I can't work like this!!!!

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Jade13
Regular Member


Date Joined Oct 2006
Total Posts : 81
   Posted 1/8/2009 12:47 PM (GMT -6)   
Hey everyone.. I have been having a flare on and off for about 8 months now. I went into remission 3
months into my last pregnancy which was May 07 and stayed in remission until May 08. That's the
longest period of time that I have not had any symptoms..My question is this..I work as a surgical
tech/first assistant and am having a VERY difficult time doing my job. It really sucks because I love
my job, but physically its getting more and more difficult to do. We do long surgeries, sometimes
over 5 hours. And if I need to got to the restroom, a coworker will have to open a gown and gloves
for themselves. scrub their hands and THEN relieve me. By this time I'm usually about to burst (or
already have) sad And I just feel so sick all the time..I'm even tired of hearing myself complain..
Has anyone gone on Disability for this??? I really don't want to, but I can't seem to feel any better!!
Help please!!!!!!!
_________________________________________________________________

35 yr old female
Diagnosed with Left-sided UC 2006

Asacol- 400mg 3xs/day
Canasa Supp. 1/day




"It can't rain all the time"


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/8/2009 12:55 PM (GMT -6)   
Before looking into disability, I'd investigate any lateral career moves you might make that would allow you to stay in the medical field, but not be confined in an operating room situation. Ideally, you want a job that's not stressful and allows you access to the facilities whenever you need them.
 
In the meantime, for long surgeries, you could try Immodium but you don't want to use it on a daily basis and it's really just a temporary measure until you can make some decisions.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Jade13
Regular Member


Date Joined Oct 2006
Total Posts : 81
   Posted 1/8/2009 1:01 PM (GMT -6)   
I have tried the immodium but still have the urgency and bloody mucus. I have been looking into
other jobs that I might be able to do. I just wish I could get to feeling better. I just want lie down
all the time..Which is NOT like me. I have even started to consider surgery. Anything to make it
go away so I can get on with my life!
_________________________________________________________________

35 yr old female
Diagnosed with Left-sided UC 2006

Asacol- 1200mg 3xs/day
Canasa Supp. 1 or 2 a day




"It can't rain all the time"


UC_Dad
Regular Member


Date Joined Nov 2008
Total Posts : 33
   Posted 1/8/2009 1:14 PM (GMT -6)   
I know the feeling of being confined in a space at work when the urgency hits. I work in hi-tech in a cleanroom suit, that is almost impossible to get out of if you are in a hurry so it feels like I am playing the lottery if urgency hits, I ask myself "Am I going to make it this time?" confused .  I am early in the stages of understanding UC and have tried to ensure I have low stress, but these days with layoffs and economic woes it is hard to avoid. All you can do is try to have good support at work that understands your needs and "urges" and do the best you can do. Hang in there hopefully your body will start to settle down or perhaps another avenue at work will open up.
Dx'd June 08 severe UC
30 yrs old
Meds
Asacol 400mg x 9
Prednisone 40mg tapering off now
6-mp 100mg
Canasa
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/8/2009 1:37 PM (GMT -6)   
This must be very stressful for you. I hope you can figure out a solution. Know that we are now covered by the ADA (even though our symptoms come and go), if that makes any difference for you. So a reasonable accomodation is required. I don't know about going on disability, but it sounds like you should explore another job assignment that will work better for you -- or surgery if it just is too much for you to manage.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder at first, now Forte pills. Doing much better, but still having some bad days. 


Jade13
Regular Member


Date Joined Oct 2006
Total Posts : 81
   Posted 1/8/2009 2:32 PM (GMT -6)   
I am not familiar with the ADA. Can you give me more info??
_________________________________________________________________

35 yr old female
Diagnosed with Left-sided UC 2006

Asacol- 1200mg 3xs/day
Canasa Supp. 1 or 2 a day




"It can't rain all the time"


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/8/2009 2:47 PM (GMT -6)   
I am sorry to hear you're having so many problems. I am in the same boat. My life has been on hold for months with this terrible flare. Even though I am feeling quite a bit better I worry that whatever I do next wil ultimately be doomed. I know that is the wrong attitude but I just don't think I could swing the long days and the constant running to the bathroom. I hope you find some treatment options that give you the ability to follow your dreams.
 
I looked up ada
http://www.ada.gov/
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/8/2009 3:30 PM (GMT -6)   
The ADA is the American's with Disability's act. If you are otherwise qualified for a job, your employer is required to make reasonable accomodations for your disability. Reasonable accomodations may include frequent bathroom breaks or finding you a different job that doesn't have bathroom restrictions.

By the way, I understand the pressure. I used to be a corrections officer and would have to radio someone to come give me a bathroom break. Stressful!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/8/2009 7:05 PM (GMT -6)   
If the canasa are not working ask to try cortifoam...it helps me. Also your Asacol can be increased to 12 per day.


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

Post Edited (bbc) : 1/8/2009 9:23:30 PM (GMT-7)


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/8/2009 7:19 PM (GMT -6)   
Even though I am new to UC, I was wondering how some of you do it when you have extended flares (weeks or months long). Do you cash in every bit of sick days/vacation days and hope that carries you through the year?

Even though it was no fun to go through my first bad flare during the holidays, at least I got those days off without burning any of my own days. Even though I had some left to rollover into 2009, I worry that I might burn through them with future flares.

It has been hard enough since I travel quite a bit (by truck) and work on a lot of "new" construction sites with nothing but porta-potties.
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/8/2009 10:22 PM (GMT -6)   
UCmemphis,

Your type of work is certainly not suited for UC...I really feel for you, can you change jobs?
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/9/2009 5:57 AM (GMT -6)   
Wow that has to be hard....the anticipation of getting the relief to hit the restroom must play some tough mind games.... If you can get out of this flare, are your symptoms "relaxed" enough to still do your job? Have you tried any anti-anxiety medications to try to calm your mind a bit? Are you taking any other meds to help suppress this flare at all? I am currently flaring and I would not be able to do your job... The surgery would by my last resort - even with surgery you still have multiple BM's throughout the day.

UC Memphis - if no other resort, you may have to keep tending to the portopotties. I have been in a lot of those situations when I was younger....used to do quite a bit of construction and some sites didnt even have portopotties....had to get creative...It was very difficult....that is a very tough line of work for UC.... I can certainly feel your pain.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/15/2009 2:13 PM (GMT -6)   
My job is suited for someone who has Colitis in that I can telecommute if needed. However, I still have issues with work and having Colitis. I was stressed out at work when my third, and last flare, hit. After coming into work to finish an assignment, I asked my boss if I could take the next day off and then work only half a day for the remainder of the week. I told her that I was stressed out, my Colitis had come back, and that I wanted to get it under control. Big mistake. I was able to take the time off, but she hounded me constantly for needing to take the time off and for being stressed out. I am talking hours and hours of being hounded. The more she hounded me, the more stressed out I became. I ended up having a major flare. I probably should have just called in sick the next day with the flu.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/15/2009 2:29 PM (GMT -6)   
Oh jeez, I'm sorry to hear you're going through that Jade, I totally understand your frustration. I've thought about it myself, being the secretary in an OR... I used to want to be a nurse and then I realized I can't just run off in the middle of taking care of a patient. And I always wonder how the surgeons and scrub techs do it, standing on their feet for sometimes up to 8 hours, stuck in the room with no or very limited bathroom breaks. And then I remember, Oh yeah, they don't have UC. I could just imagine the panic- sometimes I don't even have to go to the bathroom, but when I realize I am in a situation where, even if I had to I wouldn't be able to, then all of a sudden my colon spazzes out and I have to go. So I'm sure a lot of it is psychological too but anyway.
Do your coworkers or your boss know about your condition? And have you talked to your doctor about maybe trying stronger medication? I know immune suppressants are probably something you might not want to be on, being in such close contact with patients that are very ill, but maybe there is something that could get you into remission quicker.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


JLH
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 1/15/2009 2:59 PM (GMT -6)   
I believe all of you should try the spinach, sunflower seeds and carrot diet. It has helped me tremendously. I was spending anywhere from $700 to $900 each month (Out of pocket) and now am only using one pill a day, Lialda. I feel I could probably stop that also, but I thought I would be on the safe side and keep using the Lialda. By the way, even when using all of the meds, I still was having all kinds of problems. Also my Doctor was talking about Remicade and possible surgery. Now, no blood, no mucous and no accidents!
 
Check the threads about spinach or request that cfromutah address your concerns. He was the one that came up with the diet. His discovery has been a MIRACLE for me.
 
Jim

Male - 59 years old - 170 pounds - 5’ 8” - Born 1948

Presc: Tizanidine - 4mg for Spinal Stinosis, Gemfibrozil - 600mg x 2 for Triglycerides, Glimepiride - 2mg for Diabetes, Mupirocin 2% for Staph, Crestor - 1000mg for Chol.l, Metoprolol - 50m for 3 Artery Disease, Aspirin for BP & Lialda,  Anucort as needed, Colocort,  & Canasa for Colitis.

Med. Hist: Polio1950,  Post-Polio Syn. 1993, Spinal Stinosis 2002,  Diabetes 2005,  UC ‘06, Rad. Prostatectomy May 2, ‘07, Stroke May 3, ‘07, 3 Artery Disease Aug.’07,  Staph - now


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/15/2009 6:41 PM (GMT -6)   
I also notice jobs people have and marvel at how they do it. Like the toll collector. Or teachers! I know there are a few here, who struggle.
Then I remember before I had UC, I would commute an hour to work, work all day, and commute an hour home, and never use the restroom all day! Unbelievable.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Jade13
Regular Member


Date Joined Oct 2006
Total Posts : 81
   Posted 1/15/2009 6:55 PM (GMT -6)   
Thanks all of you for the support and tips. I see the my GI on the 28th and hopefully he can change up my
meds or something. As for work, my boss tries to be understanding, I brought in some paperwork for her to read on UC. Its hard to change my job now, considering I've done it for 16 years, and I won't make as much money doing anything else. So I'm just hoping to go into remission for longer than a couple days or weeks!! Sometimes this disease really messes with your head!! As all of you know!!!!!! :-)
_________________________________________________________________

35 yr old female
Diagnosed with Left-sided UC 2006

Asacol- 1200mg 3xs/day
Canasa Supp. 1 or 2 a day




"It can't rain all the time"


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 1/15/2009 11:18 PM (GMT -6)   
My job has periods of time when I'm super busy, and periods of time when I'm bored to tears. I've noticed when I'm super busy I don't get as many urges/urgencies, but they do still show up. When I'm not doing much, I have more time to think about what my body is saying and I end up in the bathroom alot. If I know I'll be busy and won't get many bathroom breaks, I'll take an Immodium, but this isn't something I'd do regularly. My job involves shift work, and we rotate monthly, nights to days. During the worst of my flare I tried to work nights more often, as this allowed me more freedom to run to the loo if and when needed. I don't know if you have that option, but it is something to consider. I was able to do a 6 month flare with only missing three days.

I feel for your situation and I hope that you can find something that will allow you to keep working while you are flaring. For myself, once I start letting the UC dictate how I live, I find that it is hard to get back in the swing of things.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, Wellbutrin XL, fluoxetine, and vit B-12.
Spinach/sunflower seed diet for over two months with positive results!


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 1/16/2009 8:29 AM (GMT -6)   
I've gone on temporary disability. Got my Doctor to extend it until I was completely on my feet. Maybe you can try that til you figure out something new to do.
26 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade

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