Cortifoam, I have a question!

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spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 1/13/2009 10:00 AM (GMT -6)   
Hi guys, I started it last night (scarred of being on steroids cry )
How long do I have to do it? I'm about to quite today...And I heard that you can't just stop doing it...is it right?
30 years old.
Diagnosed with left-sided UC on Sept 08 (about 45-50 cm). Never has been in remission.
Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 sup. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi.
Digestive Enzymes (helps a lot)
 
***I'm not sick with UC, it's UC sick with me!***


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/13/2009 10:34 AM (GMT -6)   
What directions did your doctor give you? Standard is nightly for 2 weeks then tapering slowly to twice per week...rectal steriods are NOT the same thing as taking oral pred so don't sweat it so much...there are some here who used cortifoam daily for a year without issue...I happen to have found cortifoam quite helpful and I hope it helps you...Stick with it and follow your Dr's instructions.
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

Post Edited (bbc) : 1/13/2009 8:39:18 AM (GMT-7)


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 1/13/2009 10:36 AM (GMT -6)   
yes, two weeks, but she didn't tell me that I have to slowly get off from it :-(
Does this foam works?


30 years old.
Diagnosed with left-sided UC on Sept 08 (about 45-50 cm). Never has been in remission.
Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 sup. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi.
Digestive Enzymes (helps a lot)
 
***I'm not sick with UC, it's UC sick with me!***


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/13/2009 10:40 AM (GMT -6)   
Read my response above and get better soon
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 1/13/2009 11:43 AM (GMT -6)   
I did not have to tapper from it at all. It is not like the oral stuff. However, it did not work at all for me when I was in a bad flare. Hope it works for you - I know it does wonders for some people!
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 1/13/2009 12:13 PM (GMT -6)   
2 or 3 weeks of daily application is the usual regimen for Cortifoam. It is only a 10% steroid med-- so try to calm down about it. Compared to Prednisone, it's a piece of cake. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/13/2009 2:02 PM (GMT -6)   

How is the enema going?  I am to start the same enemas this Friday.  I have a prescription for 3 weeks - NP and doctor said it should show help in a few days and maybe I won't need it daily for over 2 weeks.  I am to call for instructions at 2 weeks.

Good luck - hope it works for both of us!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/13/2009 2:06 PM (GMT -6)   
Don't be afraid of the steroid enema foam, because you're taking it rectally and not orally it doesn't get into your blood system and cause side effects the way prednisone does...I've used cortifoam for as long as one full yr BEFORE tapering off of it with no issues what so ever...and it varies as to how long it will clear up the flare in the rectom, the more severe the flare is, the longer it will take but personally I've never found anything that touches my proctitis the way cortifoa does.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/13/2009 2:11 PM (GMT -6)   

Hope this works as I can't take any mesalamine rectal meds and doctor "mentioned" predisone pills next - a BURST he said.  I sure hope I can avoid that.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 1/13/2009 2:26 PM (GMT -6)   
I took a steroid foam for 2 weeks (prescribed by a doc when my wasn't available), and it worked well.

I personally do very well...and much prefer..the 5-ASA enemas, but I wouldn't hesitate to use them if I couldn't do the Salofalk.

Some do have some side effects if they're extremely sensitive to steroids...but you have to ease up your anxiety and try to look at the big picture as to why you're on them.

Keep us posted as to how you're doing.
quincy
*Heather* Status..Asacol  (3 twice daily); flaring since Dec 22, now tapered to every 3rd nite as of Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/13/2009 2:27 PM (GMT -6)   
Cortifoam has been the most helpful and problem free of any treatment i have ever taken.I would be lost without it.


  



       
 


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 1/13/2009 2:29 PM (GMT -6)   
Thenk you everyone..I feel much better just from your comments :-) Hopefuly foam will work too!
30 years old.
Diagnosed with left-sided UC on Sept 08 (about 45-50 cm). Never has been in remission.
Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 sup. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi.
Digestive Enzymes (helps a lot)
 
***I'm not sick with UC, it's UC sick with me!***


Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 1/13/2009 2:55 PM (GMT -6)   
one more thought. I also avoided steroids for a number of years - probably about 9 years - until this year when i was preganant, flaring , the mesalamine was not working and I felt had no choice but to control my flare (bad flares can cause pre-term birth). I started with the cortifoam and it works very well - I wish I had not been so fearful last year when I had an aweful flare for months and stubbornly refused steroids. Now I have been on for approx 2 months. I tapered back slightly and have just tried another small taper. It is my understanding with the topical steroids the reason you need to taper is not because you need to give your adrenal glands time to start functioning properly again as with systemic steriods but rather because if you taper too quickly you may flare again. I understand your fears about steroids, I have them too. But as others have said, topicals are a piece of cake compared tp some of the other drugs and compared to a bad flare. jo

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/13/2009 9:49 PM (GMT -6)   

I have used the Cortifoam several times for weeks before without a single side effect - or a single sign of benefit, my inflammation is further up the left side and requires something that will go up there. Right now, Cortenema is working miracles after just 5 days.

Good luck with the foam and I would say do not worry about side effects.


23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder
  • Culturelle probiotic
  • Pentasa
  • Cortenema


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/13/2009 10:11 PM (GMT -6)   

Still not sure the difference between...

Proctofoam, cortifoam, Cortenema, and hydrocodone enema (that is the one I will be trying)  Have been using proctofoam. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/14/2009 9:00 PM (GMT -6)   
Elaine, from my experience cortifoam and proctifoam are the same - a mild cortisone foam for proctitis. Cortenema, which I am taking now, is a stronger cortisone med and it is inserted deeper into the sigmoid and further up the left side of the colon through a different type of applicator. Hydrocodone I don't know...
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder
  • Culturelle probiotic
  • Pentasa
  • Cortenema


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 1/14/2009 9:55 PM (GMT -6)   
Proctofoam is 1% steroid (main use is to treat hemmies), Cortifoam is 10% steroid & mainly used to treat IBD proctitis. Cortenema is ca. 50% steroid, can reach the sigmoid colon, & treat UC in descending colon thru systemic effect. Anything higher up requires oral med. Period. Hydrocodone I've never heard of. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/14/2009 10:02 PM (GMT -6)   

Sorry I had the name wrong - it is generic - this is it...thanks for the info...

 

GENERIC NAME: HYDROCORTISONE ENEMA - RECTAL (hi-dro-KOR-tih-sown)

BRAND NAME(S): Cortenema

 

I will be starting it Friday night.  Wish me luck!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 1/14/2009 10:12 PM (GMT -6)   
Good luck, Elaine. When I used Cortenemas (no generic available then) they worked very quickly against severe proctosigmoiditis. Be sure to use as directed. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/14/2009 10:23 PM (GMT -6)   
Good luck...they should do the trick!
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/14/2009 11:01 PM (GMT -6)   
Cortenema is easy to use and will give effects within days.

23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder
  • Culturelle probiotic
  • Pentasa
  • Cortenema

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