Visit with GI Guy today. Any info/questions I'm missing??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/6/2009 1:49 PM (GMT -6)   
Hello all,
 
Getting in to seem my GI guy today for an office visit cool
 
I was diagnosed with mild/moderate UP in May 08. Usual symptoms have continued for the most part firstly with Pentasa suppositories, and now Cortifoam (though it appears bleeding has slowed down after a week of using the "proper" amount)
 
I've got a bit of a list of things I want to let him know as well as ask him.
i.e. - my continued/worsening symptoms
     - my meds
     - Another C Scope for my possibly advancing to "fullblown" UC?
     - Diet as it relates to my condition
     - Stress/anxiety as it relates to my condition
 
The last one may well be the key for me. After reading this link last night it's got my personality these days right to a T.
 
    
    
I realize that nobody's visits are for the exact same reason, but anybody else have anything obvious to add that I'm missing?
 
Thanks!
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 1/6/2009 3:22 PM (GMT -6)   
I can understand the questions.

You should, however, request to try oral 5ASA meds such as Asacol...low dosage, to help keep the above the rectum/sigmoid nice and calm.

Do ask regarding antispasmodics.

Do stress your stomach discomfort and enquire regarding a test for that. Get checked for H. Pylori..which is connected to stomach ulcers. Not to be confused with UC...no connection..but you are having stomach discomfort.

I don't think you need another c-scope..maybe at the year mark. Ask for a copy of you results, however...and ask him exactly how many biopsies he took.
Your symptoms would be different than what you're experiencing at this time.
As a bit of an insurance, the oral 5ASA meds can help keep the colon nice and calm..I started with 4 daily..fyi.

If he says diet won't make your UC worse..that's true, but it really will help with comfort. Milk products and some foods can encourage gas...which will cause you pain and stress..etc. Much easier to not eat the foods at least until you get more in tuned with things regarding how you relate to your UC.

Your questions are a good start..while anxiety is possibility a big part of how you're thinking and ultimately feeling, try not to make that the focus. It'll be an easy fix if something else is going on. But in saying that...your fears won't be aleviated unless you get the right answers.

You could ask him if you can switch to Salofalk enemas instead of the steroid.

Hope this doesn't cause more confusion.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/6/2009 3:49 PM (GMT -6)   
Thanks so much Quincy!
 
You should get paid for all the great advice/thoughts you provide on this forum! You'd be rich!
 
You're likely right on the Anxiety...don't want to derail my reason for the visit as much as that may be one reason why I'm feeling the way I do.
 
Thanks, will provide an update tonight. 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 1/6/2009 3:52 PM (GMT -6)   
You're welcome...looking forward to hearing how it goes. I'm happy for you that it's sooner than later...

balmy out there today..looks more like February to me..lol!

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/6/2009 9:06 PM (GMT -6)   
Hello,

Just a quicky response.

I think things went well with the appointment. More details later...taking care of some "kid stuff" for a bit.

ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/6/2009 11:52 PM (GMT -6)   
Quincy, I'm hoping your doc's logic works for me too as I've been prescribed Asacol (800mg I think?) x 4 a day as well as continuing with the Cortifoam.
 
We reviewed my condition at length as well as went over the lovely rolleyes   pictures of my inflamed butt again. I thought it was termed mild/moderate previously but after reviewing my report with him it was listed as moderate so maybe it was a bit worse than I had in my head. I decided against asking for a copy of my report because he was so willing to review the report with me. (3 biopsies by the way...all good) I didn't want to push my luck!
 
He discussed how UP is limited to such a small area yet can prove to be very stubborn to treat with so many patients. (I think I'm one) All stuff you guys know!
 
As far as my stomach goes, we talked about that as well. I am going for my physical on Tuesday so he ordered up a Celiac Screen for me while I'm getting all my bloodwork completed. Once we get the results from that and depending on the outcome of the tests we may visit again. The other thing in our discussion is that I quite likely am suffering from IBS as well. I didn't end up getting into the anxiety end of things too much once he mentioned the IBS.
 
Overall, was really happy with the appointment. The fact that I had a list of questions and he waited to hear me out on everything, then asked if I had anything else...seems to be so rare these days.
 
Only disappointment for me? I discussed the antispasmodics a bit, then it got lost in our conversations and I never went back to them. The other thing was I didn't have a pen to write anything down that we were discussing. (I guess I could have asked for one)
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 1/7/2009 1:59 AM (GMT -6)   
Hi..Definitely sounds like a great appointment and that he'll have you set up for other tests and open for future appointments depending on the outcome.

The Asacol is 400mg...so does that mean you take 2 of them 4 times a day? You might eventually not remember every 6 hours...you "could" take them twice a day if you tend to forget. I couldn't do 3 or 4 times a day, so twice a day worked perfectly for me.

Yeah, IBS can play a part in how we feel. Symptoms can be confusing. Adds to the stress.

It's awesome AM is so open with your results, and discussed them with you. That's good to hear as well as him waiting for your questions to answer. You're getting good at this process..!!

Regarding the antispasmodics...eventually you'll ask him if you need to.
Yeah, I can just kick myself when I get side-tracked. But, some things can always wait.

Thanks for giving me the update. Seems you're in good hands..that's good for me to know.

Have a feeling good day.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/7/2009 10:07 AM (GMT -6)   
Keep in mind even if the celiac test comes back negative, many people have subclinical gluten sensitivity even though they are negative for celiac disease. If you think IBS is an issue, I'd definitely try a few weeks with no gluten and no dairy. You may be amazed at how much better you'll feel.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/7/2009 1:30 PM (GMT -6)   

Princesa, thanks for the heads up on the test coming back negative. I will keep that in mind as I go forward. As per doc's instructions I'm to continue to eat all the foods that may be disagreeing with me before I do the bloodwork. Possibly 6-8 more days before my diet may change drastically!! Yiikes.

As far as the Antispasmodics go, has anyone tried the non prescriptive stuff? Peppermint Oil and the like. I'd like to try something but can't make it back to the doc for a bit so thought maybe I could try one of these.

Quincy, he has prescribed me 800mg pills x 4 a day. They look like they could choke a horse! :-)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/7/2009 2:20 PM (GMT -6)   
I never had any luck with peppermint oil, but everyone's different.

I used to have a mental block against taking pills. Even the smallest ones would cause me to choke and panic. Needless to say, I'm over that. Now I can take large pills two at a time. LOL
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/7/2009 3:00 PM (GMT -6)   
I am one of the ones who "tested" that i had no allergy to gluten. But tried the diet anyways and improved almost immediately. Guess that means that I am not allergic but intolerant? Either way... gluten free lessened my syptoms by half. Cfromutah's spinach/sunflower diet is takin me the rest of the way.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 8:06 PM (GMT -6)
There are a total of 3,004,462 posts in 329,148 threads.
View Active Threads


Who's Online
This forum has 161739 registered members. Please welcome our newest member, pinky;spoorback.
248 Guest(s), 13 Registered Member(s) are currently online.  Details
OzLyme, logoslidat, Admin, wednesday77, Girlie, 18yearsandcounting, 61Impala, Lightlife, FamilyGuy, John-Can, CatskillsMelanie, three 5's and a jack, Buddy Blank