Psa, come to NYC and Mt. Sinai hospital. I'm sure that they can improve on your surgery.
I do best when I take a daily dose or two of immodium. After j-pouch surgery, it's important to drink max fluids daily. You no longer have a large intestine to absorb your fluids.
Thanks so much Malachy for your kind suggestion. Indeed it is heartening to find helpful people on this forum. However, my complications are such that all the doctors in India have raised their hands and given up. I have a big incisional hernia as during the first stage my incision did not heal - the tissues did not form for over 5 months and it remained
open. In between there were lots of complications like food obstructions, pouch reaction, some clotting/pus formation inside abdomin. In the interregnum I had this incisional hernia which is like an expecting mother. My waist line grows bigger day by day and from 34 has crossed to 41. Ha Ha ha. Throwing my weight around. Anyway somehow they did operate me for second stage and joined the ileo and made the J pouch operational in March 2006. I thought my problems were over, but just after seven days of surgery, when I went back home, my intestine burst; the ileo which they had joined back burst
open and so did the stiches and the feaces started flowing from the abdominal wall. Anyway, somehow that got resolved and then the worst came over. I had big abscesses on my butts (left, right and center) in September 2006 which are still lasting and had lots of further invasive surgeries. Now since Jan 2007 I have horse shoe fistulas which were operated upon and fistuloctomy was done. But no respite. All the doctors have said that nothing can be done and I have to live with the pain as the fistula is communicating with J pouch and has perforated it and any action to repair would further damage.
So that is life. All medicines, remicade, medicated thread, homoepathic, ayurvedic have failed and still my will power is pulling me along. They suspected it to be TB of rectal wall and then crohn's but the biopsy did not show that. Fistrulas get filled up every fortnight. Anyway thanks for your help. I would get in touch with the Centre recommended by you. Thanks so much again.