i think there were 5 of us who had the first part of the j-pouch op in a 4 week period over Oct/Nov. As well as those previously mentioned, there was also Cher, Nascaron and myself.
i have been plodding along, trying to get my boys to do as much as they can to help out. although there hearts are in the right place, they have been allowed to pick up some lazy habits :(
i have been doing ok and have not had any major setbacks. my stoma has been behaving quite well altho recently the area around it has started to get a bit red and raw. i hope to catch up with the stoma nurse soon.
i sympathise with Paul's frustration with THE BAG. A couple of times i have been out when it started to fill up and it presents a huge bulge! Fortunately i didn't have to tuck my shirt in. I had a problem when i had my belt on too tight as it irritated the bottom of my incision and i had a bit of seepage from it. if the belt was on too loose then my pants would come down! in the end i started to wear braces again. the last time i wore those was in lower primary school!
i am still a bit tired and anaemic but i have recently found an iron tablet which doesn't turn everything black.
I am hoping to go back to work next week but i expect that it will be a bit of trial and error. I guess I was worse when i worked full time before the op so i should be able to manage.
Hope everyone had a great xmas/new year and apologies for rambling.
49yo single dad
mesalazine 1.5g, prednisolone 15mg
gave up on meds after infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept
have temp ileostomy, reversal probably in Mar/Apr 2009.
and I don't know where the nearest toilet is!