Hi there...your situations sounds just awful! I have not experienced the dark urine, and I cannot believe you are not getting answers! I would think that because you have such an abnormal situation your doctors would be trying to find out what is wrong.
Why are you taking the 6MP? I am not familiar with these medications either. Are they more powerful that the 5asa? I'm taking a decent dosage of Asacol, Prednisone and Remicade infusions. If the 6MPs are so scary for organ damage, are there other options for you?
I understand that you have to just push your symptoms to the side and keep on truckin' with your baby around. I have a 12 month old and though I'm in agony he only sees a smile and still gets my full attention. I've not tried the below the waste medications...my doctor explained that it's just a way for the medication to get into the body more rapidly...and since I'm not reacting to my other medications he feels it may not work long term. So...I'm making due with my flare until my next infusion and then I'll have a week or two of improvements before slowly creeping back into where I am today...yucky. However, we're meeting with a surgeon later this month, as we've opted for the colectomy. : )
Anyway, sorry I'm not much help. I've had this disease for almost two years and we've tried many different levels of medications, and different kinds of these medications...I had a horrible reaction to a different steriod and it just seems like I improve a little with each change but then I become extremely ill over and over again. I wouldn't know what to think if I started having issues with my urine! I'm a little snotty right now b/c I'm dealing with a flare in addition to pms. : ) I just love being a woman!!!
I do wish you luck...I almost feel like calling my GI nurse and asking her about
your urine issues. She's extremely knowledgeable and has given us a lot of advice regarding my dad his liver issues. I just think the world of my providers, as they have become my primary and do so much for me and my family. : )
Have a nice evening!
: ) Robin
Dx-May 2007 Asacol-2400mg bid Prednisone-20mg Remicade-4 Tx
Paxil-40mg Prilosec-bid Multivitamin Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet! I appreciate the small things in life...the little joys that occur every second of every day. Though we struggle and have crazy complications, nothing can over ride our love and happiness.