Crohns or colitis?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/12/2009 9:24 PM (GMT -6)   
I was diagnosed with UC in 2004. When I was diagnosed the GI told me it was Crohns and my dr called it colitis. Now my current GI isn't sure. Isn't there a test that defines which one? Either blood or tissue. This is starting to bother me, especially because they are thinking about removing my colon. Yikes...
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/12/2009 10:48 PM (GMT -6)   
I was just diagnosed in December and my GI would not confirm exactly what I had until he had done the colonoscopy, endoscopy and got the biopsies back from those 2 procedures. He said my colon and ileum were horribly inflamed and were littered with ulcers, so that combined with the biopsies, he determined it was UC.

I would think they would give you some answers before going the surgery route. My GI said he reserves the surgery route for those who just don't respond to the other options. A last resort kind of thing.

Good luck!


Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.

Post Edited (UC in Memphis) : 1/12/2009 9:54:55 PM (GMT-7)


MommaDi
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 1/12/2009 11:12 PM (GMT -6)   
This whole UC / Crohns ? is driving me nuts as well! I was originally diagnosed in 1999 - thought I could 'ignore it' and pretty much controlled my symptoms through diet or dealing with it. Then recently I've had a terrible flare-up. So back in to first fam practice dr....had my colonoscopy...tons of labs...she said it was Ulcerative colitis. That was a week ago. Never put me on meds & now tonight I went to her - she got GI on the phone & he said it looks more like Crohns. Wants to get a CT - took 4 more viles of blood - and now they want me on Entocort?(sp?), once a night x 4 wks & hoping I can get in to see him(GI) by then. WHAT DO I HAVE??? you can see my symptoms in posts from this past week. I'm so frustrated & just want to cry!!! So you are TOTALLY not alone!!! Seems like this whole disease is SO CONFUSING & FOREIGN to these dr's? I live in MinNesota & thought we have such good healthcare....what is going on!

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 1/12/2009 11:43 PM (GMT -6)   
bougie, i know its frustrating but the entocort works wonders! Hope it helps!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/12/2009 11:47 PM (GMT -6)   
Crohn's colitis is crohn's affecting the colon, col=colon, itis=inflammation so when there's inflammation in the colon it's referred to as colitis, but it's generally either crohn's colitis (because CD can affect the entire GI tract from mouth to anus) or ulcerative colitis (which is limited to the colon/rectom)....

The problem is these stupid doctors need to be more clear with their patience as to what exactly they are referring to when they throw the term colitis around.

Also keep in mind, it's not always easy to tell via colonoscopy and the stool and blood tests are not 100% either, but a general rule is, with CD the inflammation can go through the many layers of the intestinal lining, where as with UC it only affects the surface of the lining and with CD the inflammation is usually a skipped pattern with healthy tissue in between, where as with UC the entire area will be inflammed with no skipped patterns of healthy tissues.

There is also a 2% chance of one patient having both CD and UC, very rare, but it happens.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 1/13/2009 2:41 AM (GMT -6)   
pb, so colon biopsys are not definitive?? And how important is the sed rate?

----------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/13/2009 2:25 PM (GMT -6)   
Blood tests may be done including an erythocyte sedimentation rate (ESR or SED Rate), which may help in detecting inflammation, a test to determine the presence of the HLA-B27 genetic marker, and/or a C-reactive protein, which is another test that may help detect the presence of inflammation in then body. "May help" but not 100% accurate.

I would also tend to think that if biopsys were definitive then there wouldn't be so many that are misDX...it's the skipped patterns of inflammation and the the depth of the inflammation that is about the best guidline in differing between UC and CD, but of course a good GI will not those differences better than a not so good GI and it can still be kinda tricky with some patience otherwise I would think DX would be much easier to come to than it is for many.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 1/13/2009 10:16 PM (GMT -6)   
glaciergirl - Have you had a c-scope recently? That's probably the best way to check if it's crohn's or colitis, even though it's not 100%.
p.s. - I'm from Wisconsin originally, too (but I don't live there anymore). =)
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


piccolobellezza
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 1/13/2009 11:33 PM (GMT -6)   
I am dealing with the SAME thing right now, I feel your pain!
I am currently scheduled for step one of the j-pouch surgery on March 5th, but before that I'm having another full c-scope and a "capsule test." I'm assuming of course it has another, more technical name..but basically you swallow a tiny capsule that takes pictures of both your large and small intestines. Ever heard of it? Sounds a little absurd and I'm not 100% sure about the details, I have an appointment to discuss it more thoroughly.
21, female
Diagnosed September 2007
Remicade
Prednisone
Rowasa
Asacol
Protonix
Bentyl
Lomotil
Lasix
Zofran


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/13/2009 11:39 PM (GMT -6)   
piccolobellezza said...
I am dealing with the SAME thing right now, I feel your pain!
I am currently scheduled for step one of the j-pouch surgery on March 5th, but before that I'm having another full c-scope and a "capsule test." I'm assuming of course it has another, more technical name..but basically you swallow a tiny capsule that takes pictures of both your large and small intestines. Ever heard of it? Sounds a little absurd and I'm not 100% sure about the details, I have an appointment to discuss it more thoroughly.

The Pillcam?  I have heard of it, just haven't had it done to me.
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 8:48 AM (GMT -6)
There are a total of 3,006,026 posts in 329,292 threads.
View Active Threads


Who's Online
This forum has 161820 registered members. Please welcome our newest member, Dogsitter2.
271 Guest(s), 9 Registered Member(s) are currently online.  Details
mirowpl, Startech, mattamx, BossJ, Bob in Elkridge, ks1905, Szabo246, Dogsitter2, k07