What's the bright side of ulcerative colitis?

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UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 403
   Posted 1/5/2009 8:19 AM (GMT -6)   
Is there some upside to this? Humorous responses are acceptable.
12 Asacol
100 mg Imuran


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 1/5/2009 8:32 AM (GMT -6)   
Loosing extra weight...:-)) But in these conditions, I would prefer to be choby and healthy :-))
Left side UC, diagnosed 2008
Colazal 10 tabs/day
VSL#3 4


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/5/2009 8:33 AM (GMT -6)   
While out in a public place and if we are with a friend that has to use a restroom, at least we can tell them where it's at?? :) Oh and what about, we can honestly tell someone what the best toilet paper is?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/5/2009 8:35 AM (GMT -6)   
Well, one plus side I've found is I always have an excuse to get out of doing literally anything I don't want to.

And also, I'm getting scoped and checked out and blood tested so often that if anything ever was wrong in my body, I'd likely catch it really early and have much better chances than a healthy person who never goes to the doctor and comes down with something without realizing it.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/5/2009 8:36 AM (GMT -6)   
Oh and yeah, staying skinny without diet or exercise is certainly a plus.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/5/2009 8:39 AM (GMT -6)   
and just think of the quality time on the throne.... lot of reading getting done.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08


ElizaLily
Regular Member


Date Joined Dec 2008
Total Posts : 34
   Posted 1/5/2009 8:44 AM (GMT -6)   
These replies made me laugh...I needed that seeing that I just had a horrible night! I like the comment about knowing where the bathrooms are - that's so true! Today it's hard for me to come up with any positives about UC...sorry.
43 year old female
Left sided UC for 25 years
Remission with 6MP for the last 6 years - until now.
Flaring for several months - worst flare ever.
Meds:
4 Salofalk/day
6MP 4x a week
Golimumab Study
Currently trying the sunflower/spinach diet (thanks, cfromutah!)
 


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 403
   Posted 1/5/2009 9:49 AM (GMT -6)   
You get a whole lot of time to read while sitting on the toilet.
12 Asacol
100 mg Imuran


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/5/2009 9:58 AM (GMT -6)   
Poop/bathroom jokes and conversations are no longer taboo in my family! :)
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/5/2009 10:03 AM (GMT -6)   
Seriously, there is a bright side and that is , it's not CD...at least with UC we can have surgery cure us and also get a J pouch...I consider that a blessing to have as an option : )
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/5/2009 12:23 PM (GMT -6)   
The bright side for me: it was the wake up call I needed to clean up my act, start eating healthier, working out regularly and feeling much better.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 1/5/2009 12:27 PM (GMT -6)   
greaat responses! I lost 40 lbs when I first got sick and then when I was put on pred. I gained it all back. So, I am chubby and sick... Oh, that's not the bright side...

Bright side- I don't let little things bother me as much as I used. One, I don't have the energy and Two, there is always bigger fish to fry

yeah
Jackie, 43

Pancolitis, DX October 06

Lexapro, colazal 3x3, Sythroid, Protonix, Flagyl

10 infusions of Remicade- doesn't work
Severely anemic-

back up to 30 mg of pred
Added 6MP- November 25th
 
Surgery almost certain


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/5/2009 1:17 PM (GMT -6)   
1. The weight loss.
2. A reality check when I got diagnosed at 31 that I'm not young and invinceable.
3. Got me over any modesty/squeemishness/fear of doctors, etc.

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/5/2009 1:30 PM (GMT -6)   
Definitely weight loss was nice. I just pulled out my jeans from when I was sick with my first flare and I couldn't believe that I ever that skinny! After I was in remission I went a little hog wild with the food and then the freshman 15 came!
Its also like my get of a jail free card. There are some privileges I get that others don't just because I have UC. Like in high school if I ever overslept my parents would just write a note saying my stomach was bothering me (even though it really wasn't!) and they couldn't do anything because it was noted on my file :)
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 1/5/2009 1:37 PM (GMT -6)   
It has made me realize not to take things for granted and to not sweat the small things.
I still worry alot about how I will progress with this as I am only newly diagnosed and not sure what to expect from my body...BUT...I have done well at putting the smaller things in life that used to drive me crazy and realize that they are not all that important in the big picture.
 
 
 
 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 1/5/2009 2:51 PM (GMT -6)   
I've met great people on this forum.

I can take 15 meds/supplements at one time...great skill.

I pretty much can use a roll of toilet paper myself in one day...expensive habit.

I have experience to make suggestions.

I've learned how to research and now type a lto betetr thne I evor didd.

quincy
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 403
   Posted 1/5/2009 3:10 PM (GMT -6)   
I've learned to take pill after pill after pill without needing any water!
12 Asacol
100 mg Imuran


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/5/2009 3:46 PM (GMT -6)   
I have proven my strength and have less fear of anything.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/5/2009 3:47 PM (GMT -6)   
Oh, and the pill thing. No water necessary. Too funny.
And knowing where bathrooms are!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 1/5/2009 9:36 PM (GMT -6)   
I'm not afraid to die.
Age: 30
Sex: Yes please!
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day, Mesa rectal meds
Supplements: calcium, and multivitamin
No. of colonoscopies: 5
Last scope: 6/7/08-everything looked ok.
 
 


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 1/5/2009 9:57 PM (GMT -6)   
Great question - for me, the advocacy now of promoting IBD and Jpouch awareness has given my life purpose that I didn't have before. We started the blog as a way to talk with our family/friends through my surgeries and stuff and now it has helped some others. I guess it feels good to have purpose even out of all the hardship of living with UC for so long.

Mark
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/5/2009 11:28 PM (GMT -6)   
I know how you feel as I too have recently felt the same way due to this stupid disease...but thanks to increasing the cortifoam I'm starting to turn the corner (I think/I hope/I pray)
jars05 said...
I'm not afraid to die.



Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 1/6/2009 12:44 AM (GMT -6)   
It's not Ovarian Cancer. It's not lung cancer.

Sulley
Regular Member


Date Joined Jun 2007
Total Posts : 38
   Posted 1/6/2009 12:50 AM (GMT -6)   
the blue stuff they give you when they scope you.

the relief you feel when you can finally take a normal dump. you never take it for granted again.
pan-UC dx'd June '06, remission for one year, now flaring. 7/8-7/9 in hospital, 2nd colonoscopy showed it was left-sided this time.
 
4x2 asacol
3x3 750 colazal
50mg 40mg 30mg 20mg 15 pred on 8-06-07
2x1000 canasa
 
 


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 1/6/2009 1:30 PM (GMT -6)   
For me, I don't have to worry about driving drunk. I eat and eat and don't gain much weight. I can spot a bathroom by the architechture/design of the building (lol, call that a sixth sense) and well at the university I have some benefits as a student with disability. I can make anyone laugh because of my poop jokes :)
Male, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol® 2400 MG 2X daily, Rowasa® (when needed), 1MG Folic Acid, 20 MG Prednisone (tapering from 40MG), Remicade® 10mg/kg every 6 weeks, New Chapter® Only One, New Chapter® All-Flora Probiotics, New Chapter® Bone Strength Take Care, FutureProbiotics® Vegetarian Enzyme Complex 50+
Status: Recent almost two month flare, but now in remission I believe... :) No urgency, no blood, good consistency :)

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