Well, I'd say my story goes back somewhere between 1-2 years ago. I noticed I didn't have any "hard stools" anymore. But since I hated waiting on doctors and definitely didn't want to discuss this problem with them, I just "let it ride" till I had what I see people on this forum refer to as "accidents". One "accident" in particular changed my mind immediatley and sent me to my doctor. I was in school, last period of the day 20 mins of class left, can't use the RR or get water or go in the halls during the last 10 mins of class. There was already too many kids already waiting for the RR (all of them complete BS just wanting to get away from the teacher), so I was forced to try to hold it. Well, I tried and never thought it could happen but I had an accident then and there. I thank god no one noticed as I had to sit there in complete embarrassment knowing that I was unable to control my ass..After the bell rung I acted as I was finishing up work and when everyone was out I unsuspectingly strapped a jacket around my waste and walked to the RR in shame.
A month later, I had a colon oskify (sp. check) which diagnosed me with UC. In the last few months I've been on Prednisone, Asacol, enemas, and now 6MP. None have really made me feel how I used to and the fewest # a day has been 3-4 which I find excessive, but not to what I'm getting most of the time, 6-8 a day. I saw my doctor today and was faced with some more options and they all suck: up to 100mg of 6MP and 12 Asacol a day, try Remacaid, or have surgery to remove my colon. Now I would be all down for the surgery had my doctor told me it would only get me down to a proposterous 5 a day. F that crap. So today we upped the 6MP and we'll see what happens.
This disease is so poorly timed in my life, it really pisses me off. I'm currently finishing up high school, and about
to head into college. What bothers me the most? I feel I can't even take a girl out anywhere because I'm afraid I can't make it even a few hours, so I have avoided that and it sucks. Also, and I know I'll get criticism for this but I liked to go out and party, chill, hang with friends. And now that I see 6MP says "don't take with alcohol", I kinda can't go out with my friends anymore (but I have anyways, I just didn't take 6MP when I knew I was going to be drinking). Now I'm no daily drinker but I like to party like kids do on the weekend. I feel like I'm getting most everything I live for taken away from me, and there's no compromise. And also I find that UC is affecting my schoolwork as well, I was on the road to a 75% scholarship all I had left was to retain a 3.0GPA unweighted and now I'm a little under the line, I think it may be because I spend time in class thinking if I'm gonna have an "outbreak" and if so where can I go, will I make it in time, what do I do if I don't? So I find this disease very aggravating as it heavily affecting my life. (such a perfect time)
Now the questions:
How bad is it to drink alcohol on 6MP? I usually stick to mixed drinks Vodka and beer.
Next, I've been told different things on the surgery, if there is anyone my age (17) out there that has had the surgery, how was it and was it worth it? And mainly did you have to use "the bag", how did you deal with that in situations? Anyone ever had the procedure done in 1 visit with no infections (my doctors told me that was the problem with the single surgery)?
What medicine out there doesn't affect you with alcohol?
And lastly people my age, how did UC affect you with women?
Thanks for anyone who took the time to read and may have answers to my questions, I thank you very much and I'm glad there's a community out here.
Jeff- 17- UC 7/08
Post Edited (IHaveUC) : 1/12/2009 9:30:11 PM (GMT-7)