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Kdragon09
Regular Member


Date Joined Jul 2007
Total Posts : 163
   Posted 1/8/2009 9:53 AM (GMT -6)   
Before I start, let me say that I'm really only interested in talking to people who think antibiotics caused their UC.
 
I know everyone has their suspicions about what triggered their UC. Mine is antibiotics. I was on 2 rounds of antibiotics and my doctor thought it would be a good idea to throw some hemmoroid cream into the mix as well. Less than a month later, I was flaring for the first time.
 
I'm just curious to know if the cause determines the "type" of UC you have. For example, while I have extensive colitis, I'm able to manage it quite well by Lialda alone. I also watch what I eat, which means little sugar, no meat except fish, and limited dairy. I've been in remission for 15 months although I have the occasional flare up if I don't take my medicine properly. When I was flaring, it didn't matter what I ate, I was just sick sick sick. Lost 20 pounds in a month, had to be hospitalized for dehydration, etc... I never thought I'd ever feel better again especially only with the 5 ASAs.  
 
What works for you if you think antibiotics are the cause? Do you have to take a ton of medication or can you handle it relatively easily?
 

Post Edited (Tryin2Maintain) : 1/8/2009 9:03:30 AM (GMT-7)


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 1/8/2009 11:38 AM (GMT -6)   
Maybe antibiotics and maybe junk food + stress for 2 years.
Off of 5-ASA (6 years) and 1-day minor flareup since probiotics started.

Probiotics 18 strains (vsl#3 + N.F. Ultimate multi probiotic + Trophic Acidophilus Plus + Nature's Way P. Reuteri + Florastore S. Boulardii) - 500 billion per day. No sugar, Oatmeal in the morning.
L-glutamine, elm powder, vit b & folic acid, 5 g vitamin C, vit D, vit E, Calcium+Magnesium


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/8/2009 11:53 AM (GMT -6)   
I think this is a good question. Unlike you, antibiotics didn't cause my UC, but like you I think a major change in my microflora caused my UC. I think the beer I drank all night long one night messed up the ph level in my gut or somehow allowed the bad bacteria to thrive and the good bacteria to die down. I'm not sure but that is my theory. I too have severe colitis and don't find it that hard to manage. Never had pain until Antibiotics to remove a tooth. Oh yeah, I was in a great remission before the antibiotics then they ruined me again. I think if you think you know what caused your UC then that may be a way to attack it with your treatments... 
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/8/2009 11:53 AM (GMT -6)   
I don't think antibiotics caused it.. but I do think it brought about my first flare. Everything I read and understand is that this is kind of a genetic thing. BUt I can say that I was doing fine with NO symptoms till I was put on a strong antibiotic for infected poison ivy by an ER doc. was told to take it with food, no one said a meal. I took it with a piece of bread or some such. nothing much cause I was tryin to loose a couple pounds and was watchin my diet. By the end of the antibitoic, I was complaining to my Pharm about feeling bloated and full all the time like I just couldn't put another bite of food in my mouth. He regonised the signs of me heading towards C-diff. And immediately told me to stop takin the antibiotic, started me on probiotics, and had me see my family doctor. She agreed with him. after a month of probiotics, I was feeling fine and quit takin them. Doc said it was okay I was prob fixed. about two months, maybe three, I started to have D...every couple days, That was in nov 2007, by Feb 2008 I was having it everyday and really having troubles in the morning. Family doc sent me to a GI, who diagnosed me with spastic colon and put me on pamine forte ( spelling ?? ) That was in April. When that didn't work, they scheduled me for a colonoscopy and In Aug 2008, I was diagnosed with ulcerative colitis. Kept getting worse till about first of Dec. They tried all sorts of medicines and such. By Dec, they had me on what I take now, and then I tried gluten free diet. Fixed me about half way in just alittle over a week, maybe two. about 18 days ago, I started the spinach/sunflower diet from here and have been steadily improving ever since ( till today, bad day ) But Am not stressing over just one day.
Anyways... Like I said earlier, Not sure I believe that the antibiotics caused this, But am pretty sure they brought on my first flare.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/8/2009 12:16 PM (GMT -6)   
I am almost positive that antibiotics were the trigger for my first real flare. When I was younger I never took antibiotics until I was 17. I was a farmboy who was raised on natural remedies, whole foods, clean water, and the "rub some dirt on it, it will be fine" mentality. I was never seriously ill, had no allergies, and was an elite athlete.

Took my first round of antibiotics ever for a sore throat in college. 4 months later I had my first bloody stool and dx'd with UC. I'm sure a host of other factors could have been accessories to the flare but I still feel that my balance was thrown off by the antibiotics.

I believe that I have the genetic predisposition for UC, coupled with the inability to self-regulate my gut flora. However, the antibiotics somehow permanently changed my flora and or/pH. My body is reacting to somethin that grew out of control during my firtst stint of antibiotic therapy. I didn't realize it at the time but I believe now that my own personal UC has something to do with a balance of gut flora that has never fully recovered even to this day.

This theory can be even furthered by me taking antibiotics for a neglected molar last summer. It was the first time I had taken antibiotics since I was 17. The next month I had the worst flare in 14 years. Coincidence? Maybe. Maybe not.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/8/2009 12:34 PM (GMT -6)   
UCWarrior what treatments works best for you? I don't know if you have a thread explaining how you live med free b/c I hadn't seen it. There aren't many people living med free with UC. Does you body naturuly regulate itself after a flare? How severe is/was your colitis?

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/8/2009 12:47 PM (GMT -6)   
A course of broad spectrum antibiotics were definitely what triggered my first flare and it was severe. However, I chalk the "cause" up to family predisposition, extremely poor diet, lack of exercise and stress.

What's helped me the most is getting my digestive system back in balance with probiotics and dietary changes along with various supplements for reducing inflammation and promoting healing.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/8/2009 1:02 PM (GMT -6)   
Over the years I have tried all the fancy diets, all the new supplements, and I take what seems to work for me from each of my experiences. I compile them all together and use it as a guideline from which to follow to get into and remain in remission. I make a serious effort to heal completely between each flare, I have about 2 a year now down from 8-10 when I was a noob. I want to get to 1 a year and eventually skip years. No meds.

I don't feel that one particular diet or supplement works of and in itself. It is a combination of what works for the individual pieced together from trial, error, and listening to one's own physiological signs. The body speaks but some choose not to listen or haven't bothered to learn the language.

I have learned to become my own doctor thru research. My body has been my professor and guides me thru right and wrong. I don't feel that many are interested in the dynamics of how or why I stay med-free so I don't actively pimp my regimen. I just give advice on what works for me.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/8/2009 1:31 PM (GMT -6)   
Antibiotics could certainly be a trigger for IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/8/2009 1:40 PM (GMT -6)   
Got2believe- sorry I forgot to answer your questions. I was dx'd with severe left side ulcerative colitis. I don't believe it is severe anymore.

My body does not completely self-regulate after a flare. It usually takes me a few weeks to coax it back to normal. If I stray at all in my regimen it puts me at risk of a repeat flare.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/8/2009 4:43 PM (GMT -6)   
I got my UC from taking Accutane. I suppose that also is a bacteria-killing med.
Mine has been managed well enough -- but I can't say I've ever had remission -- to avoid hospitalizations (except a short one for anemia) or surgery, with use of Asacol, prednisone and Rowasa. But I've been pretty sick sometimes, especially early on when I was still learning how to manage.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/8/2009 5:15 PM (GMT -6)   
I had surgery a few times before I got UC and I wonder if the antibiotics I took are related to my IBD. I do remember when I was younger I had issues with urgency and D here and there and now I wonder if it was the IBD. I have definitely taken more antibiotics than a lot of people but I am not sure if it caused my UC. I have been treating mine with 5 ASAs and I just hope they continue to be helpful. I always ate pretty healthy but I did deal with a lot of stress in my personal life. I took medications like Kefelex, Flagyl, Bromelain and Duricef
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/9/2009 2:08 AM (GMT -6)   
I was on antibiotics for years. My second flareup went immediately into remission after I did fecal transplantation. I got my third flareup after having been on and off antibiotics for a year. So yes, I do think antibiotics is the main reason I have Colitis.

I also found that high-fructose corn syrup has exacerbated my condition. I had stayed away from sorbitol, because it gave me horrible gas. But I kept drinking beverages with high-fructose corn syrup, because all I got was diarrhea. I didn't realize how bad the stuff was. Now I'm paying the price, and I don't seem to be able to avoid eating it. High-fructose corn syrup is being put into practically everything nowadays. I can no longer eat out, not knowing what foods it has been added to. Can you believe even Wheat Thins contains high-fructose corn syrup?
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/9/2009 1:13:47 AM (GMT-7)


jpm
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 1/9/2009 4:03 AM (GMT -6)   

Mine was definitely caused by Antibiotics. UC may be genetic for some, but it's complete bullcrap in my case. It wann't immeadiate. It started to get looser and about 4 months after heavy broad spectrum antibiotics course I got my first clear signs, heavy diarrhea full of blood.

Now I take only azamun. I also do occasionally fecal transfusion if it's bad. I have (had) pancolitis. Now I don't know. I don't have any good remedy.


jpm
New Member


Date Joined Dec 2008
Total Posts : 14
   Posted 1/9/2009 4:09 AM (GMT -6)   
anyway i currently have only 1 bm a day for 10 months a row now. 11 months ago i had to go at least 20 times a day, just blood. i was hospilised and was treated by cyclosporine. now i eat (more) modestly than before, home made youghurt etc. no strict diet but i avoid dairy, wheat, sugar etc.

puddle-duck
Regular Member


Date Joined Dec 2008
Total Posts : 31
   Posted 1/9/2009 6:52 AM (GMT -6)   
My first flare up happened after taking anti biotics. I was doing bird surveys in wetlands in Ohio when I got left sided pain, diarrea, blood and mucus and weight loss. The doc gave me anti biotics which didn't help. I had 2 fairly bad flare ups 2 weeks apart that lasted about 2 weeks each. I was diagnosed with uc the following year. I have been able to control it fairly well with sulfasalazine and now asacol and occasionally prednisone. However, my symptoms have changed over the last ten years. Now I dont experience the pain or weightloss just diarrea and blood. I have had periods of time without meds where Ive felt completly normal. I am currently loosely following a low sugar, low salt, no processed food diet with extra spinach, it appears to be helpi ng.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/9/2009 6:59 AM (GMT -6)   
So do Saltines. I find that I also do better if I avoid all corn in general. Last time I ate corn chips I was stuck on the toilet for what felt like forever. I notice the smaller less known brands sometimes make a cracker without Corn Syrup but they are not easy to find and they are expensive!
subdued said...
I was on antibiotics for years. My second flareup went immediately into remission after I did fecal transplantation. I got my third flareup after having been on and off antibiotics for a year. So yes, I do think antibiotics is the main reason I have Colitis.

I also found that high-fructose corn syrup has exacerbated my condition. I had stayed away from sorbitol, because it gave me horrible gas. But I kept drinking beverages with high-fructose corn syrup, because all I got was diarrhea. I didn't realize how bad the stuff was. Now I'm paying the price, and I don't seem to be able to avoid eating it. High-fructose corn syrup is being put into practically everything nowadays. I can no longer eat out, not knowing what foods it has been added to. Can you believe even Wheat Thins contains high-fructose corn syrup?


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/9/2009 7:27 AM (GMT -6)   
I had three rounds of antibiotics over 2 years for various infections- strep throat; ear infection; etc- that coincided with the period just before my UC relapse after around 10 years of being med and symptom-free and actually thinking I didn't really have IBD for that matter. More recently I had a bad flare that lasted around a year after antibiotics for dental surgery- antibiotics I stopped after 2 days but by then that was too late. That was in spite of taking lots of extra probiotics spaced a few hours apart from the anti. That said, I sometimes wonder, if only I could analyze my micro-flora accurately enough, if there is some antibiotic cocktail which could put me into remission. There are certainly Crohn's and pouchitis patients who are on long term antibiotics, but it would seem to have some big risks.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 

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