ERCP. How is your PSC?

Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/5/2009 7:11 PM (GMT -6)   
Thanks I feel a lot better knowing that I'm not alone. Sometimes its worse than others. I appreciate the replies!

Quincy- I am not taking urso, I was but it was not helping. My LFTs are actually okay but the psc has developed some abnormalities in my liver. I recently met with a transplant surgeon. A liver transplant is in my near future and they want to remove my colon first because it will be safer. I'm not sold on it yet, but we will see after my next ERCP. How is your PSC?

Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/6/2009 2:39 PM (GMT -6)   
I experience it too. In the car, but especially on airplanes, when that dang light is on! My doc gave me xanax but I didn't notice it helping at all. I just tell myself not to fight it, just go, and go again. Cool air and quiet helps. And I say to myself, "you're OK, you're OK..." and try to think logically that my gut or bladder has to be empty, because I just emptied it...
It is the worst thing about this disease, I think.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/6/2009 4:11 PM (GMT -6)   

Same here.  I think I have visited every Lowe's, Home Depot and Walmart within 2-3 hours of Memphis.  My job involves a lot of driving in the TN, AR and MS areas so I have a 6th sense (like a GPS) that I know where the closest and cleanest bathrooms are.  I think that just makes it all worse though.

Though if it comes to it, there is absolutely no shame in my game on where I go (other than on myself).


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/6/2009 4:22 PM (GMT -6)   
Same here - I have worked on it a lot w/ a therapist but fine for the really trapped situations (airplanes!) xanax works best. I also use it in court sometimes.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/7/2009 12:45 AM (GMT -6)   
glaciergrl said...
Thanks I feel a lot better knowing that I'm not alone. Sometimes its worse than others. I appreciate the replies!

Quincy- I am not taking urso, I was but it was not helping. My LFTs are actually okay but the psc has developed some abnormalities in my liver. I recently met with a transplant surgeon. A liver transplant is in my near future and they want to remove my colon first because it will be safer. I'm not sold on it yet, but we will see after my next ERCP. How is your PSC?

Holly

Hi Holly..yes I remember now regarding your PSC situation and the colon surgery, etc. 
I'm doing fine regarding LFTs...I'm getting some blood tests done on Thursday and will find out results on the 22nd.
No problems that I feel anyway. 
 
Hope your anxiety levels lessen...you have a lot on your plate. 
 
Keep us updated.
 
q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 1/7/2009 2:50 AM (GMT -6)   
Gosh I'm THE EXACT SAME way.

For example: today I went to Crate and Barrel with my hubby..have a $100 giftcard I totally wanted to spend, but I walked in and asked where the bathroom was..there wasn't one. So I went to the next lady and was like I have a stomach disease..do you have a bathroom..usually if it's private, they'll make an exception...she said no, but right across the street there was a burger joint. Well...course since it wasn't in the immediate vicinity..I started getting cramps...ran to the bathroom, went back to C&B and looked around a little more before it hit...told hubby I HAD to go and we'd have to come back another time. It was so disappointing.
Kara, 21F Married.


Medications:

<FONT color=green>Lialda - 4 pills in the morning w/ food.
Steroid Enemas and Mesalamine Enemas


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 1/7/2009 2:51 AM (GMT -6)   
Not to mention his car was in the parking garage and on our way out I felt like I was going to poop my pants and asked where his car was cuz I was in too much pain to think...he wouldn't answer and every time he didn't it got worse...and he finally told me and as soon as I got in the car I could focus on calming myself down and it helped, but if I can't find something...I freak and it gets worse.
Kara, 21F Married.


Medications:

<FONT color=green>Lialda - 4 pills in the morning w/ food.
Steroid Enemas and Mesalamine Enemas


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/7/2009 11:10 AM (GMT -6)   
A restaurant that doesn't have a bathroom??? never heard of that before...ever! Is that even legal?

Maybe you can do a take-out?

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 1/7/2009 11:21 AM (GMT -6)   
Quincy - Crate and Barrel is a store, not a restaurant. They sell home furnishings. You don't have one?

I actually have the opposite reaction. When I am traveling or out I won't have to go at all. When I am home or near a bathroom I have urgency every hour. It is the same with sickness. If I was traveling for work I would be working a million hours, sleeping 4 hours a night, and be fine. Then I would get home and it was the weekend and WHAM, I have a bad cold. It must be so hard to have anxiety about where the bathrooms are. Especially in Crate and Barrel(which I can not believe doesn't have a bathroom...how weird!) Hang in there! Oh and congrats on the $100 giftcard...what fun!
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 1/7/2009 11:22 PM (GMT -6)   
Hi Jen..never heard of C&B...seems a very big store from what I see on-line!
Apparently, there'll be one built in Toronto..or is there already.

Hey, we're getting an Ikea earliest 2010..latest 2013. about 350,000 sq feet if I'm not mistaken. Seems there is quite a following and people are ga-ga over it. I would be excited to see it for more the accessories and stuff rather than furniture.

I think it'd be a long while before we got a C&B.

quincy
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/7/2009 11:27 PM (GMT -6)   
I actually thought of writing a book on rating the worst to the best public restrooms....might as well capitalize on something I am experienced in.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/7/2009 11:55 PM (GMT -6)   
I don't know if this helps anyone but I guess there is an application you can add to your iphone that rates bathrooms. You type in your zip code and up pops a listing of the cleanest, nearest bathrooms to you! What a genius!

I had a terrible experience at gap, they told me they didn't have one either. I could SEE it! They locked the doors and refused to let me use it. I'm in WI and there aren't any laws. I was very upset and made a deal about it. It was around Christmas time...yikes!

Thanks again for all the advice/anecdotes! They sure help!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/8/2009 12:48 AM (GMT -6)   
I don't have this problem. In fact, I get instant cramps the minute I get home, not the minute I go outside.

Perhaps, it's because my grandmother was agoraphobic. I love going outside, and I've never let fear stand in my way the way it did for my grandmother (and she didn't even have to contend with Colitis). During my last flareup, there were times when I had only a five second warning. I still went outside. People laughed at me when I ran to the bathroom in Target (twice), and I pooed in my pants once. Luckily, I was wearing a pad at the time.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

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