Flare and period cycle

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chere2000
Regular Member


Date Joined Jul 2006
Total Posts : 110
   Posted 1/12/2009 4:56 AM (GMT -6)   
I know this has been discussed before but i wanted to talk about it anyway. Every month, a week before my period, I start flaring. It starts with headache, nausea and gas. Then, i guess the acidity causes a flare. I take cortico steroids and it takes about a week and a half to settle down. Then, the whole cycle starts again.
I am nervous that my steroid enemas might harm in the long run.

Does anyone else have the same problem? What do you do about it?
Best remission strategy- positive attitude and optimism
Diagnosed in Feb 2006
6 asacols a day, probiotics, hydrocortisone enema, vitamins, folic acid.
Headed towards remission. Wish me luck


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/12/2009 7:37 AM (GMT -6)   
I had to do the same thing. I would always have these mini flares right before my periods. If you are able to use Rowasa then maybe you should use those instead of the steroid enemas. It wasn't until the last couple years that these mini flares would turn into full blown flares for me. I am 38, done having children so my GYN said I would be ideal for the endometrial ablation. I had the procedure done and now I haven't had a period in over a year which in turn caused these mini flares to disappear.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 1/12/2009 8:14 AM (GMT -6)   
I have posted on this topic before as well. If you look it up a few weeks ago, we had a good, long one with some ideas on it....including birth control pills- pro's and cons. My daughter is in the same boat as you are. Sometimes the pre-period flares bring on a 3 week state of misery. We just tried acupuncture last week. So, far, so good. Will keep you posted on it's success. The practitioner believes she can help with the pre-period side problems and treated those particular pathways.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/12/2009 8:24 AM (GMT -6)   
Wow Sherry! I am so glad the ablation procedure worked SO well for you!!!! I am 38 as well ( in a couple of weeks) and done having kids. I had it done in Oct. of '07. It actually worked quite well for the first several months, but for some reason I am having trouble again. My period is not very long, maybe 2 days, but it is the after "stuff" that has become a problem. It lasts for days and days. I have never had this before. Anyway, I need to go for my yearly exam and I will ask about it then. I too have a mini flare around the time of my period. Not every time, but it is still scary!!
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/12/2009 12:18 PM (GMT -6)   
Happychic, I asked my GYN what were the chances of my endo walls growing back and he said that it is rare but it can grow back in patches. And sometimes in women that have this happen to them, they would of been better off getting a hysterectomy. Yes, so far knock on wood. I've been very lucky to have this take so well. Of course it didn't feel like it at the time! lol I had an adverse reaction to the pain medication and had to go to the ER by ambulance. But now, of course, I am grateful to have had it done. Oh and btw, I had mine done in October of '07 as well :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 2:43 PM (GMT -6)   
I guess I'm lucky. I don't get flares around my period. I do have a hard time figuring out how much blood I'm loosing from the flare when I have my period. It is especially troublesome when I'm going into remission. It is really difficult to figure out whether or not my colon is still bleeding. And then of course there is the extra loss of blood to contend with.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/12/2009 7:37 PM (GMT -6)   
Sherry, I have heard about the endo walls growing back. Of course I hoped it wouldn't happen to me! I thought seriously about the hysterectomy, but I just didn't want to go through the surgery. I had a c-section in '05 and the recovery was AWFUL! I am considering a hysterectomy in the future as a last resort. It would be wonderful to be period-free!!!:)
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 7:59 PM (GMT -6)   
It's quite common for periods to exacerbate IBD and even IBS symptoms, more common than not actually....your steroid enema will not harm in the short or long run.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 1/15/2009 10:30 PM (GMT -6)   
OH yes,  my monthly period Always causes some GI issues.    And it has even caused me to flare.   I hadn't thought of the possibility of the ablation.   Good idea.   I would definately be looking into it if I hadn't already decided to pursue surgery for my UC>   
                                          ~Christie
42 yo RN, happily married, with 2 beautiful daughters, Tianna(15 yo) and Alyssa(11 yo).   Diagnosed Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. Have apppointment with colorectal surgeon Jan 29th to talk about surgery....IT"S TIME!!   
                                         Medications
Remicade infusions ~ Every 8 weeks since 11/6/07,  6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, and B complex vit daily (currently on pred taper...15mg twice a day)


chere2000
Regular Member


Date Joined Jul 2006
Total Posts : 110
   Posted 1/20/2009 7:27 PM (GMT -6)   
Hi all

Sorry for the late response. Thanks a ton for all the replies. I am meeting my GI tomorrow and will discuss with her.

Thanks
Chere
Best remission strategy- positive attitude and optimism
Diagnosed in Feb 2006
6 asacols a day, probiotics, hydrocortisone enema, vitamins, folic acid.
Headed towards remission. Wish me luck


tummy2
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 1/20/2009 7:32 PM (GMT -6)   
Usually my stomach gets really bad during my period... I asked my Gyno about it and she said, "Well then, maybe you don't need to get your period every month." So now I'm on the nuva ring, I put a new one every three weeks and get my period every 6 or 9 weeks. That way, my period is less often--thus it is less often that I flare up.

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/20/2009 7:59 PM (GMT -6)   
Its nice your GI is a HER! Mine is a pediatric GI and he is a male and really had no idea what to do about my problems with my period and my UC. I ended up taking ortho lo to kind of even out my hormones. I've had a good experience with it but others haven't. See what your options are :)
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 1/20/2009 9:35 PM (GMT -6)   
Yes, I was always adversely affected by my monthly cycle. Of course back then, the 1960s (I was diagnosed in 1962), the options for helping were non existent. No GI seemed to see a correlation. By the time I reached menopause in the 1990s, I finally figured out on my own that there was a hormonal affect...for me. My UC came on SUDDENLY and extremely (pancolitis) one month after my first period. After menopause my flares became less frequent, and less intense. I believe there is a connection for some of us.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 1/21/2009 9:11 AM (GMT -6)   
I definitely have a huge increase in colitis symptoms with my period. I would love to have an ablation or even a hysterectomy, but I always thought the ovaries were responsible for all the hormonal fluctuations that cause all the additional colitis trouble. I am excited to read that others were helped just by having their periods stopped.
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh

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