Rectal inflammation "only" - dietary recommendations ??

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Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/11/2009 5:33 PM (GMT -6)   
Dear all.
This is a great and very active forum. I'm glad I found it.
However people here seems to have this disease in various variations - and I am not sure the recommendations are the same?
Also it is difficult for me to understand if some of the dietary recommendations (e.g. stay away from raw vegetables) is a general advice or is an advice based on that some may be getting stomach problems from it, but not that it triggers flare in itself, etc. etc. etc.??
 
I also recognize that the disease is very very individual!!
 
I wonder if anyone in here could give some advice related to my condition???
 
Background:
Male 40 yrs. Had rectal CU (think it was called Haemoragic proctitis back then) since 1999 (Present doctor just calls it CU) - so 10 year anniversiry here in February.
 
I have no direct links between food and flare. For long periods I eat everything, not really any stomach pains. But suddenly I flare up !?!? So far Mesasal up the rectum or Pentasa has done the job and got me in remission within 2-3 weeks.
 
This might sound mild compared to some here. But my big problem is how it affects me mentally. I have anxiety problems because I fear so much that the disease will spread and I cannot keep my job and support my family (3 small children), so taking a little medication for that as well. Found some relieve in this forum at there seem much can be done.
 
Seems stress has impact sometimes. And as stress and anxiety is closely related - well I'm am always in some state of stress. It's not a 1:1 connection though.
 
I have decided to do something about this and change my diet - I eat healthy already, but also unhealthy.
I have already stopped eating sugar (3 weeks now), I have started to eat more yoghurt. I have limited my meat intake (is that good??).
I eat a lot of salat, lettuce, and all sort of raw vegetables.
I only eat full corn bread - but read that some say I should stay away from all bread, rice, pasta ???
 
I am on Asacol 2x3 per day and when flaring (as now) on Meseal rectum end.
 
Would love constant/long term remission. Would love to be med-free !!!!!!
 
Do you have some generic recommendations I can try?
 
 

Post Edited (Qvist) : 1/11/2009 3:39:41 PM (GMT-7)


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/12/2009 3:01 AM (GMT -6)   
Anyone?

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 3:19 AM (GMT -6)   
Rice is good for diarrhea and is tolerated well by most.

There is no reason to give up breads and noodles if you are not wheat/gluten sensitive. They are healthy for the colon.

Probiotics are good for the colon too. So is yogurt.

Here are some of the things I do to alleviate stress:

Practice yoga
Meditate
Listen to self-hypnosis CDs when going to sleep
Go to the gym
Take Lexapro
See a therapist
Work no more than 40 hours a week
Have hobbies
Go for walks
Eat healthy
Do breathing exercises
Watch funny movies
Get a back massage at the mall
Get plenty of sleep
Laugh at my mistakes
Listen to music
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/12/2009 7:07 AM (GMT -6)   
Thanks !!
Fortunately I don't have diarrhea. Even in my present flare I only go once a day.
The mental part: For me it seems that the more I search for cure/knowledge the more I suffer. There seems to be piece to be found in accepting the circumstances. But I can't and somehow it also seems wrong ! But people around me tell to shop the search. Maybe they are right (as medication seem to work fine so far), but I just wanna be cured

Is it possible to be tested for Wheat/gluten allergi? I think I read some time that this is difficult if you don't have actual reactions that you can see disappear if you stop eating it?

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 1/12/2009 1:38 PM (GMT -6)   
     Yes, you can be tested for wheat allergens or any type of allergen as far as that goes.  Ask your doctor to prescribe an anti-anxiety pill such as xanax.  That should be of some help.   Good luck!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/12/2009 2:24 PM (GMT -6)   

There's nothing wrong with raw vegetables IF you can tolerate them. People who have active inflammation throughout their colons would want to avoid them and eat cooked vegetables instead because the cooking breaks down the tough fiber matrix and makes them easier to digest.

There's also nothing wrong with eating meat, although many people find reducing or eliminating red meat in their diet and focusing more on lean pork, fowl and fish are better choices. Red meat tends to increase inflammation.

I disagree with an earlier poster regarding grains, pastas and breads. A lot of folks have problems with gluten, regardless of whether or not they have celiac disease (which you can be tested for). Eliminating gluten is one of the first things Dr. Mercola advises in his healthy diet plan for everyone - not just IBDers. http://www.mercola.com/nutritionplan/beginner.htm Rice and corn do not contain gluten, but one of the most successful diets for treating IBD is the Specific Carbohydrate Diet which eliminates ALL grains, so it may be worth a try.

One of the best things you can do diet-wise is supplement with omega-3 oils which help reduce inflammation throughout the body. Fish, flax and Udo's oil contain omega-3 EPA and DHA. I highly recommend you check out the book The New Eating Right for a Bad Gut which will give you lots of research and stats concerning what foods other IBDers find "generally safe" and "generally problematic."

Stress is certainly a factor. Rather than taking anti-anxiety meds, I'd suggest yoga, meditation and regular physical exercise as ways to manage stress. Also, work on replacing negative thoughts with positive thoughts and change what you can in your life to reduce stress... change jobs, get more rest, learn to say "no," etc.

 


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 1/12/2009 4:26 PM (GMT -6)   
Qvist said...
 There seems to be piece to be found in accepting the circumstances. But I can't and somehow it also seems wrong ! But people around me tell to shop the search. Maybe they are right (as medication seem to work fine so far), but I just wanna be cured.
Here is most of your perceptual problem.  There is no cure.
 
You can be tested for anything....stool samples will show if you have fungus (if it's tested for).
 
I disagree for cutting out carbs....but there are different kinds of carbs, and the body needs them.
 
I have NEVER had a flare get worse from eating anything nor has it gotten better from avoiding anything.  Food can cause some of your symptoms to be worse...such as discomfort.  If you eat more, you will have more bms. 
 
Stay on your meds....but to some, that's a failure.  You'll have to make sure you don't make the mistake to believe you are't being helped by them if you are.
 
If it's any consolation, the fungal connection has been around since I was diagnosed 20 years ago...not an issue I have.  If it is an issue, it's separate and I believe confused with UC.
 
Celiac or gluten intolerance happens in the small intestine....it won't change the course of your UC.
 
quincy
 
 
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/12/2009 4:52 PM (GMT -6)   
"But my big problem is how it affects me mentally. I have anxiety problems because I fear so much that the disease will spread and I cannot keep my job and support my family (3 small children), so taking a little medication for that as well. Found some relieve in this forum at there seem much can be done."

Okay, you need to lose the anxiety. If I am your worse case scenario (had surgery to be cured) than you will be FINE if that ever is a choice you have to make. I work full time, engage in 100-200 mile hikes, work out 6-7 days per week, take no medication, and am very healthy. You sound as if you are managing the disease well but getting way to worked up about the what ifs and looking for cures. Stop letting the disease manage your life and get out their and enjoy your good health!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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