I always wondered if using the bathroom so much affected my ability to hold my pee. Never had to grow a very big bladder! But also sometimes I really feel an urgency to pee, and it turns out I really had to poo.
Anyway, I had trouble with leakage when striking the golf ball and got tired of having to wear a panty liner, so I had an outpatient procedure called sub-urethral sling, where they sling up your urethra with some tape-like material. It solved the problem of leakage, but not urgency.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days.