Hi Joy-- I'd be very interested in your experience "home brewing" this treatment. I have prestocked myself with enema bottles (fleet enemas that I will empty out clean out first, and use once each night then dispose) and reckon it is straightforward enough (fill her up and let it rip), but would appreciate your tips. Can I PM you?
Here are the details:
I did the fecal transplantation during my second flare when I was having trouble tapering off Prednisone. Every time I reduced my dosage from 25mg to 20mg, I would bleed. I was desperate.
I didn't use that much poo. Young babies go very little.
As soon as my granddaughter had a bowl movement, I took the diaper (before any of the bacteria had a chance to die), scooped out the gooey poo and mixed it with a bit of warm water. I didn't get more than one or two syringe's worth. I put the mixture in a syringe that had a long, removable tip. I then put it up my butt.
The effect was immediate. It slowed down my having to go to the bathroom. I was still bleeding though.
I did the same thing the next time my granddaughter had a bowl movement (the next day).
Again, it slowed down my having to go to the bathroom. This time the bleeding also became less.
I did the same thing the next time my granddaughter had a bowl movement (the following day).
Again, it slowed down my having to go to the bathroom. This time the bleeding stopped.
I then got off of Prednisone as fast as I could. I got off of it a little too quickly. My joints made cracking noises, and the joints in my hands hurt. The bleeding did not return.
I read that fecal transplantation should be done about
five times. My daughter was visiting; so I was able to do it only three times. Luckily, three was enough.
Please note. Some people have tried it with no success. I think there is a greater chance of success if you have a history of having taken antibiotics. It's really a boost that works much faster than Probiotics. If you find that Probiotics help, then fecal transplantation may help even more. However, there is no guarantee.
Yes. You can PM me if you like.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission
Lexapro (for stress)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose
Post Edited (subdued) : 1/15/2009 12:45:45 PM (GMT-7)