false lab results for ulcerative colitis

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New Member

Date Joined Jan 2007
Total Posts : 6
   Posted 1/6/2009 11:26 AM (GMT -6)   
I am going to have a total colectomy in one month. My doctor is not sure if I have crohn's or colitis.  My lab results from prometheus labs has always said that I have ulcerative colitis.  Has anyone had a false result on the serology test for prometheus?

Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 1/6/2009 11:49 AM (GMT -6)   
I have had the same UC result for the Prometheus and also some uncertainty regarding the diagnosis, though the pathologists tend to be 90%+ sure I have UC... however they mostly all consider the Prometheus useless and inaccurate. I think the fact that they can't be 100% sure, or at least 99%, is one of the many factors that keeps me hanging on... but like you I am leaning toward colon removal pretty soon. (I won't have a choice if I can't get off prednisone in any case).

Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie

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