5 Year old with suspected UC

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ZSLYR
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/6/2009 12:27 PM (GMT -6)   
My 5 year old daughter has had a lot of stomach issues lately. A colonoscopy determined that might have UC (it seemed to be going into remission a the time and wasn't active)
She is on Pentasa which helps with the diarrhea. For the first two weeks she was great and then she started getting pain again but stools are normal.

For the past two weeks she has woken up at 2am every single night with severe stomach pains. The only thing that helps is a heating pad and about an hour of rocking back and forth. She does have stomach pains during the day but the night seems to be the most painful.

I think she is effected by diet and stress. She has been off of dairy and wheat for about 2 months which helped a lot but now the pain is back and she is still not eating dairy or wheat.

Can anyone relate to this?
How long to flare ups last for?
Does anyone have any dietary tips to share that are kid friendly?

She also has a lot of other health problems listed below.

Congenital Heart Defect
Heart Transplant. On immunosupressant drugs.
Frequent infections requiring multiple courses of antibiotics.
Alopecia- she has lost most of her hair and is going for a topical sensitizing treatment to put her back into remission.

This is new for me and the doctors haven't been particularly helpful. If anyone has any recommendations I would love to hear from you.

Thanks.

ZSLYR
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/6/2009 12:31 PM (GMT -6)   
I forgot to mention that her pain is right in the middle of her belly button. Does that sound right for UC? It's always there and no where else.

Colitis Confusion
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/6/2009 1:40 PM (GMT -6)   
Wow, I offer you and especially your daughter my deepest sympathies and prayers. No five year old should have to deal with what she's dealing with.

My UC pain is always on my right side - up and down the rib cage area.

It seems everyone has differing opinions on diet and UC. Some try mostly fruits and veges, others try the specific carb diet, now it's on to spinach and sunflower seeds, and so on..... I think the best bet is to keep a food diary and slowly add or if necessary subtract foods that may cause your daughter to flare. Unfortunately this is easier said then done as it seems the food could be in your system anywhere from 2-6 days.

I am currently going through my worst flare since being diagnosed last February and I can't even get my prednisone to kick in this time. Plenty of rest and minimal stress are all keys in my opinion.

Good luck and you may want to search the site for some pediatric ulcerative colitis threads.
Asacol - 12 per day
Prednisone - could be back up to 40 mg : (
Imuran - 100 mg
Omega 3 - 1 per day


JoMarie
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 1/6/2009 7:24 PM (GMT -6)   
So sorry your daughter has the problems she has had.  It doesn't seem fair, does it...
 
My 13 year old son was just diagnosed in the spring with ulcerative colitis, and he used to complain of stomach aches around his belly button area, too, though it did not wake him from sleep as far as I know so I know it wasn't as severe as your daughter's. 
 
Dragonpack is a great site for parents of kids with UC and Crohn's....Just google Dragonpack and it will come up as an IBD support forum...
 
Prayers to you and your daughter...
 
 
 
 

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 1/6/2009 8:34 PM (GMT -6)   

Hello,

I'm so sorry to hear about your daughter. I'm wondering if all the antibiotics are taking a toll on her health. Most antibiotics are fungal poisons and can cause a lot of gut problems, (diarrhea, sometimes UC symptoms, etc.) Is she currently taking probiotics to restore her bowel flora? I would recommend eliminating processed sugar for awhile, as well. "If" it is a fungal/yeast overgrowth problem she has from the antibiotics (and I'm betting she does to some degree), she should avoid sugar for awhile as fungus thrives on sugar (and grains). I hope she finds relief soon.


ZSLYR
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/6/2009 9:32 PM (GMT -6)   
Thank you for the responses.
I have checked out DragonPack. It looks like a good resource. Thank you.

As for probiotics and yeast, I have no doubt that she has some sort of yeast overgrowth. Can yeast also cause UC?

She has been on probiotics for a couple of years now and especially when she's on antibiotics. I took her off at her transplant doctor's request but I am putting her back on soon. She eats so little as it is and she is off both dairy and wheat it's hard to tell her she can't have sugar but I do try to watch her sugar intake and give her plenty of fruit to eat first. She was doing very well for the two weeks leading up to Christmas so we let our guards down and let her eat pretty much whatever she wanted and now she's almost back where she started.

Just a thought, she actually had a case of C-difficile with ulcerative colitis 2 years ago. The probiotics helped then. I thought the C-difficile had caused the UC but now I'm wondering if she had UC first. She did have some mystery stomach problems for the 6 months prior.... I guess we'll never know.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 1/7/2009 4:08 PM (GMT -6)   
ZSLYR said...


As for probiotics and yeast, I have no doubt that she has some sort of yeast overgrowth. Can yeast also cause UC?



Yes, there can be a fungal link with UC. Yeast/Candida is not the only fungus implicated. There are over 400 kinds known to cause disease.

If you noticed a worsening of symptoms after Christmas by letting her eat what she wanted, I'm thinking that is a clue that choice of food (high carbs feed fungus) is a player in this, as well. I know for me I may feel "off" from Halloween through the New Year with all the extra junk I put in my mouth. It's tough to supervise her every bite, but maybe just don't keep the "blatant" sugar sources around for her to be tempted...you know, chips, candy, cookies, ice cream, etc.

One reason probiotics can help is because they make organic acids that not only prevent the growth of fungi such as yeasts, but also neutralize mycotoxins in the intestines before they make it to the bloodstream. Why did your transplant doctor request she stop taking them?...just wondering.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16288
   Posted 1/7/2009 4:21 PM (GMT -6)   

I have always felt like I had a candida overgrowth in my gut...

I am so sorry to hear about your little girls health. How truly horrible. I am thankful for everyday in my life that was free of UC. I hope you can find a noninvasive solution to this. I wish I could offer you some advice but unfortunately I haven't found any miracle substance that my UC responds to.

I find that I am very sensitive to lactose and corn.


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)

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