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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/8/2009 12:17 PM (GMT -6)   
Sorry, I'm off work today with the weather and have lots of questions.  Sorry for posting so much.  But this question is about fiber.  I am on the spinach/sunflower diet.  I am also not consuming gluten.  so my diet pretty much consists of eggs or oatmeal for breakfast. Spinach, sunflower seeds, and carrots through out the day.  Supper normally consists of LEAN red meat of some sort ( venison, lean beef burger, lean steak )  fish about once a week, and chicken about once a week.  I also normally have either brown rice, redskin potato, or green beans with dinner.  No bread or grains to speak of.  I do have some rice flour that I will use at times, but I like to cook not really bake. 
Now my question is that I am getting enough fiber?  My stools are loose, but I understand that can be a side of the spinach. 
Next question.... If I'm not getting enough fiber, do I have to be on liquid fiber like beneful?  or will the fiber con tabs work also?
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/8/2009 12:37 PM (GMT -6)   
I have had good success with psyllium-based fiber products like Metamucil. I have felt that it has been a big player in stool consistency during remission and flares. I up my dose when flaring and take the fiber and FOS with probiotics on empty stomach 2 hours after I have sent an antifungal cocktail down the pipes. Instead of canned spinach, I juiced the fresh whole leaves and mixed some Metamucil into the diluted juice.

Supplemental fiber is tricky to take as a dose that fits your own digestive system must be discovered. Too little and the effect doesn't maximize efficiency, too much ad you get cramps and bloating.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/8/2009 12:40 PM (GMT -6)   
First, if you're eating brown rice, you can't say you aren't eating grains. Secondly, you're getting fiber from your vegetables - carrots, spinach, green beans. However, you can certainly supplement with fiber. Many folks on here have had very good experiences with it. I take a soluable and an insoluable fiber supplement.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/8/2009 5:32 PM (GMT -6)   
but my question is does it sound like I'm getting enough fiber?
and if I'm not.... will fibercon work? I really didn't like beneful's taste. I'm not really up on all the names yet. Tryin to get up to speed though.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/8/2009 6:23 PM (GMT -6)   
If you are not getting enough fiber, fibercon can help.

You can look up fiber content of foods online and see how it adds up.

I would watch out for psyllium husks if you are following a gluten free diet - sometimes it can contain gluten.

Loose stools can be a sign of inflammation in the colon. While inflamed the colon cannot absorb the water it normally does.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Mild Flare
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and a probiotic
Remicade: 1st infusion 06/17/08:  Next infusion: 12/02/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/9/2009 7:55 AM (GMT -6)   
This is soo confusing. The SCD diet says fibers are forbidden, while others (and in this thread) says that fiber is beneficial ??????
What seems to be the truth?

Also some say eggs and meat are forbidden while the person above eat egg and red meat??

LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 1/9/2009 8:03 AM (GMT -6)   
Qvist said...
This is soo confusing. The SCD diet says fibers are forbidden, while others (and in this thread) says that fiber is beneficial ??????
What seems to be the truth?

Also some say eggs and meat are forbidden while the person above eat egg and red meat??
I have also been confused by all of the different diet suggestions. I am coming to the conclusion that this disease is very individual. There don't appear tp be any rules etched in stone that work for everyone.
Personally, I am starting with as balanced a diet as I can and if I have to remove something from my diet I will as it bothers me. I am just keeping known triggers low to non existent in the diet when I can (seeds, nuts, raw veggies etc). I also only eat red meat a couple times a month and eat lean protein (fish and chicken) more often.
I haven't started a fibre supplement yet, but do make sure to start every day with cereal and get firbre from cooked veggies and/or pasta.
I am not sure that everything will stay the same as i taper my pred and things start to bother me more. Here's to hoping :-)
 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/9/2009 8:40 AM (GMT -6)   
I don't put too much stock in the "diets" for Uc....  out of all the people on this forum, some eat whatever they want, some follow very strict dietary regimes. And yet- here we all are, still posting of our troubles! I eat whatever I want, some foods are easier to digest than others. But this would be the case whether or not UC was a factor- if I ate a giant bowl of chili one night, you can bet I'd have increased gas & bm's the next day, as opposed to eating a turkey sandwich on white bread. However, fiber supplementation is absolutely necessary for my UC to "behave"- for me. I was averse to trying fiber for years, even though my GI & other posters recommended it. I decided to give it a go, & now cannot go without it! I eat 1 packet of Metamucil wafers daily for breakfast- these are soluble, psyllium based fiber. They bulk up my stools, make the bm's less frequent & with more productivity- I'm not just passing mucousy stuff, it's actual formed stools. I did switch to Benefiber about a month ago, when my grocery store stopped carrying the Metamucil wafers, & it gave me such horrid gas for weeks that I quit & went back to Metamucil. Things rapidly smoothed out. I would recommend fiber supplementation to anyone- & also recommend not necessarily following any specific diet, but just eating with caution & common sense.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/9/2009 9:25 AM (GMT -6)   
Thanks!
I have absolutely no track of what is good and bad for me. I know what is generally healthy and what is not. But in relation to CU no track at all.
My experience - if any - is that there seems to be a delayed response to e.g. stress or whatever.
Then again I am only suffering in the rectal part (I guess it's called in English) - the last 10-15 cm.
Only one since 1999 has it been up to 30 cm after I was sick with influenza.
I flare up 1-2 weeks every year or once a year - and knock it down with Mesasal rectals. For the last 2-3 years since the 30 cm incident I have been on 2x3 Asacol per day.
Between Flares I have ate everything. But now I have decided to be wiser since I have just had flare again.

My biggest fear that really destroys my life is the mental side of it. I have in the 10 years not suffered too much physically. But as I know it can get worse I have managed to limt my life quality all those years as I fear so much that it will spread and make my life hell !

Having CU (even mild) and Anxiety problems at the same time is no good mixture I can tell you.
And when I search the net for information I read how terrible people can suffer. In this area I think my life would have been better not knowing - but hey, no way back now I guess......

I will stay away from sugar, milk and fatty food from now. Limit my meat intake compared to earlier. Reaaly in doubt about bread/grains ??

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/9/2009 9:48 AM (GMT -6)   
I don't really follow the SCD much anymore except coincidentally (I find a sort of lower-carb version of the SCD works best for me) but the SCD is not low-fiber. It's just no-grain. You can get tons of fiber from various low-carb veggies, though. Re psyllium fiber supplements such as metamucil- I tried them for a few weeks and they flared me. They did bind up my stools a bit but they increased my UC pain levels and eventually led to outright flaring, so I stopped.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/9/2009 9:48 AM (GMT -6)   
unclebubba said...
but my question is does it sound like I'm getting enough fiber?
and if I'm not.... will fibercon work? I really didn't like beneful's taste. I'm not really up on all the names yet. Tryin to get up to speed though.

If you're having diarrhea, you could probably benefit from fiber supplementation. I use capsules for both soluable and insoluable fiber so taste, grittiness, etc. isn't an issue.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/9/2009 9:56 AM (GMT -6)   
Qvist said...
This is soo confusing. The SCD diet says fibers are forbidden, while others (and in this thread) says that fiber is beneficial ??????
What seems to be the truth?

Also some say eggs and meat are forbidden while the person above eat egg and red meat??
Fiber isn't forbidden on the SCD. The SCD is full of allowable vegetables and nuts that all provide fiber. Grains and certain other complex carbohydrates are forbidden on the SCD.
 
You're going to read all kinds of diet suggestions for IBD. Over the years, I've found there are common trends, though. Unless you have some individual reaction or allergy, eggs seem to be well tolerated unless they're fried and greasy. Lean, tender meats - particularly fish and fowl - also seem to be well tolerated. Excessive red meat, fatty cuts or processed meats with additives and preservatives can be problematic.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/9/2009 1:33 PM (GMT -6)   
Sounds like you have a pretty healthy diet. A person without UC would probably have no issues with that diet, so the looseness is just because of the disease unfortunately. Or that extra spinach.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30594
   Posted 1/9/2009 1:50 PM (GMT -6)   
Strange...I have a huge issue with the fact that "forbidden" is used regarding foods.

Lots of rules to be stressed out about...especially since many do not understand the importance of fibre in our diets and for our systems and that there are many kinds.  Again...the rules and not enough research possibly?
 
 


Qvist..welcome to the forum!

Regarding the rectal retention enemas...you should use them for your flares as you do, then taper to a maintenance level.

quincy


*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/9/2009 2:18 PM (GMT -6)   

Thanks quicy. That's what I do.

2x3 Asacol + Mesasal rectal pills the month of January.

After that 2x3 Asacol only.

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30594
   Posted 1/9/2009 2:53 PM (GMT -6)   
missing the point of rectal pills.....explain.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 1/9/2009 3:20 PM (GMT -6)   
     When I first developed UC ten years ago, I took a Fibercon...good LORD did it ever do a number on me!  Sent me straight into the ER.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/9/2009 4:30 PM (GMT -6)   

Sorry. It's my bad english. I eat 3 Asacol twice per day. Every evening before I go to bed I put a Mesasal Supportie up my a**e.

The later I should do for a month and then return to only eat the asacols.

 

quincy said...
missing the point of rectal pills.....explain.

q


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/9/2009 4:58 PM (GMT -6)   
quincy said...
Strange...I have a huge issue with the fact that "forbidden" is used regarding foods.

I only used the word "forbidden" in context of the Specific Carbohydrate Diet, which is very strict. If you're not trying to follow that plan, then I wouldn't use that term. I try to avoid calling foods "good" or "bad," and stick to sharing my experiences or describe foods as generally considered "safe" or "problematic" by folks with IBD.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


tap
Regular Member


Date Joined May 2008
Total Posts : 474
   Posted 1/9/2009 5:31 PM (GMT -6)   
I have been grinding a tablespoon of flax seed and mixing it with my morning yogurt to get my fiber. As an added bonus, flax seed appears to have a variety of other benefits for the body and it's much more cost effective than Metamucil. I have been using it for just over a month now.
43 - male
Asacol - 3 400mg pills 3 times per day
Diagnosed with pancolitis about a decade ago


quincy
Elite Member


Date Joined May 2003
Total Posts : 30594
   Posted 1/10/2009 1:47 AM (GMT -6)   
Qvist...use the suppositories for a month or so...but don't stop them abruptly..taper to every second night, then a week or two later to every third night..etc. Using them at least twice a week can help keep rectal inflammation as minimal as possible.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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