Well, I FINALLY got a call back from my doctor. They told me to call the cancer infusion center where I will be going and speak with them. Not a great phone call...
Apparently, with them the Remicade costs $20,000. She said right now they are working with Centocor and my insurance to figure out the most reasonable way to charge it so I don't pay an outrageous amount (I was told by my insurance I'd have to pay 20%... That's $4,000 per infusion out of pocket!!!)
One plus: I have a $1500 out of pocket max, so most likely I would just get stuck with one $1,500 bill and that's it for the year.
But the infusion center lady told me she has a patient who works for the same hospital network and has my same insurance, and she has the Remicade shipped directly to their pharmacy and that it would be a lot cheaper, because the other girl used to pay $800 a month but now she pays a lot less (but the lady couldn't remember what it was). Sooooo it looks like I'll be making a lot of phone calls and dealing with a lot of aggravation before I can finally get this started. I was a little bit discouraged when I hung up the phone but I'm just hoping I can get something figured out. I'm also going to call the number for the RemiStart program and see what they say as well.
I guess wish me luck and hopefully I'll be starting my infusions within a week or two, because not being on meds is starting to catch up with me :(
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...
Lexapro 10mg, Azasan 100mg