Stoping Bleeding during a flare, without medication..

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KingJuicer
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Date Joined Jan 2009
Total Posts : 25
   Posted 1/12/2009 6:26 PM (GMT -6)   
Tips and Advice???
 
I've done it before,...but I'm going on my 6th week of a flare...and would Love to hear some experience or feedback??

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 7:02 PM (GMT -6)   
I've done it too. I've had three flares so far. I didn't take any "hard core" medications for two of them. The most potent medicine I take is Lexapro. It really isn't that potent.

1. Get plenty of rest.
2. Reduce your stress.
3. Keep exercising.
4. Take vitamins.
5. Take Probiotics (mix with water and put up the butt).
6. Take Beano and Lactaid.
7. Eat anti-inflammatory foods.
8. Avoid inflammatory foods.
9. Avoid any foods that bother you.
10. Try fecal transplantation if you really don't mind the grossness.
11. I haven't tried this, but some people say vitamin E enemas help.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/12/2009 6:06:47 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 8:00 PM (GMT -6)   
Bee Propolis....been taking it daily for the last 5 yrs and haven't bled since and my GI is thrilled with that and the other IBD symptoms it's helped with.
And I don't take any RX for my IBD, just all naturals, altered diet, regular exercise.
 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 9:01 PM (GMT -6)   
pb4 said...
Bee Propolis....been taking it daily for the last 5 yrs and haven't bled since and my GI is thrilled with that and the other IBD symptoms it's helped with.

And I don't take any RX for my IBD, just all naturals, altered diet, regular exercise.




:)


Very interesting. Where do you get it, and do you put it up the butt?
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 1/12/2009 9:53 PM (GMT -6)   
subdued said...
I've done it too. I've had three flares so far. I didn't take any "hard core" medications for two of them. The most potent medicine I take is Lexapro. It really isn't that potent.

1. Get plenty of rest.
2. Reduce your stress.
3. Keep exercising.
4. Take vitamins.
5. Take Probiotics (mix with water and put up the butt).
6. Take Beano and Lactaid.
7. Eat anti-inflammatory foods.
8. Avoid inflammatory foods.
9. Avoid any foods that bother you.
10. Try fecal transplantation if you really don't mind the grossness.
11. I haven't tried this, but some people say vitamin E enemas help.

I've heard of fecal transplantation before? Where would you actually go about getting that done?  Just out of curiousity if it came to that....

 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08 - currently feeling ok
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg 35mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/12/2009 11:29 PM (GMT -6)   
Pushingforward said...
subdued said...

I've done it too. I've had three flares so far. I didn't take any "hard core" medications for two of them. The most potent medicine I take is Lexapro. It really isn't that potent.

1. Get plenty of rest.
2. Reduce your stress.
3. Keep exercising.
4. Take vitamins.
5. Take Probiotics (mix with water and put up the butt).
6. Take Beano and Lactaid.
7. Eat anti-inflammatory foods.
8. Avoid inflammatory foods.
9. Avoid any foods that bother you.
10. Try fecal transplantation if you really don't mind the grossness.
11. I haven't tried this, but some people say vitamin E enemas help.

I've heard of fecal transplantation before? Where would you actually go about getting that done? Just out of curiousity if it came to that....


Australia if you have the money. I did it the old fashioned way. I used the feces of my daughter's baby. I mixed the feces with warm water and put them up the butt. It wasn't as gross as it seems, because my granddaughter was breastfeeding. The feces were just a gooey, yellow liquid. I think it would be too gross now that my granddaughter is 2+.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/13/2009 4:19:05 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 11:53 PM (GMT -6)   
subdued said...
pb4 said...
Bee Propolis....been taking it daily for the last 5 yrs and haven't bled since and my GI is thrilled with that and the other IBD symptoms it's helped with.

And I don't take any RX for my IBD, just all naturals, altered diet, regular exercise.




:)


Very interesting. Where do you get it, and do you put it up the butt?

I buy it online at puritans pride and they're caps taken orally.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 1/13/2009 1:32 AM (GMT -6)   
king, I hope you can do it without "hard core drugs", but sometimes you need something to help you turn the corner. Since you dont want to use drugs, you could try Haldi, as it worked for me, you can get it at whole foods or online at haldi4health. (I get mine online as it is cheaper).
What does your GI say?

-----------------------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/13/2009 9:07 AM (GMT -6)   
High dose omega3 for reducing inflammation, Mucosaheal, l-glutamine and George's aloe vera for gut healing. Predigested liquid diet for resting the gut. Depending on where your active bleeding is, you might look into healing implant enemas.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/13/2009 1:11 PM (GMT -6)   
I should mention that although the bee propolis stopped my bleeding, lower back pain in it's tracks and quickly cut back almost 1/2 my daily bm's at the time I starrted using it (I was going 30+ times/day) I also added other supplements, omegas 3-6-9, probiotics, fibre supplements, vitamin A adn C-Calcium ascorbate and chamomile tea and have gotten even better results with that combination...I still use all of the above daily and have been for the last 4ish yrs (all products together).

Keep in mind, what works for some doesn't work for all and often it is a combination of things that work best....I also altered my diet and exercise regularly which I'm sure helps ake the naturals I use that much more effective.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 1/13/2009 1:19 PM (GMT -6)   
Since I'm a med-lifer, I would firstly suggest at least the 5ASA meds..oral and rectal, to deal with the inflammation initially.

There is something scary to me where people have a slow simmering inflammation continually believing they're not that bad off.

My doc's initial goal was to get me off meds....the realisation that it wouldn't happen came about 3 years afterward....but staying on a minimal amount of meds long-term is the best alternative if inflammation is continual.

Definitely take supplements that one believes will help, but sometimes not all supplements agree with everyone. It's also easy to become confused to the point where we are so consumed with so much input, be it information or food or supplements or meds...that the scrutiny of each and every symptom becomes a major issue.

Adjusting one's diet where food symptom/discomfort is minimal will help. Differentiating between UC and food symptoms is helpful...but it does take time.

If any symptoms are continual and food adjustments have been made, UC symptoms should be addressed with meds...and of course I suggest oral and rectal meds...5ASA initially and then the steroid topicals.

quincy
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, now tapered to every 3rd nite as of Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 1/13/2009 11:40 PM (GMT -6)   
pb, the bee propolis, you said that was in pill form, but is that the same as these people who sting themselves with bee stings?

-----------------------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/14/2009 12:43 AM (GMT -6)   
Bee propolis is basically bee caulk. Its valued as a remedy for inflammation and ulcers as well as a few other issues. Goes all the way back to ancient Egypt.

Don't worry no stings are required for a propolis supp. You are thinking of bee venom therapy. Its mostly used for multiple sclerosis cases.

Bee careful when using bee products if you are bee sensitive.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/14/2009 1:33 PM (GMT -6)   
Correct, ucwarrior explained it all well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/14/2009 1:41 PM (GMT -6)   
subdued said...
...........
7. Eat anti-inflammatory foods.
8. Avoid inflammatory foods.
9. Avoid any foods that bother you.
........
 
Examples of 7-9 please !!??


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/14/2009 2:22 PM (GMT -6)   
Qvist said...
subdued said...

...........
7. Eat anti-inflammatory foods.
8. Avoid inflammatory foods.
9. Avoid any foods that bother you.
........



Examples of 7-9 please !!??




See http://nutrition.about.com/od/dietsformedicaldisorders/a/antiinflamfood.htm for 7 and 8. Possibilities for 9 include gluten, wheat, yeast, fructose, and diary.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/14/2009 1:25:53 PM (GMT-7)


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 1/14/2009 2:31 PM (GMT -6)   
vitamin E enema

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/14/2009 2:51 PM (GMT -6)   
I haven't tried fecal enemas yet but it sounds easy enough and I plan to give it a try soon... home brewed like subdued, rather than going to Australia.  Nothing is too gross for me compared to this blasted disease.  Do a google search for "borody fecal" and that should bring up hits.   

Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/14/2009 10:23 PM (GMT -6)   
Fecal transplantation might help those who have taken too many antibiotics. It put me immediately into remission when I was in my second flare. My poo was fantastic, that is until I had to take antibiotics again for a urinary tract infection.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/14/2009 10:20:48 PM (GMT-7)


Probiotic
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Date Joined Mar 2007
Total Posts : 2832
   Posted 1/15/2009 9:48 AM (GMT -6)   
Hi Joy-- I'd be very interested in your experience "home brewing" this treatment. I have prestocked myself with enema bottles (fleet enemas that I will empty out clean out first, and use once each night then dispose) and reckon it is straightforward enough (fill her up and let it rip), but would appreciate your tips. Can I PM you?
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/15/2009 1:41 PM (GMT -6)   
Probiotic said...
Hi Joy-- I'd be very interested in your experience "home brewing" this treatment. I have prestocked myself with enema bottles (fleet enemas that I will empty out clean out first, and use once each night then dispose) and reckon it is straightforward enough (fill her up and let it rip), but would appreciate your tips. Can I PM you?


Hi Probiotic,

Here are the details:

I did the fecal transplantation during my second flare when I was having trouble tapering off Prednisone. Every time I reduced my dosage from 25mg to 20mg, I would bleed. I was desperate.

I didn't use that much poo. Young babies go very little.

As soon as my granddaughter had a bowl movement, I took the diaper (before any of the bacteria had a chance to die), scooped out the gooey poo and mixed it with a bit of warm water. I didn't get more than one or two syringe's worth. I put the mixture in a syringe that had a long, removable tip. I then put it up my butt.

The effect was immediate. It slowed down my having to go to the bathroom. I was still bleeding though.

I did the same thing the next time my granddaughter had a bowl movement (the next day).

Again, it slowed down my having to go to the bathroom. This time the bleeding also became less.

I did the same thing the next time my granddaughter had a bowl movement (the following day).

Again, it slowed down my having to go to the bathroom. This time the bleeding stopped.

I then got off of Prednisone as fast as I could. I got off of it a little too quickly. My joints made cracking noises, and the joints in my hands hurt. The bleeding did not return.

I read that fecal transplantation should be done about five times. My daughter was visiting; so I was able to do it only three times. Luckily, three was enough.

Please note. Some people have tried it with no success. I think there is a greater chance of success if you have a history of having taken antibiotics. It's really a boost that works much faster than Probiotics. If you find that Probiotics help, then fecal transplantation may help even more. However, there is no guarantee.

Yes. You can PM me if you like.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Post Edited (subdued) : 1/15/2009 12:45:45 PM (GMT-7)


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/15/2009 1:47 PM (GMT -6)   
Wow. After 14 years of trying everything, that one is new to me. Good work, that is extremely creative and makes complete sense.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/15/2009 6:22 PM (GMT -6)   
I read about it on the Internet. They are having great success rates with the procedure in Australia. I couldn't afford the treatment; so I did it myself.

I just found a link about it on Wikipedia:
http://en.wikipedia.org/wiki/Fecal_bacteriotherapy
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/15/2009 7:47 PM (GMT -6)   
Thanks for posting that, Joy! Good for you. My last big flare began after antibiotic use, so it sounds like it's worth a try. For others-- the published papers are available on Borody's Australian clinic website. If you search for combining terms such as "borody colitis", "borody fecal", etc the links should pop up. However, the sample sizes for the published study are tiny- around a dozen people or so. The donors were extensively screened for everything under the sun.... something I don't really have the time or money to do. But if you are sharing germs already with a donor- eg spouse, then you are in no home-brewing this- my opinion though.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 1:23 AM (GMT -6)   
Do people believe this to be a cure - "just" an effective way to fight a flare?
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