Some might remember me, though I'm sure there are many more new faces on here. As a refresher - I was diagnosed in Dec 04, whilst in the USAF. I was separated in Feb 06 because of it. I moved with my wife to Colorado where we tried to start our new life but found it difficult. My health floundered while my awesome wife managed to find a good job in Denver, a long way away from our home. Finally my health turned around a bit and I was able to get a degree and my pilot ratings. A month after getting my multi-engine, instrument rated commercial license (yeah me!), my UC came back like I've never seen it. That was October 08.
Regarding my walk with UC-- flared in Oct 04, officially diagnosed in Dec 04. Went through ALL of the aspirin-based drugs, as well as steroids, enemas, and strict diet adherence. None worked except the enemas, which, lets face it are the BEST things in the world. So dignified and not at all painful (slop on the sarcasm here). Ironically, my UC calmed down quite a bit at the time of my separation from the USAF. During this time I was put on 6MP - which ranked right up there with the enemas, as far as I'm concerned. At least with the enemas, I didn't go through (unlike the 6MP) high, sudden fevers, constant nausea, headaches that would kill a horse and this one weekend where I couldn't keep anything down, but afterward I had rippin' abs! My liver function spiked and my new Colorado doc took me off cold turkey. Went through another c-scope and was told, yup, still have UC. Continued on a variety of useless drugs through 06 and into 07. Had another scope in May of 07 and then went through a medical eval board with the AF and both docs agreed-- yup-- still have UC but now proctitis, too! Around Oct 07 (hmm... Oct seems to be my month), I began a nearly year-long bit of peace with only occasional run-ins with stomach pain and bleeding. I have been in a awful flare recently and I've finally told my doctors I won't do it any more. No amount of Lialda or Mesalimine will help me (throw pills at doctors here and storm out). I finally agreed that I would have yet another c-sope, just this once, before my current doctor would agree to move onto Humira.
My UC has been characterized as terrible cramping pain in my lower left abdomen. The UC has only haunted a small part of my descending, terminal area of my colon, until recently. It obviously progressed to proctitis, too. I figured as much because this flare is/has been very difficult and extra painful. I discussed even removing the affected parts of my colon but I'm told they won't opt for this because the area that remains will take up the ulcers
Pain has been my biggest symptom, but this time around the bleeding has been a lot more involved. For someone living at such a high altitude, I need all the blood I can get.
So now that leads me to here-- tapping out this message while a ton of Humira doses chill in the fridge. My doctor gave me no instruction on how to take it but I believe a Humira rep will be contacting me shortly.
So I want all the feedback I can get on what to expect with this Humira. Of the people i have heard of who use it, say that it has worked very well for them. But knowing how UC is, I thought I'd better go straight to the horse...thats you guys
So please please, give me all you got-- good and bad and things to watch for.