A good trick to change your life when you have colitis(please read!!!)

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bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/7/2009 4:37 PM (GMT -6)   
Hi ALL,

Before i start, i would like to warn you i only use english as a second language, do not worry about the grammar mistakes...at least i try.

I have had a terrible nightmare with my colitis and would love to share my story, this will also give you an idea on how to fight this disease in a simple "way".

I(i am a male by the way) had colitis for 18 months, my doctor always told me it was IBS and nothing else so i believed him. The pain was mad, in the last 6 weeks prior getting hospitalised i was loosing a tremendous amount of blood, the doctor sat me down and then told me" you have to be ready for the worse case cenario"(possible bowel cancer or others).
I was scared, just had a baby(she was only 3 weeks) and was thinking about all sorts of things(dying at 29 years old due to a bowel cancer....).
Anyway , i did not have the time to go to the hospital and passed out at my stearing wheel before i started to be anaemic(i was loosing far too much blood).
I managed to wake up and drive for another 1 minute and then collapsed again in my living room, i woke up in the hospital where i had all sorts of test, injected cortico steroids, 8 tablets per day of prednisolone+ 8 tablets of pentasa for 6 weeks, i then stopped prednisolone because i could not sleep anymore and started a depression....everything went against me from start to finish.
What did i learn from it? please follow thi well as it will help you till the rest of your life.One mornig i woke up and decided to change my life.

1) You need determination, this is the most important thing in your life, you have to be determinated to fight this disease, this also means put all your personal(family and friends) problems and work in second position, your health is number 1.

2)you have to change you eating habits.
First,stop eating junk food, one little thing interresting for you to know, it took millions of years for man to be created( many people think it took a few thousand of years...i know) and took millions of years for the gut bacteries to live in symbiosis(cohexiste) in our intestine, how can your body manage to fight all the newly created chemicals we find in fast food,sweet, and more. It is impossible, this is why in the western countries we have this kind of diseases, because we eat junk food all the time.think!stop crisps,burgers,pizzas!!!

3)stop being lazy and do some exercise. I now run sunday and wednesday only for 10 minutes, it is enough for my body to release a chemical useful for the well being of my general health. This is "a must " when you have such disease.

4)you will need to replace the vitamines your body is not getting.
With expert advices i have learned that my health could have a good lifting by taking a few vitamins, just before i give you the name of those vitamines i would like to let you know what was wrong with me first.

-a few years before my disease(1st stages of having bad bowels), i started to get acne on my scalp, shoulders and a few on the belly, then my skin was extremely greasy, i then started to have strange pain just before going to the toilets, my sinuses became blocked more often to a point where i had daily allergies (perenial allergies),all of this till a few months ago, i am all sorted now.
MY DOCTOR GAVE ME SOME ANTIBIOTICS! yes, i should not have taken them because when you have colitis you have to watch antibiotics, your gut bacteries will die with the use of some antibiotics, if i have to take any, my doctor will then give me a type of antibiotic that do not destroy my guts bacteries(make sure you ask your doctor for such antibiotics).
Anyway, i took this:
-zinc tablets,one per day(just go to the chemist and ask for zink tablets),this will boost your immune system, this is why i was getting so many spots all over the place.
-vitamine b complex, this is extremely important to feel better, just ask the chemist for this too, those vitamine(all the b's) are so important, just do a research on the net.
-probiotics bacteries in tablets, twice per day, this is a "must" have, you skin will look also better and your general health will be pretty good with a long treatment.
-If you wish to really give it a try at 100% ,buy some aloe vera tablets or juice and add some to your drinks wih recommended amount everyday, 3 specialist told me to take this.

I will never stop taking those vitamines every day.i FEEL SO GOOD NOW, I HAVE EVEN STOPPED MY PENTASA tablets.


Now another important thing(this could have been the start of the colitis), this is what could change your life and your general health, i have left my job, i had too much stress(shame it was a very well paid job), i instead created a website where i only sell services(and not normal product because it is too stressful to pack ,not have the product and more...by service i mean helping other to achieve something...i had no knowledge on internet by the way...).
I have also moved away from my country when the site was ready and i am now living on a very very cheap island( i will not give the name of this island because otherwise people will come by thousands and will destroy my dream!)

Run your own website with your family beside you is fantastic, all you need is make enough to live your dream,away from all the stress of the current life, i keep taking my vitamines,run at night and stops all medecines. I feel great and love it!!!!!!!!

Oh By the way, i have stopped eating red meat!!!!it has helped so much, do not eat this type of meat , it is very bad.

Bye Bye all and i hope i gave you a few ideas for your future, stop stressing, move away from everyone,restart anew life somewhere else because this could also be 50 % of your general health problems.

One thing very important in life, do not be scared to stop what you are doing, human are now in a state of trying to always achieve better and earn more in life, this is not always the right way,you need sometime to sit down and think, is money so important if i die of a cancer?hell no!
Your health is so important to you and your familly, also think that with this economical crisis people will stress even more at work, this will cause you even more troubles.
Your body is a vehicle created to transport your soul, make sure you apply the right maintenance to it otherwise it will brake down and noone will pick you up! because this is how the world is unfortunatly.

good luck all,

be determinated to fight the colitis!!!!!!!!!!!!!!


bambam

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/7/2009 4:55 PM (GMT -6)   
I am pleased to see that the changes you have made have improved your health. However, ulcerative colitis is a chronic life long disease characterized by periods of flares and periods of remission. I have me folks with UC who have had 25 years of remission and they fall into a huge flare. I had 10 good years of remission only to have flared for no apparent reason. You have made healthy choices that may have helped you gain remission and certainly improved your overall health but to think that's going to be the last of your UC is probably not accurate.

Here's to wishing you excellent and UC-free health for 2009!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/7/2009 5:07 PM (GMT -6)   
Hi Suebear,


I have been speaking to many expert in the field from india,france and uk, apparently if you do stop stressing and have a very diet + sport you will never get anymore symptoms(one of them had the disease in the past too).
I know many people keep getting remissions, i know they are eating well but they are not eliminating the primary factor of this disease that is stress.
I have learned not to stress anymore, if i do have some i have learn that running or even going and watch the sea on my own take all my stress out. I am free of medecin and if i carryon following what those experts told me, i can be free for life(if i manage my stress level of course).
I have knowned many people going to the pub/mcdonalds /and kebab shops while having this disease, well iit is sad to see many of them do not take care of their overall health.

Hope this will help a few people.

"Here's to wishing you excellent and UC-free health for 2009!"

thank you Sue!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16730
   Posted 1/7/2009 5:15 PM (GMT -6)   

Thank you for the positive advice.

I live a pretty stress free life and I still can't seem to achieve remission. I have tried all kinds of vitamins and supplements, I rarely eat red meat (now I am anemic) or unhealthy things. I tried the SCD diet with no luck. I have tried working out regularly...

I feel like I have exhausted all of the natural options. I was actually getting worse and worse no matter how "Healthy" my lifestyle was. I am thankful that the medication I have been taking is helping me heal but I don't want to take pills forever. I am hopeful that some day I can manage this disease without so many meds but right now, I know I need treatment. I should have probably tried a lot more meds for my condition but I choose to try to stay free of overmedicating and deal with the physical repercussions. Sometimes it is not pretty but lately I have been doing ok. I just wish I had more energy cry

Goodluck staying healthy and keep living your dream. scool


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/7/2009 5:55 PM (GMT -6)   
Hi sicklygirl,

Bless you,.......

I know how it feels, i was having the same problems when i was living in UK for a few years.
I do not know if you have a family/husband/kids but you should try to avoid places full of people that can make you stress.
An example of things:
You cannot find a place to park you car.....
You have to queue for ages at the bank ....
You are late to go to work, will your boss see you when you pass the gate?
Your family restart with stupid personal accusations or other things that are non sense
Watching news and always see death on the screen(look at gaza)
be scarred to work at night in the streets because you know some people got mugged or even killed
not having enough money at the end of the month to pay a bill

All those things seem to be "normal" for us because we have been living in this system for a long time, but when you look at it, this is a new form of stress.
We don't go to village butchers or backery or fruit shops anymore, they do not exist, we have to go to big supermarkets, big towns,meet people we do not want to see.......horrible.
Try to watch a video of a man called david Icke, this guy is great and help people to understand the world a different way, for him, the body caries the soul(as i say above), the brain is like a computer that only recodes preprogrammed frequencies.
For example(i am telling you, this guy really changed the way i look at my life and world), you eyes see a red car, why do your eyes see the car?why do they also see the color? because your eyes can only see a certain spectrum of light, the car my not be a car for another species that have a brain working out/decoding images differently the same information, the snake for example has a thermal vision we do not have, a fly, see many pictures in one image, a cow see the world without colors.
All of this means that what we see is only an hologramme of what your own brain can work out, what we have problem to see is the beautiful world hidden behind what we see, this can be felt and make you happy.Serious look for this guy, i love science but this guys is way above all.

Anyway....what i was trying to say was, the system in which we live destroy our lifes, we are not meant to work so hard and stress so much.
This is why you should try to do your maximum to move away from all of this, i have left my friends behind,mum and dad are still far from me but this is their choice, they could have followed me.
I live a dream and stopped being destroyed by this terrible economical system in which we live in, i work when i want, i can buy some cheap fish/fruits and vegetables from village shops, life does not cost me much and my all family is like in heaven.
My daughter will finaly grow up in a perfect world without crime.

Hope you manage to find a solution,

Bambam

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/7/2009 5:58 PM (GMT -6)   
I agree with all of your pointers. I cleaned up my diet, use supplements targeted to restore healthy digestion and heal the gut, work out regularly and got out of a stressful job and a bad marriage. All of these things have helped enormously.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/7/2009 6:31 PM (GMT -6)   
I too altered my diet, exercise regularly, take only naturals for my IBD but I'm still not 100% remission as I have some complications with my disease and your advice is good (since I pretty much have already being doing what you suggest) but there are still no guarantees, this disease is very individulaistic and many things factor into it with each patient, some are less severe and may find full remission with your advice even for a long period of time but even though following good healthy advice is important for the disease and infact over all general health, there are no guarantees of getting completely healed and staying that way for all sufferers.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 1/7/2009 10:17 PM (GMT -6)   
bambinou said...

Bye Bye all and i hope i gave you a few ideas for your future, stop stressing, move away from everyone,restart anew life somewhere else because this could also be 50 % of your general health problems.
You make it sound so easy!
I want to quit my job and find a cheap island to run away to...  =)
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/7/2009 10:27 PM (GMT -6)   
Sara14 said...
bambinou said...

Bye Bye all and i hope i gave you a few ideas for your future, stop stressing, move away from everyone,restart anew life somewhere else because this could also be 50 % of your general health problems.
You make it sound so easy!
I want to quit my job and find a cheap island to run away to...  =)

Let me know when we leave.  cool
 
Living stress-free is almost unimaginable.
Male, 30
Dx: moderate-severe UC 12/08, Lifelong GI issues including an intesusception at age 4
Current meds: Prednisone (20mg), Lialda, Prevacid 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/7/2009 11:06 PM (GMT -6)   
I applaud your enthusiasm and your obvious intellect as I share many of your thought patterns and ideas. I too have stumbled upon a form of adaptation of this disease to achieve near 100% consistent remission without meds. I wish you great success in your endeavors and may you live a long, fulfilled and healthy life. I bet that island is beautiful.

However there are two things worth noting: 1. UC is a highly individualized disease and takes much introspective research into one's own inner self to figure it out. What works for one may indeed not work for all. It seems as if you have found yours, good job and much respect given.

2. Except for surgery, UC is incurable right now. Flares are sure to happen at some time or another. Don't let your guard down on this disease and lapse into a careless way of thinking you have been "cured" and exempt from future flares. The genetic predisposition will always be there, however dormant it may seem. What I'm trying to say is just be careful.

This is a great success story our friend has just shared...
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/8/2009 2:30 AM (GMT -6)   
I think we all have changed our lives due to Colitis by finding out what works and does not work for us.

There are some common elements. Eliminating trigger foods (for me that's high-fructose corn syrup and foods high in fructose, sorbitol...). Taking probiotics and any vitamins that we are lacking. Getting exercise. Reducing stress. Not taking antibiotics. Also, I'm big on eating anti-inflammatory foods (if they aren't trigger foods that is) and avoiding pro-inflammatory foods. After all Colitis is inflammation of the colon.

However, there is no guarantee that we won't get another flareup or that our current flareup won't go away even if we do all these things. I think we feel like there is some guarantee. We feel perfectly fine when we don't have a flareup, and we feel that what we did to get rid of the flareup really got rid of the flareup. We have proof. Our Colitis flareup went away. Our bodies gradually recover. And then all of a sudden, out of the blue, it happens again. Another flareup. Of course, we can continue to do everything right, and perhaps our actions do reduce our chances of getting another flareup. But it is no guarantee.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Vicky26
New Member


Date Joined Dec 2008
Total Posts : 16
   Posted 1/8/2009 6:27 AM (GMT -6)   
I think that is great advice that you have given and everyone can take something from it.
 


bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/8/2009 8:35 AM (GMT -6)   
Thank you to all of your comments,
We are here to help each others and it is the right thing to give out a few tips.


Byebye,

Ben

Post Edited (bambinou) : 1/8/2009 8:47:05 AM (GMT-7)


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 1/8/2009 12:32 PM (GMT -6)   
Bambinou, there hasnt been any clinical studies with b12 and zinc and remission, so Im assuming what helped you was the probiotics and aloe vera.

As always I am very interested in which bacterial strains you were taking and how many billion per day.

Stress and junk food with high carbs and sugar also does play a very major role in UC although it does not cause it, so Im glad to hear it worked out well for you.

I hop you didnt move to Barbados with lots of sugar canes and rum. That will make your colitis come back maybe ;-)

good luck
Off of 5-ASA (6 years) and 1-day minor flareup since probiotics started.

Probiotics 18 strains (vsl#3 + N.F. Ultimate multi probiotic + Trophic Acidophilus Plus + Nature's Way P. Reuteri + Florastore S. Boulardii) - 500 billion per day. No sugar, Oatmeal in the morning.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium

Post Edited (crazytrain411) : 1/8/2009 10:37:23 AM (GMT-7)


bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/9/2009 6:26 AM (GMT -6)   
Hi CrazyStrain,

I took the Zinc because all my immune was down and i was getting many spots all over my body, this was due to the big amount of steroids i have been injected with. I only started the probiotics 1 month ago but was already feeling better 2 months prior this, what has really changed my body was the day i have left my job, stopped having a manager behind me all the time, and also stopped stressing by working as fast as my boss wanted.
This has been the major change in my overall health. I am now working on my pc everyday, cool,relax, noone to disturb me, i always take my little 6 months old baby on my laps while working,it's great.
The probiotic actually have created a few problems for my guts at the start (the 1st week) but then everything went well and i also digest better.
i use this:
Acidophilus mega potency :
each tablets has:
acidophilus lactobacillus 5mg
(50 millions organism)

and

acidophilus bifidus 17mg
(50 millions organism)

I take 2 tablets per day + i have added probiotics in my b complex tablets

and for the bcomplex, no this is not to cure the colitis but people with UC has defiency in b12,zinc also and folic acids,this is why you might get all sorts of problem while having UC because your body will not keep those vitamins.It is extremely important to have b complex(not high dosage) to compensate with the loss due to UC, a specialist told me all of this.

ByeBye

Shaz032
Veteran Member


Date Joined Feb 2003
Total Posts : 1251
   Posted 1/9/2009 8:28 AM (GMT -6)   
I was diagnosed with UC at age 5 (although my parents think I'd had it since birth since I occasionally had symptoms). During my childhood I had no stress, my parents were, and continue to be in a very loving relationship, my younger brothers were bought up on the same healthy foods I was (junk food was rarely allowed), our environment was the same between all of us, I was given extra vitamins during my illness, I'll admit I was unable to exercise due to fatigue due to my illness yet my parents and I did everything within our power to fight it however my UC continued to rage until I had ileostomy at 10 years of age. How do you account for that?

Never EVER say your UC is cured. It's just in remission. It can come back when you least expect it unfortunately :(
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


bambinou
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/10/2009 10:26 AM (GMT -6)   
Hi Shaz,

There is always an explication for every problems on earth, i do not believe in miracle and do not believe in badluck, when someone has something it is because he either has the problem in his genes(his body react badly to different food) or an external factor has influenced it.
Your parents might have given you a milk your guts did not like.food allergy, or some apparently pretty vegetables with pleinty of insecticides on it.
My dad spoke to a expert in natural food, the guys told him the only way to take the inseticides away from vegetables is to steam them and then make sure you get rid of the water as it is very bad for your health. He also said many people think they eat well because they buy "veg" but in fact are destroying their health even more. You must have free pesticide food(organic food).

Please read this:
http://www.associatedcontent.com/article/598081/treating_ulcerative_colitis_with_organic.html

Check also for food allergy and ulcerative collitis in young childrens, it is now more and more commun.

I cannot eat milk anymore, and i cannto eat red meat either, now when you are little, you parents might give you something they do like but might not know the effect of this on your own young body.
Found allergies are terrible, you get ulcerative colitis(any age), you can also have a terrible Anaphylactic shock with just 1 nut!!!imagine how powerfull food allergies are.
For me, i had the stress as the primary factor but, i also had food allergies, because i was older than 5 years old, i could try to work out what was causing my pains and what wasn't.
Please do some research on young children food allergies, now later on in life, if those kids to suffer from stress on the top of their UC i can assure you many flare ups will follow.

Now in response of this:

"I was given extra vitamins during my illness, I'll admit I was unable to exercise due to fatigue due to my illness yet my parents and I did everything within our power to fight it however my UC continued to rage until I had ileostomy at 10 years of age. How do you account for that?"

No i do not agree when you say you have tryed everything because that most have been at least 15 to 20 years ago minimum(i do not relaly know you age but believe you are between 25 and 40), science was not as good as now, Vitamins supplements also were not as good, probiotic did not really hit the market at that time and pesticides problems were not something people were speaking a lot about compare to now. Nowadays you have massive research on pesticides, research on new probiotic formulaes, better vitamins making processes and regulations.
Believe me, your own body has taken something it did not like, and this has caused you the problem, not the stress as you were too young.
Both stress and food play a big role in this disease, some people will react more to food allergies and some others pesticides, and the rest will be stress.
I have met a man that got colitis right after his wife's death, he had so much stress in his mind at the time.


Bye

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/10/2009 12:24 PM (GMT -6)   
Yah. Nowadays our food is filled with antibiotics and HFCS too. I'm not predisposed to Colitis. I shouldn't have it.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

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