Fatigued all the time!!!!

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Regular Member

Date Joined Oct 2008
Total Posts : 62
   Posted 1/15/2009 3:39 PM (GMT -6)   
For about the last 4 months I have had a very difficult time hauling myself out of bed in the morning. And I just don't have that bounce in my step anymore.
I was diagnosed with pancolitis in Oct 08. I was having a severe flare from May 08 until Nov 08 and now I've been having a mild flare since I tapered off the pred in Nov (3-6 bm's a day with some blood - as well as some colon pain).
I lost a lot of sleep while I was going through a severe flare because I was having about 7 or 8 nocturnal BM's a night. But now I can sleep for 10-12 hours a night and still not want to get up for the day!!! 8 hours of sleep should be good enough, but it's not and if I get any less then 8 I am really screwed!!!!
Any ideas??
23 years old
Moderate-Severe Pancolitis
Diagnosed October 2008
12 Asacol (3 pills 4 times a day)
Entocort enemas nightly since Dec 2008
Daily Multi-Vitamins
Daily Fibre intake - 1 tbsp Metamucil
Protec Probiotics - I pill at bedtime

Regular Member

Date Joined Apr 2008
Total Posts : 460
   Posted 1/15/2009 3:55 PM (GMT -6)   
Is your iron low? You may need an iron supplement (more than what is in your daily vitamin). I have days where I'm really tired too but it doesn't last months like what you've been going through.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano

Forum Moderator

Date Joined Dec 2008
Total Posts : 16712
   Posted 1/15/2009 4:15 PM (GMT -6)   
I found out I am anemic. I was totally drained of energy all the time. I also got winded extremely quickly. I have been taking iron pills for a few weeks and I am feeling a lot better. I am definitely not 100% but it is an improvement. I don't take the dose on the pill bottle, I take the amount my doctor recommends which is way more than the regular dose. I have heard that only a small % is absorbed so you have to take quite a bit for it to be effective. You should get checked out.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)

Regular Member

Date Joined Oct 2008
Total Posts : 62
   Posted 1/15/2009 4:18 PM (GMT -6)   
I have to walk up 2 flights of stairs to get to work and find that I get winded from that quite easily too! I just thought i was lazy LOL!

I will go to my doc and get checked out! Thanks for th tip!
23 years old
Moderate-Severe Pancolitis
Diagnosed October 2008
12 Asacol (3 pills 4 times a day)
Entocort enemas nightly since Dec 2008
Daily Multi-Vitamins
Daily Fibre intake - 1 tbsp Metamucil
Protec Probiotics - I pill at bedtime

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 1/15/2009 7:26 PM (GMT -6)   
I can relate. I totally get out of breath when I exercise. I tried taking iron pills. They make me nauseous and crampy and give me diarrhea.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 1/15/2009 9:21 PM (GMT -6)   
You should first check to see if you're anemic. But I think just having a disease that's fighting your body makes you more fatigued. I haven't been anemic in over a year, yet I still have fatigue issues like you do. I'm exhausted even after 10 hours of sleep.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (5 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 10 mg Prozac, VSL #3

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 1/15/2009 11:54 PM (GMT -6)   

I've gotten progressively more exhausted the longer I've had UC. Prediagnosis I lifted weights, ran, biked, and spent every weekend hiking and backpacking. Now, on a good day, I can make it through the day without taking a nap. If I don't stay active at work, I'll fall asleep sitting in a meeting, or even just sitting at the computer for a few minutes. I have noticed that as I'm getting over my flare, my energy level is returning, but nowhere close to how it was. I'm hopeful that as I continue to heal my drive will keep growing so that I don't have the urge to sleep all the time. I don't expect to get back to how I used to be, but I'm hoping I'll get close!

36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, Wellbutrin XL, fluoxetine, and vit B-12.
Spinach/sunflower seed diet for over two months with positive results!

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 1/16/2009 10:12 AM (GMT -6)   
If you're anemic, ask about iron I.V.s... they'll restore your levels and help you feel better faster than oral supplements.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5189
   Posted 1/17/2009 12:23 AM (GMT -6)   
The gastro or PCP should be checking your blood every few months to be sure you're not deficient in iron, calcium, vit D, etc. But, as Comedy Dork writes, UC is a fatiguing condition. Many of us feel tired a lot of the time even when our test results are good. I could have slept 22 of 24 hours every day during Christmas week-- that's how wiped out I felt. Sometimes I envy pet cats because they can snooze away hours & no one minds! Hang in there & take good care of yourself. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

New Member

Date Joined Jan 2009
Total Posts : 11
   Posted 1/18/2009 4:15 PM (GMT -6)   
I used to be totally exhausted and fatigued also. Not anymore, so I know you can turn things around. I did. I was also very sick with ulcerative colitis and I turned that around as well. Let me know if you're interested in hearing the details.
I have 40 years of personal experience with Ulcerative Colitis.
Contact me via e-mail or MSN. Look at my profile for contact info.

Regular Member

Date Joined Aug 2008
Total Posts : 469
   Posted 1/19/2009 7:56 AM (GMT -6)   
When I was in the worst part of my flare (last summer) it was all I could do to wash a sink of dishes! Now, I don't feel as fatigued during the day, but I do sleep 10 - 12 hours at night.

Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
Canasa 2x a day
Multi Enzyme
Mega Probiotic
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin

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