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Regular Member

Date Joined Dec 2005
Total Posts : 72
   Posted 1/10/2009 3:56 PM (GMT -6)   
I am on remicade after the third infusion
feel good without any side affect
i read somewhere that the body can become used to it and then it wont work
what the chances that it might happen?
24 years old
pentasa 4 gram a day

Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 1/10/2009 9:06 PM (GMT -6)   
I don't know what the odds are but I think it's happening to me. I started noticing problems after my 5th infusion. I am having my 7th infusion next Wednesday and hopefully things get better because my insurance doesn't cover Humira.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp, VSL 3
Prednisone 5mg - almost done!!! YAY!

New Member

Date Joined May 2008
Total Posts : 12
   Posted 1/10/2009 9:23 PM (GMT -6)   
I just finished my 6th infusion of Remicade and have restarted Imuran as well as Remicade and remain on Imodium three times a day as well as 10 mg of Prednisone daily and have begun to see positive results.  The bowel movements are down to three or four a day and a reduced amount of blood.  I have not noticed any adverse side effects.  The results of Remicade alone have not been satisfactory.

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 1/10/2009 11:39 PM (GMT -6)   
Remicade has been working for me for nearly 3 years now.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Regular Member

Date Joined Mar 2006
Total Posts : 31
   Posted 1/11/2009 12:06 AM (GMT -6)   
I've been on Remicade for 2 and a half far, so good. For the first year and a half, I was on Imuran at the same time. Because I'm on a double dose of Remicade, my doctor took me off of Imuran about a year ago due to concerns that the two medications might be suppressing my immune system too much and also might be increasing my risk of lymphoma.

I get eight vials of Remicade every eight weeks....I've been in full remission for over two years. Without it, I probably would have been forced to go the surgery route. As long as my insurance company continues to pay for the treatments....I'll keep taking it. :-)

39 Year old male with UC, Dx in January 2006.
Living in Calgary, Alberta, Canada..

Currently taking 200 mg of Imuran Daily

Remicade infusions every 8 weeks since the summer of '06.

Currently Remicade induced remission!

Post Edited (Skruggs) : 1/10/2009 10:09:39 PM (GMT-7)

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 1/11/2009 2:50 PM (GMT -6)   
I've been on it for 3 1/2 years; no side effects, and I'm still feeling really well.

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

Veteran Member

Date Joined May 2006
Total Posts : 619
   Posted 1/11/2009 5:48 PM (GMT -6)   
2 1/2 years, no side-effects, but I start noticing a little blood and mucus towards the end of the 4th, into the 5th week from the infusion (I get infusions every six weeks). I'm going to ask about an increase of dosage for the next infusion since I am already at an increased frequency and use rectal meds consistently. My colon showed almost completely healed at my recent colonoscopy in Oct.

Vega19, if you want to try Humira you should explore the appeals process of your insurance. If Remicade is no longer working and your GI agrees that Humira would be your next bet, it is possible to appeal. You may or may win your appeal, but I did read somewhere that there is a very high rate of approval once things reach the appeals stage (apparently most people just give up prior to that). So it may be worth a try.

If that fails, it's really just a matter of time before Humira follows Remicade from approval in Crohns patients to approval in UC patients. Hang in there.

46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
12 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; 12/20/98; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 1/11/2009 11:08 PM (GMT -6)   
I'm having my 5th infusion tomorrow morning, and it's only been 4 weeks since my last one. It's not working for me, and I'm on 20mg prednisone too. I take immodium to get me through situations out of the house, but even then I'm uncomfortable. I do hope this medication works for hasn't for me, so we're meeting with a surgeon at the end of the month and hopefully having a colectomy the middle of February. : )

I wish you the best!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.

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