It's my 4 Year UC Anniversary!

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/5/2009 4:28 PM (GMT -6)   
It was Saturday January 8, 2005 and I went to party and drink with friends. I had just graduated college 2 years earlier so I had fun with some old high school buddies and litteraly drank beer all night. I remember I went out to a restuarant with my g/f the very next day and didn't touch my food. I just blew it off since I did drink a ton. Then the Diahrea never went away. about 2 or 3 weeks later I saw the blood. Another 2 or 3 weeks later I was diagnosed with Severe pancolitis. I look back now and still think I underestimated this disease. I didn't have pain at all. At the beginning I only had 1 controlled BM of bloody D and that was it.
Never did I have digestive problems before. I could eat and eat and eat and drink whatever I wanted and stayed around 160-170 pounds. I must say life was good without any dietary restrictions. I lived off cheeseburgers and fried burritos and very spicy homemade mexican food. Ahh that was the life...
So here I am 4 years later, a scrawny 140 pounds, but I am off the "big guns" and my UC seems to be improving. I eat healthier now. Even healthier than when I thought I was eating healthy when I was a UC newbie, if that makes any sense. I am currently getting over a flare little by little. Seeing less and less blood each day and less tenderness. I can also test my gut more and not worry. Like yesterday I ate out at a mexican food place with my mom after church and later with my cousin at another mexican food joint. I must be getting better...lol.
I never thought I would have this disease this long, but I was sort of naive i guess. It's a wicked scary surprise, but we have to deal with it the best we can. Sorry for this non helpful post, but I am probably one of the few that can remember the day that UC struck me.
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 1/5/2009 7:12 PM (GMT -6)   
On vacation , last x-mas,
My daughter, then 14 said, "mom, I've been afraid to say, "but there is blood in my poop"- I called the Pediatrician, who thought it was as hemmie, and I called a gastro right away. On Jan 20, the colonoscopy confirmed UC, and "we" have not been ok since!! AHHH, Memory lane. I guess the road ahead should stay foogy 'till we have to confront it. Thanks for the New Year's reminiscence, and I wish you health and healing on your journey.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 1/5/2009 10:20 PM (GMT -6)   

Well my sumptoms started only 6 months ago, but like you "Got2Believe", I am 28 years old and never thought I would have digestive problems. I drank all the beer I wanted, ate pizza, pasta and spicy hot chicken wings with every sporting event.

I worked out, was a healthy 170lbs, and ate a fairly balanced diet (except when watching sports - see above).

One day in July this year, I was working...thought I had to pass gas, was wrong. Didn't have an accident, but was darn close. I thought I must have ate something. The symptoms came and went. I never panicked as I didn't have much blood or pain, but as the weight started to come off, I seeked out my doctor. Tested negative for everything. Finally got referred to a GI and a colonsocopy Dec 5/08. I was told I have "chronic colitis" or UC on the right side (which I am finding out is fairly uncommon).

Since then, I am trying to eat healthier but the pred is giving me cravings like you wouldn't beleive. Hoping to stay positive and in remission as I taper off the pred. I am now a 20lb lighter 28year old weighing in at 150lbs.

I have to say that the shock is still here after being diagnosed 1 month ago today....but I know the feeling and it sucks.

Just thought I'd throw that out there to go with your post. Nice to share with others going through the same crap.

Stay positive!!! It helps more than you can imagine. :-)


 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/5/2009 11:19 PM (GMT -6)   
gottpbelieve, from your sig it looks like you are off all meds and you mention your flair is getting better...that's great
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/6/2009 7:39 AM (GMT -6)   
Happy anniversary..lol. This month marks the 6th year since my diagnosis. I started out with c. diff 6 1/2 years ago but after I had my baby on Dec. 31st, 2002, I started bleeding w/D again. My GI did an emergency colonoscopy and I was diagnosed with UC. It's been fun times ever since....NOT!
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 1/6/2009 8:23 PM (GMT -6)   
Speaking of going down memory lane....

One of the girls at my work, (Child Care) well.... this girl is a schoolager, was in the hospital for 2 days. She won't be back at school til Thursday, but... I was talking to her today and asked her what was going on with her? And she told that she was bleeding. I asked her where, when you pee or poop, she told me poop. I asked her what she was being tested for, and she didn't know. She told me that the doctors didn't know. Possibly the mom knows, but the child doesn't cuz it's a lot for a child. But when she was telling me stuff that was going on with her, I got scared myself. Basically I was doing a check off list with her. Then the more I thought about it, the more I think that I just hope she has C-diff. She's on antibiotics, but..... it still scared me when I was talking to her. This month will be 2 years since I started coming down with UC. This May will be 2 years since remission. Happy anniversary Got2Believe, glad to hear you are doing better.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/7/2009 3:20 PM (GMT -6)   
I can't remember the day or month I was diagnosed. I just know it was in 1999 and I went to the bathroom one day and the water was so red that I couldn't see the bottom of the toilet, so I freaked out and showed it to my mom, who freaked out and brought me straight to the pediatrician, who referred me instantly to a pediatric GI. I just remember lots of 45min car rides to see her, and many tests (colonoscopy, barium follow through, CT scan, blood work, etc etc) in the first week or so. It was a lot to wrap my mind around at the time. But they made it clear to me from the very beginning that it would never go away, so I came to terms with that pretty quick. Crazy that I've had it for about 10 years now! But I'm definitely getting sick of it, that's for sure. 10 years is 10 years too long.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 1/7/2009 7:36 PM (GMT -6)   

Happy Anniversary!? Is that appropriate to say for this post? Anyway I don't know the specific day Bratcat got sick but I remember the week or so before. We decided to take a mother/daughter road trip to PA to see the band Chicago. We had a blast! Looking back, we don't remember if she had any bathroom issues that weekend (I know it was that time of the month for me and I was in the bathroom alot!). about a week later she had diarrhea and we thought she had a stomach bug. A couple of trips to the doctor and within a month she was diagnosed with UC.

Instead I'd like to think of her anniversary as July 3, 2008. That is the day of her first surgery and the beginning of her new, improved life. It's great to see her healthy and happy.

I wish you only the best.


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp

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