Best day in RECENT forever.... ????

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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/14/2009 6:26 PM (GMT -6)   
Okay... am confused.  How quickly do drugs work?  Had my best day in I don't know how long.  2 BM's this morning... 1 parially formed, 1 loose but not D.   Nothing the rest of the day... not even urgency. not even anxiety. 
Doc switched me from colazal to lialda. today was first day.  Took my four lialda this morning and went to work.  I really doubt it can work this fast???    Have also been gluten free for well over a month.  Been doing the spinach sunflower regime for almost a month.  Is it the diets working or the Lialda that fast.  I also switched Probiotics about four days ago? Maybe it was this?  Or maybe this was just a fluke and tomorrow will be hell?  Opinions???
 
Doc also put me on Pamine Forte... for my gut gurgles and such.. maybe this is it?
 
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/14/2009 8:39 PM (GMT -6)   
Whatever it is, YAY! I know how exciting that is, what a relief.
When I have an especially good gut day, my husband says, that's wonderful pretty lady. So that's wonderful, Unclebubba!

When I started 5-ASA, it worked for me immediately. I was being briefed about surgery one day, but the day I started taking the drug under a special protocol witht he FDA, and I was hugely better.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 1/14/2009 8:44 PM (GMT -6)   

Enjoy everyday that you can get. However, it sounds like you are getting better. I have never had a day that good and then go back to a bad flare. Perhaps all of the parts of the regimen are finally working.

Good luck


Jackie, 43
Pancolitis, DX October 06

Lexapro, colazal 3x3, Synthroid, Protonix, 6MP (75 mg)
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16732
   Posted 1/14/2009 9:03 PM (GMT -6)   
Whatever it is, congratulations on feeling better! Let's hope this is the first of many healthy days.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/15/2009 12:08 AM (GMT -6)   
It could very well be the combination of all of it...just stick with what you're doing and keep fingers crossed that things will continue to improve for you.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


UC in Memphis
Regular Member


Date Joined Jan 2009
Total Posts : 67
   Posted 1/15/2009 12:09 AM (GMT -6)   
I know the Prednisone and Lialda helped me immediately. Not sure if it was the Pred or the Lialda though (or the combo). I am still taking both at the moment (tapering the Pred). GI said I would be keeping with the Lialda though after the Pred is done. Started this regimine Christmas Eve and only had a 2 day flare since then. The last few days have been MUCH better (similar to your day today).
Male, 30
Dx:Moderate-severe UC 12/24/08
Lifelong GI issues including an intesusception at age 4
Current meds: Lialda; Prevacid; Prednisone 12/24-01/05 (40mg) 01/06-present (20mg) 
 
Hoping to never have to resort to rectal meds due to traumatic enemas as a child.


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 1/15/2009 10:06 AM (GMT -6)   
Salofalk works for me within 24 hours. Could be the combination of the two.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/15/2009 10:27 AM (GMT -6)   
You have too many variables. No way of knowing which is helping or if it's a combination of all of them. I agree you should stay the course and hope it continues.

The only med I've ever taken that gave me immediate and total improvement was prednisone.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 1/16/2009 11:10 AM (GMT -6)   
 
Awesome - and yes, I'd do like the other posters suggested and enjoy any good day you can get!!
 
I sometimes have that happen when I change meds.  When I was first diagnosed 2 years ago I was having probably 10-20 BM's a day.  I had my colonoscopy on a Monday and finally got on pred and Asacol that same day.  Tuesday I slept through the night without a BM and actually went the better part of the day without one either.  Very exciting. 
 
Now when I go on pred or switch drugs I usually have a few good days before I slip back a step or two but then seem to improve at a fairly quick pace.  This last time, I felt better within a day or two but wasn't completely back to normal for 1-2 weeks, and honestly I can't complain about that either.   
 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 2 pills/3 times a day. 
Flaring and back on Prednisone.  Big sigh . . . . . .


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 1/16/2009 11:19 AM (GMT -6)   
maybe you didn't have a BM after the colonoscopy because the prep for it cleaned all the crap out of your bowels?

Post Edited (Cfromutah) : 1/16/2009 9:40:09 AM (GMT-7)


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/16/2009 11:44 AM (GMT -6)   
Didn't have a colonoscopy... just a GI visit. Unless that was for someonelse's post I missed. Either way I'm keepin up with the spinach because I believe that is what got me most if not all the way here. I would love to believe that eventually I can get off all meds and just control this with diet. My GI is skeptical about this... but he is open to us trying it down the road a little more. For now I agree I'm going to run both regimes together since this seems to be working. Day three of normalcy. Half a can a day is workin also... no more red face.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 1/16/2009 11:53 AM (GMT -6)   
I was talking to the person above my last post. Glad to hear your doing good! I believe you can become med free, I am and my UC was severe.

unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/16/2009 11:56 AM (GMT -6)   
thanks... now if my doc would jsut follow up and read this thread and start to do some research himself on this he might be able to help even more people.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 1/16/2009 12:03 PM (GMT -6)   
yeah but they want you to keep coming back to get your prescriptions and such. So they dont like to go the natural route.

Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 1/16/2009 3:53 PM (GMT -6)   
 
"maybe you didn't have a BM after the colonoscopy because the prep for it cleaned all the crap out of your bowels?"
 
It could of been but then again you know how it is with this silly disease, an empty bowel doesn't normally stop the BM's, it just keeps you running back for more.  smilewinkgrin


 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 2 pills/3 times a day. 
Flaring and back on Prednisone.  Big sigh . . . . . .


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 1/17/2009 2:17 AM (GMT -6)   
Howright said...
 
"maybe you didn't have a BM after the colonoscopy because the prep for it cleaned all the crap out of your bowels?"
 
It could of been but then again you know how it is with this silly disease, an empty bowel doesn't normally stop the BM's, it just keeps you running back for more.  smilewinkgrin

Could be the purge/c-scope/meds or it could be low in the rectum inflammation. 
 
If you haven't consumed too much food after the c-scope, it probably will take a tad longer for bms to happen.
 
q
*Heather* Status..Asacol  (3 twice daily); flaring /Dec 22, tapered to every 3rd nite/ Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 1/17/2009 2:19 AM (GMT -6)   
unclebubba...I agree with princesa that there are many variables happening...it's good you're feeling better.

Hope your pred taper goes well.

q
*Heather* Status..Asacol  (3 twice daily); flaring /Dec 22, tapered to every 3rd nite/ Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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