what qualifies remission?

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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/10/2009 11:14 PM (GMT -6)   
I know this is an individualistic disease. And I also realise everyones answer to this will vary. But what do each of you consider remission?  Before I started to have problems.  I was a once a morning guy...  Got up, went downstairs, shaved, visted the throne, got a shower,  brushed my teeth, and was out the door.  If I hurried this could take less than 20 minutes.  Is this to much to ever hope for again?  I never had D or urgency in the afternoon.  and even If I caught a bug ( which was rare ) I always had confidence that I could hold it.   Now I have no confidence. 
So what qualifies as remission for you all?  what expectations should I have? Sorry to be the one to ask the hard question.  LOL
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/10/2009 11:17 PM (GMT -6)   
No Blood
No Mucous
No Cramping
No Spasms
No Fever
No Chills
No D
No C

and all at the same time more or less.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/10/2009 11:23 PM (GMT -6)   
blood hasn't happened for over a month
no mucous
cramps late afternoon
spasms after eating... and gut gurgle
no fever in over a month
never had chills
only once case of D in over a month
Not sure what C stands for....

Biggest probs are crampin and urgency now... and no faith in ability to hold it. I guess anxiety....??
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 1/10/2009 11:33 PM (GMT -6)   
With me being in remission now my BMs and the frequency of them are like they were before I got UC. One solid bm a day with no urgency or other UC symptoms. I work in new construction and in the past 2 years I only used the outhouse porta potty maybe 4 times for BMs because I can wait till I get home with ease. Man I hated using those things several times a day when I was in a flare!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/10/2009 11:37 PM (GMT -6)   
C means constipation...it goes further then what's been listed, some key symptoms are urgency and frequency, those are my 2 issues, I don't have any of the issues that bbc listed but I can guarantee you that even though I'm doing better now with my regime, I am still by no means in full remission.

Also there are varying degrees of remission as well, clinical remission, symptomatic remission.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/11/2009 12:01 AM (GMT -6)   
For me it was having formed stools (like they were prior to UC) and no cramping. I still have urgency even being in remission for almost three years. I think its because my brain is wired to anticipate D. I also include being on maintenance medication as being in remission. I would rather take pills and feel good then not take them and try to push myself into being in the class of "true" remission. I still have bad days but I have IBS and lactose intolerance so that's almost a given. I used to be a once every other day girl but since my flare I usually go one to three times a day with no d or cramping. I guess your system is never the same again after your first flare.

My would think maybe that your urgency is more rooted in your brain than your gut. To get into remission I did a bowel rest and my GI did a colonoscopy after and I was completely healed inside but I was still having some d and a lot of urgency. He said that is was most likely my brain overreacting and so used to the d that that's what it tells my colon to do.

I hope you're heading towards remission and that I somewhat answered your question! :)
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/11/2009 12:28 AM (GMT -6)   
Except that urgency is considered an IBD symptom not a psychogical symptom, you get the urge to go when your bowels tell your brain to evacutate the bowels...and yes, urges are also a symptom of IBS, it's a fine line when you have an IBD and IBS.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/11/2009 1:36 AM (GMT -6)   
Cfromutah said...
With me being in remission now my BMs and the frequency of them are like they were before I got UC. One solid bm a day with no urgency or other UC symptoms. I work in new construction and in the past 2 years I only used the outhouse porta potty maybe 4 times for BMs because I can wait till I get home with ease. Man I hated using those things several times a day when I was in a flare!
I work new construction as well and the visits to the porta-potties in the Southern summers are horrid.
 
I have not reached remission since my first flare but I am hoping for 1-2 BMs per day with no blood, pain or cramping.  I have had IBS for a while so I am used to having an irregular GI system.
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 1/11/2009 4:44 AM (GMT -6)   
and completely off pred.

Experience the improvement....remission is just the bonus.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16285
   Posted 1/11/2009 7:43 AM (GMT -6)   

I am feeling a lot better too, no blood, less BMs but I still have urgency and some cramping... I think I am healing but not quite healed. I hope it continues to improve. Bubba, it sounds to me like you're well on your way to remission. :-)   Let's hope it lasts forever.


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/11/2009 8:59 AM (GMT -6)   
Sometimes too with people that have had this for a while and after being in severe flares for a long time, it redefines the term remission. Meaning, at least for me, I believe I am in remission but would I consider it the same as before having Uc? Most definately not because to me now this is my new normal. I've had Uc for 16 years and in those 16 years I can count maybe 3 times that I have had a true remission but it never lasted longer then 6 months. I have always flared to a certain degree but I was naive and just didn't know it - in fact, I thought that it was supposed to be like that. So anyway, my new remission and my new normal is going to the bathroom 3-4 times a day with bms ranging from solid to mush. BUT I do not have any bleeding, left sided pain or urgency. I do still have cramping but that's another story in which I am going to discuss with my GI in February.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/11/2009 9:42 AM (GMT -6)   

I consider myself to be in remission & this is what I get with it: 3-5 formed bm's daily, usually in the AM. Extreme urgency, pretty much every time- I can hold it for about 2-3 minutes. No blood, or just pinkish tp. No D. Sometimes C, but it's completely due to diet. No pred- none since Feb. '08. I take a fair amount of maintenance meds- see signature! I eat what I want- Friday night had boneless buffalo wings & chocolate fudge brownie Ben & Jerry's!!!! No probs Sat. AM (I don't normally eat like that- special treat!). So that's remission to me- prior to ever being diagnosed or having symptoms, I was pretty much a once a day girl. During flares & "recovery" periods, it's been 15-20+ mucousy, bloody, bm's or D. And that's with eating next to nothing. My last colonoscopy showed about 10" of active inflammation, so I'm not in clinical remission. But I can live with how I am now- it doesn't interfere with my day to day life. I work, go for long car trips, eat a fair amount of whatever, etc. Very individual- many people would not consider this to be remission.

 


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/11/2009 10:48 AM (GMT -6)   
For me its 1-2 formed BM's a day. No D, blood or mucus. No urgency and BM's are able to be held for a period of time. Farts can easily be passed with no fear of a shart. The smell is different too. I know I am approaching remission when I can fart.

I've accepted the fact that my stools will never look like they did pre-UC.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/11/2009 11:07 AM (GMT -6)   
ucwarrior said...
For me its 1-2 formed BM's a day. No D, blood or mucus. No urgency and BM's are able to be held for a period of time. Farts can easily be passed with no fear of a shart. The smell is different too. I know I am approaching remission when I can fart.

I've accepted the fact that my stools will never look like they did pre-UC.

I am really hoping this is my type of remission.
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/11/2009 11:41 AM (GMT -6)   
UCin memphis... the foam type rectal meds are much easier and less enema like so if you need them don't hesistate.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/11/2009 11:46 AM (GMT -6)   
bbc said...
UCin memphis... the foam type rectal meds are much easier and less enema like so if you need them don't hesistate.

Thanks for the heads up.  :-)
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/11/2009 3:38 PM (GMT -6)   
SO I guess general consensus is that I am on my way there, maybe even getting close, but not there yet. Which is good cause I had hoped for better. More normal. Will keep workin on it.
 
38 yr old male, NE Ohio
 
diagnosed in aug 2008
30 mg predisone, 9 balsalazide, rowesa enema, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera
gluten intolerance... attempting to live no/low gluten
 
**********
update: down to 25 mg pred a day as of 12/25/08
**********
update: down to 20 Mg pred a day as of 1/7/09


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/11/2009 4:59 PM (GMT -6)   
UC Remission means that you have no symptoms OF Ulcerative Colitis.I have had very lengthy spells of remission(4/5 years without even a cramp or d or blood).


  



       
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 12:12 AM (GMT -6)   
sicklygirl said...
I am feeling a lot better too, no blood, less BMs but I still have urgency and some cramping... I think I am healing but not quite healed. I hope it continues to improve. Bubba, it sounds to me like you're well on your way to remission. [img]/community/emoticons/smile.gif[/img] Let's hope it lasts forever.


Me too. I'm no longer bleeding and my BMs are well-formed. However, my colon is still weak. That's why I still have some urgency and cramping. I consider myself in remission. I'm healing but not quite healed. I know I have to be careful though. It's hard not eating my fav foods.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

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