Advice Needed - HELP!

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Colitis Confusion
New Member

Date Joined Jan 2009
Total Posts : 17
   Posted 1/7/2009 2:27 PM (GMT -6)   
How long do you wait for a flare to go away? When does the prednisone start working? Will it ever start working this time? Should it be working by now? This is my first really bad flare up since diagnosis and just don't know what my expectations are. Mentally I am a wreck! Steroids worked just great the only other time I had to go back on them. Cleared me up in a day at 20 mg.

I've been dealing with this flare since the week before Christmas and things seem to just be getting worse instead of better. I've been on 40 mg predisone for 8 days now and I was on 20 mg prednisone the 10 days before that. I would think that signs would be decreasing, but it seems the blood, mucus, and bowel movements are only seeming to increase. It seems the blood just drips out of me. I am also on 12 asacol and 100 mg of imuran. Is this normal or should I have noticed some sort of improvement by now?

Things got slightly better on Monday and Tuesday with just 2 bloody movements for the day and then I was up from 2 am to 7 am this morning about 10 times. I am charting and watching everything I eat. I have not eaten anything that I would consider gut irritating the past two weeks. In fact I've lost 17 pounds partly because of it. I am using a combo of the specific carb diet and spinach diet, only fluid I am drinking is water (250 oz / day).

To top it off I found out a high school friend died of colon cancer yesterday at the age of 34. I just bawled for over an hour. He was 3 years older than me in school and I didn't know him well, but I think just having colon cancer as an increase with ulcerative colitis sent me over the edge.
Asacol - 12 per day
Prednisone - could be back up to 40 mg : (
Imuran - 100 mg
Omega 3 - 1 per day

Veteran Member

Date Joined Jun 2008
Total Posts : 742
   Posted 1/7/2009 2:45 PM (GMT -6)   

I've not tried any long course of pred in the past, but I can definitely relate to your unresponsiveness to meds.  Its unbelievably frustrating and very scary.  Based on my short (but horrible) experience with this disease, may I suggest that you go full-force with the spinach/sunflower diet?  Since you're already doing it anyway, I think you should do it exactly as Cfromutah suggests (he's the one who thought up this diet) and see what happens.  When I didn't respond to any meds or diets (including the Specific Carbohydrate Diet), I figured I had nothing to lose and gave the spinach/sunflower diet a shot.  For 2 weeks I felt worse, the third week wasn't quite so bad, and after that I started seeing constant improvement with my symptoms.  I'm now off ALL meds.  Even I can't believe it.

I should also mention that in addition to the spinach diet, I also did a low-residue diet initially since my colon was so raw.  Also, only eat cooked spinach - fresh is too rough.

I hope that helps, and I hope you see some improvement soon... :-)

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Spinach/sunflower & Low-residue diet.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Near total remission

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