Newly Diagnosed

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Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 1/7/2009 2:00 PM (GMT -6)   
I am so glad I found these message boards.   The last couple of months have been nothing but one thing after the other. 
 
It started in september with mild symptoms that every doctor I went to related to diverticulitis or endometriosis.  Well, New Years Day brought a change of thought.  I was so sick for two days.  Went to dr who had no idea what was going on.  He sent me for blood work and CT scan.  CT scan shows severe inflammation of the colon which is consistent with "ulcerative Collitis".  At least that is what CT reports says. 
 
I have been doing some research on UC on the internet and it all sounds so scary.  I have been referred to a GI but can't get into them until the 21st. 
 
Does anyone have any advice for someone newly diagnosed and waiting for appointments with specialist?  I have already missed so much work.  Is there anything I can do between now want then.  I sure don't want to miss 2 more weeks of work. 
 
Please help!!

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/7/2009 2:18 PM (GMT -6)   
Eliminate gluten and dairy and restrict sugar intake. Avoid beans, nuts, seeds and raw fruits and veggies. Cook veggies well. Puree and make soups. Supplement with omega3 to reduce inflammation. Supplement with l-glutamine to get diarrhea under control. Use Immodium sparingly as necessary if you need to be away from restroom facilities. Start a high quality probiotic to rebalance gut ecology.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 1/7/2009 2:20 PM (GMT -6)   
Hi Risan1808,
 
A visit to your specialist should confirm exactly what's causing the inflammation. I would think he will do a colonoscopy to confirm it, but I don't know for sure.
 
In the mean time, all I can suggest is to try eating things "easy on the gut" for now to make things easier for the time being. (fish, rice, mashed potatoes, oatmeal, yogurt etc.) Maybe stay away from seeds, nuts, spicy and fatty foods for a bit.
 
Whatever you do, relax. There are many people on here who are great to talk to and you're not alone. Stress won't help anything. You're doing the right thing. I understand about not wanting to miss work either but you have to take care of yourself too. Popping the odd immodium to get through the day won't kill you.
 
Hang in there. :-)
 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 1/7/2009 7:07 PM (GMT -6)   
Risan1808

I agree with both pushingfoward and princesa in regards to the types of food you should intake. The most important thing you have to do is try and see a GI to speed the process up. I had the same issue of trying to get in to a GI (i was told i would have to wait weeks). I continuted to call the GI's secretary until I finally got her to fill me in to a slot the next day. Be persistent and get in there, the sooner you see one, the sooner you can figure out what the issue is.

Whatever the diagnosis is, good luck!!

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/7/2009 7:31 PM (GMT -6)   
Yep, stay away from things that can worsen your symptoms and get a colonoscopy with biopsies...its best to have the scope done when you are flarring.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

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