I still am going back and forth on whether or not to have surgery. On the very few "good" days that I have, it makes me not want to go through with surgery, but I've been feeling so terrible lately and the idea of waking up and feeling the complete absence of disease sounds so wonderful, because right now it feels like my whole body is infected and withering away. I know it's probably time for me but I'm still scared sometimes when I really start to think of it, so I'm trying Remicade first and giving that a little bit of time before I make the big decision.
Everyone gave great advice, and they're all the reason I've ever even considered surgery in the first place and it sounds like a much more realistic option now than it ever did before. But the most important thing is that YOU are ready for it and you do all the research you can and go in comfortable with your decision. And as others said, don't let your GI dictate when you should have surgery- if you feel you're ready, then that's all that should matter.
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...
Lexapro 10mg, Azasan 100mg