Refusing to take medication for anything that may require it is very very dangerous... ...You risk permanent injury, harm to your family and others, hospitalization, even death by making such a choice.
According to my GI (who I saw for my second flare), people who have Colitis on average have a smaller chance of getting a flare if they take maintenance medicine, and that is it. He can't guarantee anything. He can't guarantee that I won't flare if I take maintenance medicine or that I will flare if I don't take it.
Of course everything is individual when it comes to this disease. For me:
1. Maintenance medication is not a guarantee that I won't get another flare.
2. Taking maintenance medicine has risks. It can destroy the kidneys.
3. There are other things that work better than maintenance medicine for me. I took Colazal when I first got my third, and latest, flare. It did nothing. I then ate anti-inflammatory foods. The anti-inflammatory foods helped immensely. So did Probiotics mixed with water put up the butt. Why take something if it doesn't work and harms the body?
4. My colon is in perfect health when I'm not flaring. My GI said my colon looked remarkable about
a couple of weeks after the second flare. He said that what had looked like dog meat three months ago was now 98% healed. I plan to get another colonoscopy in a few months to see how my colon looks after this flare, which wasn't nearly as bad as the second flare in which I had to take Prednisone. (I did not know back then what natural methods worked and did not work for me. Can you believe I was drinking a quart of juice a day, and I'm fructose intolerant?)
5. I get warning signs before getting a flare (my BMs get smaller). I had warnings before getting my third flare. I was on antibiotics on and off for a year prior to the flare. My BMs were getting smaller as a result. And then I started becoming lenient with my diet. I was occasionally drinking HFCS beverages. I am now taking cranberry supplements, and I'm avoiding HFCS completely.
6. It might be more difficult for me to figure out what natural methods work and don't work if I'm taking maintenance medicine. It might be more difficult to notice any warning signs.
Of course, everyone is different. This disease is individual. Some of us do better without maintenance medicine; others may do better with it.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission
Lexapro (for stress)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose
Post Edited (subdued) : 1/13/2009 4:13:18 PM (GMT-7)