Med change... any thoughts?

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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/13/2009 10:12 AM (GMT -6)   
K  saw GI this morning and good news is he thinks I'm doing well enough that for now he doesn't want to talk remicade.  But he changed some of my meds around and I wanted you all's input.
Went from Balsalazide (generic Colazal ) 9 a day to Lialda 4 a day.  He thinks these might work better for me?  Gave me 3 weeks of samples to try becaue he wasn't sure if my insurance would cover them.  Your thoughts?  Is Lialda better?
Complained of gut gurgles and urgency ( but not having anything come out )(almost spasms with nothing)  He proscribed Pamine Forte morning and night.   ??????
Complained of anxiety when I get in the truck for a ride worrying I'll have to go and not make it, or being at a job site with no bathroom.  He proscribed Lomotil - 2 an hour before  Or Imodium - 1 20 minutes before.  but these are not to be taken daily, taken sparingly and only when needed for peace of mind.  ????
 
Over all it was a good visit, he listened he talked,   Thanks to you on here I had enough questions I kept him busy answering for 45 minutes.  LOL.  And he did real well on not rushing. I was pleased.  I know thats a long time.  ANd I know from the waiting room there were others waiting.  But he didn't rush.  He patiently answered all questions and even asked quite a few of his own. 
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 1/13/2009 10:39 AM (GMT -6)   
Hi - I use Lialda and have good results. I am in Texas and my insurance does cover it - thank God! It is a REALLY expensive drug without insurance..
It will not pull me out of a bad flare but for maintenance it has been very good. It is the only thing that I have ever taken orally besides Pred though so I don't have anything to compare it too... I have taken Lomotil also and it really worked to much better than Imodium. You cannot take it for an extended amount of time though because it is considered a narcotic.
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 1/13/2009 11:10 AM (GMT -6)   
If you spend a lot of time in a truck, you should probably exchange info with Sodbuster19. Good luck with Lialda. As we said in another recent thread, balsalazide, the generic of Colazal, does not work for many of us, but the original med definitely improves our condition. Re Immodium & Lomotil: when a UCer has urgency, it means he/she needs to reduce inflammation in the rectum. (Those meds do not do that!) It is less chemically taxing to your body to wear disposable protective undergarments when you have to be out & about during a flare-- & just take the meds that fight your inflammation. Good luck! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/13/2009 11:15 AM (GMT -6)   
not so much time in a truck, although I do spend quite a bit some days. But I am a horseshoer. SO alot of barns don't have bathrooms. LOL. Till I drive there work on the horses and drive home I may have been out for 4 hours or so. Now I do follow the rule to never pass a gas station or bathroom without self examination, but I think this just makes it worse. Worrying about it. 99% of the time... I get to a bathroom and there is nothing to come out. I think thats why he proscribed lomotil or imodium... just for my peace of mind. LOL. Maybe kind of a mind trick on myself. If the pill is in there I won't have to go? I don't know.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/13/2009 11:28 AM (GMT -6)   
Oh and btw.... all my labs came back good. blood counts and everything. Liver functions, kidney functions. I didn't get the numbers off him but he said they were all easily in the good range, no problems there.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/13/2009 11:46 AM (GMT -6)   
I have a 5 gallon bucket in my truck with some trash bags. I've framed up a ghetto toliet seat out of 2x4s that fits on top of the bucket. Sometimes it is easier to find a bit of privacy on a jobsite than it is to find a bathroom.

Carrying a 5 gal bucket into the woods or a dark secluded corner is alot easier to explain than the frantic 50 yeard shuffle with the buttcheeks cinched tight!

I've been stuck in traffic or in transit while flaring and the anxiety has broke me into a sweat more than once knowing I have to go. Take some deep beaths and try and talk yourself out of it. Practice enough and you can actually talk/calm yourself out of a BM with nothing more than a complaining gurgle from your guts.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/13/2009 1:12 PM (GMT -6)   
I'm glad you had a good appt. Did you talk to him about the spinach/sunflower diet? If so, what did he have to say?

I know that the anxiety of worrying about finding a bathroom really fuels the brain which in turn tells your colon that it's time to "go". I would really think about trying anti-anxiety meds. No one should have to live through that anxious feeling that we get from worrying about finding a bathroom. I just started taking Xanax a few months ago. I only take it a few times a week and it works wonders for me. I can now leave my house without a thought in my mind about finding a bathroom. It makes me feel completey calm and normal.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/13/2009 6:24 PM (GMT -6)   
talked to him about spinach/sunflower... he was skeptical, but open. Said ther has been no research done, but if it helps. It helps. Basically show him the research. I said it wasn't my diet to promote, but I had and will keep journals.... he was welcome to see them. as long as it helps someone else. but he definately didn't dismiss it out of hand. He also warned against, Mag supplements. Thought they would be to much. His analogy was... MAGNESIUM>>>Milk Of Magnisia... MAG. But when I informed him it wasn't supplements, but natural spinach mag... he was okay with it... even open to it. Said there's alot of research yet to be done and who know what might help or be the key. But he still wants to see research before he would recommend it.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 

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