First of all, I want to say sorry you got diagnosed. True, this disease SUCKS, but it really isn't that much of a life-changer once you get it under control. Well then again, I suppose that depends on the person and the severity of your UC. I have pretty moderate UC, so I'll answer your questions according to my experiences. FYI, I was diagnosed when I was 15. So I feel your pain.
1) How often to flares usually last?
That's hard to say...again it really depends on YOU and your UC. For me, I probably only get a flare up every other year or so.
2) When you are not flairing, are your stools solid and do you feel normal (not feeling the urge to go every 2 minutes)?
Yes. You feel perfectly normal. Your stools are solid, although you probably WILL excrete more than normal. Meaning you'll probably have one large load once a day or so, and then you'll be fine. But it's not like, painful diarrhea like it is now. it'll be normal.
3) What are the best meds to take (currently on Asacol which doesnt seem the most effective) other then steroids?
As for BEST, again, depends on the severity of your UC. Currently I'm taking Lialda which is the same as Asacol but with a time release so you only have to take two once a day instead of three, three times a day. I also take mercacaptour, which is an immuno-suppressant. Your doctor will probably wane you off of steroids as your flare up calms down. They only give you those if you start bleeding.
4) I'm young, in my mid 20's, can I have a few drinks on the weekend and not worry about
Well, in MY experiences, I've gotten a little trashed and been okay. Getting drunk to the point where you THROW UP will probably have a bad affect on your colon, so try to avoid that. Just don't have a drink every night, and you'll be okay to party every now and then.
5) Are there any herbal type meds that people are on that seem effective?
I've heard about aloe vera juice. It seriously tastes like swamp monster piss, but if you can stomach it it's supposed to REALLY be a miracle medicine for this disease.
6) Is there every going to be a cure for this disease?
That is do not know. They don't know the cause of UC, though they have made some progress in learning about it.
In the long run, don't let it get to you so much. Just take your meds, take it slow for a while until you learn how your UC affects YOU personally. It's not so bad. It won't kill you and you won't always be a bleeding, vomiting diarrhea-bomb. I know how I felt when I got diagnosed. it's not fun knowing that your body is just naturally ****ed up. Just try not to stress out about it (FYI, stressing out is rumored to contribute to flare-ups) and you'll live a perfectly normal life. Good luck!
Steph, I'm sorry I had to edit your post.
1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use, including medical marijuana use, threats of suicide or self-injury, or threatened or intended physical harm). Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.
Post Edited By Moderator (Judilyn) : 1/7/2009 8:23:05 PM (GMT-7)