I have already gone 8 times this morning. Blood has increased dramatically. All of this got worse after I saw the new GI at Beth Israel. He took me off the asacol, told me to taper the hydrocort enema (even though I still bled 2x a day with an avg of 3 BM's) and switched me to sulfasalzine. (4 pills 2x a day). This was on 12/24.
This morning I called my GI and have not heard anything back. I know 6MP is the next step but I am bleeding so much and have a lot of pain in my stomach - spasm pain when I go.
I just left my old GI a message...because she usually gets RIGHT BACK TO ME. I am going to be embarassed to tell her I went to someone else....but I need help bad.
I have not taken the sulfasalzine this morning. I did a hydrocort enema last night too.
I feel like I did a year ago when I was hospitalized....
sever ulcerative proctitis - march 05 diagnosed
current status - trying to see what works - still bleeding!!!!!
hospitalized - 3/08 for 6 days of IV steriods
colazal - 9 pills asacol - 12 pills, 4 pills 2x a day - sulfasalazine (started 12/24/08)
canasa 2x per day, nightly hydrocortisone enemas - tapering
VSL#3 Primal Defense Ultra Probiotic (2x per day)
fish oil, calcium w/ vitamin d 2x a day, curcumin, prenatal vitamin & extra vitamin c and b12