Probiotics Survey

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subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/16/2009 3:22 AM (GMT -6)   
I only just discovered Probiotics supplements with my third and last flare. My GI did not mention them to me when I had my second flare about two years ago.

How long have you been taking Probiotics? Do you feel they are making a difference?
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/16/2009 6:03 AM (GMT -6)   
I took Garden Of Life probiotics for a while - seemed to make a difference at first. I am using Cultrelle right now - I think I like GOL better, and may switch back.
I have taken probiotics on / and / off for a few years now.... I'd say that they make enough difference for me to keep using them.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/16/2009 7:10 AM (GMT -6)   
I have been on Pro-Bio for about 2 years now. I think it makes a world of difference. It doesn't really stop the symptoms for me but it.........I dunno how to describe it - like my gut is more settled maybe? Like I feel something is "right"? It definately has helped with that liquid gooey feeling you get in your gut when when it's unsettled.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16036
   Posted 1/16/2009 7:42 AM (GMT -6)   
I go through phases where I take them and where I don't. To be honest, I don't notice much difference.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/16/2009 7:53 AM (GMT -6)   

I take Align and really didn't think they helped much until I ran out.  I bought some after third day without - keeps my stool solid, formed, even with blood that is much better to me.  No D while taking it.  Been on it about 8 months since doctor gave me samples.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/16/2009 8:44 AM (GMT -6)   
I took Cultrelle for a while but I don't think I stayed on it long enough so I am thinking about starting back up
The stuff I really want to try is too expensive - I forgot the name. It would be over $100 a month so I cant do it right now. I feel so guilty that all our extra money goes to my health and I can't even work right now
Jessica 27/F
Remicade
Entorcort 9ml
Lialda 2.4GM
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/16/2009 8:54 AM (GMT -6)   
I started taking Custom Probiotics' six strain powdered blend in the early days when I was extremely ill. I told the owner of the company if his probiotics would keep me from a third annual trip to the ER in early spring, I'd write a testimonial for him. They did; I did and I've been using probiotics ever since. In addition to Custom Probiotics, I've also had good luck with Natren's products and with Dr. Mercola's probiotic.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/16/2009 10:50 AM (GMT -6)   
started out on GNC's basic probitioc. then about a week or so ago on the advice of my Pharm, i switched to florajen3. Can't really comment on how much they help because I started takin them almost as soon as I was diagnosed. At same time doc was putting me on meds and Pred. To scared to stop takin them at this point to test them out. Will attempt that experiment at a later date. All I can say is my doc says they can't hurt and my pharm believes in them. And no he's not trying to just sell me drugs because the one he recomended is carried by the old pharmacy he used to work at, his current pharmacy doesn't even carry them. I had to go to the old pharmacy to buy them. He didn't get anything for recomending this particular one.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/16/2009 12:00 PM (GMT -6)   
I take Renew Life Ultimate Flora critical care, Nature's way L. Reuteri, Bifidus, Jarrow S. Boulardii. It totals about 60-80 billion a day. I ramp up when I begin to flare.

I use probiotics as a preventative supp. Been using them for many years. Often the effects are not immediate and noticeable, but they tend to have a cumulative effect. When flaring the efficiency goes down of the supp due to high transit time and frequent BM's not allowing them to colonize the GI tract properly.

I take them with a fiber supp to slow down passage and give them something to snack on.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/16/2009 1:13 PM (GMT -6)   
Primadophilus Reuteri made by natures way for the last 4 ys and yes they've helped with cutting BM's back, if they didn't I wouldn't likely be taking them 4 yrs later and continuing.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 1/16/2009 2:45 PM (GMT -6)   
     Not sure if it is the probiotics, the meds or the combination of them all but I am in remission since Nov 1st.  My last flare was horrible, lasted for seven months.  This last hospitalization was when my GI doctor put me on the probiotics.  I don't think he knew much about them before this.  They gave me Flora Q in the hospital but they are quite pricey.  My nutritionist recommended Powerdolphilus by Country Life.  I order them over the net.   A LOT cheaper than the flora Q.  I take two per day.  I also take a fish oil capsule daily.  Not sure if that helps but I, like Sherry, feel better in my gut.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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