Just want to complain

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AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 1/7/2009 11:35 AM (GMT -6)   
I was hospitalized back in August - the trauma of losing our baby halfway through pregnancy caused me to develop a lung infection and a weird vocal chord condition. I was in the middle of a flare needless to say. When they gave me the choice of a private or shared room I of course chose private. Once admitted they gave me meds that caused horrible diarrhea and they then had to give me potassium IV's. My doctor said the insurance company would not buy that and he can't justify a private room. Anyone else have this experience? I can't even imagine if they would have put me in a room with someone else. I'll have to pay the difference and I do not regret my decision. It just seems wrong for the insurance company to not find that justifiable.
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Lialda, Lexapro (anxiety), Synthroid, Symbalta, Sustenex, Iron, vitamins, Fish Oil
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 1/7/2009 2:24 PM (GMT -6)   

Your poor thing.  As if you didn't have it hard enough, then along comes the insurance companies to add to your troubles.  I'm so sorry about your miscarriage.  I've had a couple but they were much earlier than yours.  I can't imagine what that's like, and I can't believe that your insurance people don't understand why you would need privacy.  The medical community can be very insensitive about these situations.  I was put in a room once with a 90-year old woman who was doing her colonoscopy prep for the next day.  She was sitting in a mobile toilet just on the other side of the curtain, and I'm sure she was 200% more mortified than I was.  I absolutely insisted on being moved for my sake as well as hers.

I don't really have any advice to give, because I don't know what your legal rights are with the payment.  I just wanted to sympathize with you and let you know you're not alone.  I hope things improve soon.  :-)



Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Spinach/sunflower & Low-residue diet.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Near total remission
 
 
 
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/8/2009 9:26 AM (GMT -6)   
I am so sorry to hear of your struggles. Insurance companies have no business making decisions regarding what is best for our mental wellbeing. I work in the mental health field and it makes me just so angry that they try telling us what is acceptable care and what is not.

I am also so sorry you lost your baby. Have you seen a licensed professional to help with the trauma? We had a high risk and very scary pregnancy, so I can relate to the fears you must have had, but I just don't know how you've coped with your loss. I am just so so so very sorry. My heart goes out to you and your family.

I know there may not be the right thing to say or do, but please know that I would be more than happy to talk with you any time.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 1/8/2009 9:49 AM (GMT -6)   
Thanks Robin & Katie! Robin - I've actually gone through infertility treatment for three years now so unfortunately I have become accustomed to phsychological trauma with this sort of thing. I had an ectopic in 2007 and had to have surgery to remove it - it never gets easier. But I have faith and things will eventually work out. I don't think everyone appreciates how much of a blessing children are. I hope your high risk pregnancy turned out well in the end. Thanks again guys!
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Lialda, Lexapro (anxiety), Synthroid, Symbalta, Sustenex, Iron, vitamins, Fish Oil
 


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/8/2009 11:30 AM (GMT -6)   
I am sorry to hear about your loss, insurance woes, as well as your struggles to conceive. Any one of them by themselves is frustrating, but put together justifiable to make you want to scream. I don't have much good advice other than hang in there. I am personally glad to have found this site recently and I feel better already - there seem to be a lot of people going through a lot of the similar situations and it helps to know you're not alone.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
 
1600 mg Asacol a day
Ferrex
Pre-Natal Vitamins
Lovenox
On and off Prednisone, 40 mg then taper
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/8/2009 12:18 PM (GMT -6)   
Sorry to hear about your struggles.
In the 1980's when I was in the hospital for just a couple days for anemia, the doctor arranged for me to get a room with a bathroom, since most hospital rooms did not have their own! (They have since torn that hospital down and built a new one). So I got an unused recovery room, with space for about 10 people, all to myself, but it had a bathroom. Ah, now I remember I told the doctor I would leave if I didn't have my own bathroom...

You could appeal it, but I probably would not bother and just go ahead and pay it. That's what money is for, to make life easier, in my view.

Fortunately most hospitals are now moving toward private rooms, for infection control reasons.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 1/8/2009 12:26 PM (GMT -6)   
Yeah in fact that very hospital is working on a new patient tower with all private rooms. I was in the respiratory wing so most who were in there were elderly and coughing. Had I just taken the semi-private room my doc would have transferred me to a private room b/c I am on Remicade. That ended up being why they sent me home before they completely figured out what was wrong with me - they didn't want me to get sick from germs in the hospital. That hospital is old and yucky - I had to be put there b/c my primary doc is in that one. The other times I've been in all-private hospitals. I'll just get a roommate next time and let them request another room!!!! :)

I already paid it - I just figured a note from my doctor would take care of that. I'm not extremely mad any more, just disappointed I guess that the insurance company has no idea what a day in our lives entails.
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Lialda, Lexapro (anxiety), Synthroid, Symbalta, Sustenex, Iron, vitamins, Fish Oil
 

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