Well this makes me really mad!

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Happychic
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Date Joined Dec 2008
Total Posts : 44
   Posted 1/11/2009 7:23 PM (GMT -6)   
Good news! I just read that the FDA approved a drug to regrow and lengthen eyelashes! EYELASHES! Are you kidding me? Don't researchers have anything better to work on like maybe cancer, or maybe UC!! I know it might sound really mean of me, but when I read this it just struck me the wrong way! It seems the priorities are out of whack! Now that they have the eyelash issue taken care of maybe they can start looking into our POTTY issues!!!
 
P.S. - this was not meant to offend anyone, I know that some people have eyelash issues. I would just love to hear more about what is being done to help all of US!!!!!
 
Hope everyone is doing well!
Angela
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/11/2009 7:58 PM (GMT -6)   
There actually is a lot more research being done into IBD than ever before, and new treatments being developed at a relatively rapid pace (even though it seems an eternity to us.)

Unfortunately, this country has become appearance-obsessed, so there's a lot more demand for white teeth, large breasts and long eyelashes than for treatments for IBD.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/11/2009 8:59 PM (GMT -6)   
smilewinkgrin  Now what's wrong with large breasts??? smilewinkgrin


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/11/2009 9:19 PM (GMT -6)   
Good one bbc - you must be a man! I guess I just felt a little selfish after reading about the "cure" for eyelashes! I already have long eyelashes! My hair is falling out due to meds, I have several extra lbs. to lose thanks to pred, but I have great eyelashes!LOL
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/11/2009 9:24 PM (GMT -6)   
Just a little levity... ; )
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/11/2009 10:27 PM (GMT -6)   
LOL...there is plenty of IBD research going on and obviously other research going on as well which I don't think there's anything wrong with that personally...I have a friend who got breast implants that leaked and now she has such horrid health problems which BTW I would not want to swap with her so it would be great if they continued research on breast implants that were totally safe...I think it would be great if a person could safely walk around with big boobs, long eyelashes and be IBD free all at the same time, and that's a womans perspective BTW.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/11/2009 11:21 PM (GMT -6)   
I do agree that it is a little frustrating that those with eyelash issues are finding a cure. : ) Perhaps the eyelash research was a little more simple than our immune research? I do understand that there is more research focusing on our de-humanizing, bootie-focused disease, but really it's going to be a long time before anything miraculous comes our way. And for those like myself who have yet to be in remission and struggle with immune issues caused from medications, I'm going to take the cure offered. : ) That's just the right decision for me though.

Anyway, how wonderful that people with the lack of eyelashes can grow back what they once or never had. : ) Perhaps someday we could have colon transplants or back transplants (which I always joke about b/c mine is a beautiful 'S' shape). However, until then I'm going to take what is offered and be done with it!

Now, some research I have recently done, wrote a paper on and gave a presentation was on chronic illness and the family life cycle. It is so amazing how the struggles my husband, family and I have gone through is perfectly normal and expected. The biggest eye opener was the those of us with a chronic illness that can go in and out of remission (like us with UC) have two set life plans...one for when we're in crisis and we become dependent on our supports...and another for when we are able to live and thrive as an independent unit.

Okay...that's just my tid bit.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 1/12/2009 1:33 AM (GMT -6)   
I can sort of understand the rant based on frustration, but to compare.....one doesn't have anything to do with the other. We all have needs, and as you notice...each seek out a "cure" or remedy for it in one way or another.

UC research is continually going on.....I'm not holding my breath for a cure, and I personally am grateful for the research and company that created each and every med I take.

I would have loved to inherit a slightly more substantial breast size...but would never have done the implants anyway. As far as my eyelashes, they kind of grow in a few directions and I actually have to pull out the ones that grow downward and make my eyes feel like there's something in them.
I guess I could go for an eyelash perm? yeah, didn't realise, but there are teeny little roller thingies for eyelashes.

And if I could only find a mascara that doesn't flake....why can't they make that considering all the research that goes into make-up????

sigh...LOL!

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/12/2009 2:12 AM (GMT -6)   
Totally off the subject, but I really like the Max Factor mascara...FYI. : ) I don't like waterproof b/c it feels like I have cement on my lashes, but so far, the Max Factor has been my fave.

: ) Woman to Woman. : )
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 1/12/2009 4:06 AM (GMT -6)   
ah...which one in particular from MF? Thanks .
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/12/2009 8:10 AM (GMT -6)   
I actually purchased a couple different ones and I like them both. No matter the brand I always try for which ever one is supposed the lengthen the most. : ) I have the issue where my lashes have color toward the root but are practically clear at the tips. It's crazy. Anyway, I also like the Max Factor b/c it won't break the bank. I use Bare Minerals for everything else (except concealer which I use Physician Formula b/c I cake it on at times to cover the dark circles and can't afford to keep bare minerals in stock for that purpose), and I just cannot bring myself to spending over $10 for mascara when it has a shelf life of only a few months. The eye shadows and face powders from Bare Minerals can last almost forever, so I justify those costs. : ) My husband supported my make-up costs as well once I explained it to him in that sense. : )

Anyway, I've been even more adament at keeping up on my make-up splurges since I've been super sick...it's good to feel good about yourself in one way or another when you have this ucky disease. My favorite treat is lip gloss...now that I can spend well over $10 for and no, I do not share that tid bit with my husband. : )

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-4 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/12/2009 8:34 AM (GMT -6)   
I LOVE the Bare Minerals! Especially since I have never been a fan of liquid makeup! I can really see a difference with them. I am a big fan of Covergirl mascara. The orange one that is really fat! I am the same way about makeup. I splurge with the Bare Minerals and go cheaper with mascara, lip gloss,etc! I guess that's why I have a drawer full of lip stick and lip gloss!!!
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/12/2009 8:39 AM (GMT -6)   
Oh and I do know there is alot of UC reasearch going on. My rant was intended to be sarcastic. When I saw the word "cure" in the headline followed by "eyelashes!" I just got a little jealous, and tickled! I know one has nothing to do with the other, I really hope those cosmetics researchers don't move on to UC research or we are in serious trouble! HA
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/12/2009 8:42 AM (GMT -6)   
I just discovered Bare Minerals a couple months ago. I have a chronic rash on my face and any of the other foundations or coverups made it worse but I have no trouble now that I've been using Bare Minerals. Expensive but well worth it. I try to make myself look as healthy as possible with make up because I HATE looking sickly. In fact, if I ever go a day without make up my hubby keeps asking me if I feel ok because I LOOK sick! lol As for the mascara, I forgot the name of it, but it's Covergirl in the red tube and I've never had a problem with any flaking or caking. It has that wand with the spikes to seperate the lashes. I lost my eyelashes when I was 12 due to the German Measles and since then my eye lashes have always been on the thin and short side so I was tickled when they started making masacra to extend and plump the lashes!
 @--->--SHERRY--<---@
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
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Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/12/2009 9:13 AM (GMT -6)   
My mother in law uses Bare Minerals because it covers her Rosatia (sp?) She is the one who turned me on to it! The nail salon I go to also does the false eyelashes that last for a few months. I think they are glued on, but they look really natural!
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/12/2009 10:40 AM (GMT -6)   
That medication that makes your eyelashes longer and fuller wasn't developed for that purpose. That medication is for glaucoma which is terrible. The long eyelashes is a side effect and not the purpose of the treatment.

Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/12/2009 11:16 AM (GMT -6)   
I don't have much sympathy for people who have cosmetic surgery; it's not necessary and most of the time not for medical purposes. I would love to have breasts a cup size or two bigger, but I'd never get surgery.
I wish cosmetic research would focus on "curing" sensitive skin. My skin is so sensitive that even Bare Minerals and other sensitive skin products can irritate it! Very annoying, especially since my skin tone is uneven.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/12/2009 12:08 PM (GMT -6)   
I also love Bare Minerals. My skin is very fair and thin, and I've never been able to use anything with any oil or anything heavy. I always diluted my foundation by half with a water-based moisturizer.

I did have to go off the Bare Minerals automatic shipment plan, because they ship new foundation every one, two or three months. After 14 months, I'm just about to finish up the first face finish I ordered. I have two more containers of it, which I guess will last me another two years.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 400
   Posted 1/12/2009 12:13 PM (GMT -6)   
A pharmacist told me that they don't always set out to develop a drug, sometimes they will set out to develop something entirely different, and in the process they'll discover other drugs to develop.

The example I was given was that a pharm company set out to develop a drug for hypertension, and after researching for a while they happened to stumble upon Viagra.
12 Asacol
100 mg Imuran


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 2:14 PM (GMT -6)   
Q, Lancome doesn't flake (they have a variety and I've tried them all and none of them flake) Guerlain doesn't flake either...and using an eyelash curler is probably the closest thing to an eyelash perm LOL.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 1/12/2009 4:40 PM (GMT -6)   
Great suggestions. I used to use Lancome, but never Guerlain...but expensive since I change my mascara every month. I've never used an eyelash curler..maybe I should consider since those straight ones drive me crazy (another thing inherited from my mom..lol).


I'm actually allergic to many mineral make-ups...made my skin very, very crepey and worse. I'm also allergic to many silicones (so much for those fake boobies) that are in more and more preparations for sensitive skin.

I already use the Lash Blast too..good one, but dries out quickly...the Lash Discovery by Maybelline is good too, but does flake...sigh.

I think that facial augmentation has gone to the dogs...when you look worse than before, that's scary. It's freaky to see the "new Hollywood" faces...
As much as I don't like getting old, I'll take it over any of those looks. ugh.

Scarlet...thanks for the expansion regarding the glaucoma med and longer eyelashes..interesting. Many meds do have positive side effects..inventions are an awesome thing if it helps.

Of course, some "cures" are perceived....like boiling live cats for virility...the more the animal suffers, the more the virility and energy in the soup. OT I know...but the bottom line is culturally and emotionally, many things that are believed to work will be continued as a cure for something. It will never end.

I'll stick to my meds and eat what I want, and continue to use make-up and hair products to have me looking and fooling the world that I'm OK!

Thank goodness for cheap products that work.

q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/12/2009 5:39 PM (GMT -6)   
Yeah I'm with you all... I never leave the house without putting on makeup first. It drives my boyfriend crazy when I'm getting made up just to go to the gas station but, like others said, I just hate looking sickly! And when I don't have makeup on, I feel like I look about as bad as I feel on the inside. So at least when I'm wearing makeup, people aren't asking me all day if I'm sick and reminding me that I am.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 1/12/2009 5:44 PM (GMT -6)   
yep, can agree....my husband on occasion has said "don't wear make-up when you go to the doc...I think it fools them into believing you're better than you really are".

Nah...it'll never happen...but I might wear a colour of top that makes me look less better....lol!
q
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, tapered every 2nd nite (Jan 3)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 5:48 PM (GMT -6)   
Yes, I agree, women with make up on that have IBD can really fool others by not looking sick or as sick as they actually feel, that's why I always say never judge a book by it's cover when people tell me I look good I always say thanks, now if only I could feel as good as I look.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/12/2009 5:49 PM (GMT -6)   
That's funny because one of my doctors always used to tell me that I looked way too good to be as sick as I am. I just said, well that's good because if I looked as bad as I feel, I'd probably just never leave the house.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 

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