Most promising "Food religions" ??

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Qvist
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Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 10:54 AM (GMT -6)   
Been following the threads in here for a while. While it is very informative, it is also confusing to a certain degree.
 
I recognise UC have many variants and this different Flare-killers/triggers
 
However - just wondering what are the most commonly accepted diets (for those it actually work for) ?
1. SCD Diet
2. Raw eaters (raw fruit and vegetables)
3. Anti-fungal
4. Spinach + sunflower (and eat whatever besides that, but sugar)
5. Gluten-free diet
6. Corn, pasta, rice free diet
 
Similarities seem to be that all (most):
- Allow lean meat - however Anti-fungal doesn't seem to mind the fast
- Allow vegetables
 
- Forbid (or limit) Sugar
- Forbid (or limit) Alcohol
- Forbid (or limit) Corn/bread/carbohydrates - except Glutenfree that allow rice, etc.
 
May many similarities, but the biggest differentiator seems to be the bread?
 

unclebubba
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Date Joined Dec 2008
Total Posts : 510
   Posted 1/16/2009 10:57 AM (GMT -6)   
Am number 4 and 5 on your list and its working for me. I think that was your question.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Cfromutah
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Date Joined Mar 2007
Total Posts : 369
   Posted 1/16/2009 11:46 AM (GMT -6)   
#4 for me

ucwarrior
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Date Joined Jul 2008
Total Posts : 298
   Posted 1/16/2009 12:02 PM (GMT -6)   
I take everything from 1-6 that has worked. I have tried them all and took a little from each. I've never had any problems with gluten so I just limit refined carbs as much as possible and uncooked doughy breadstuffs.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Qvist
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Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 12:05 PM (GMT -6)   
ucwarrior said...
I take everything from 1-6 that has worked. I have tried them all and took a little from each. I've never had any problems with gluten so I just limit refined carbs as much as possible and uncooked doughy breadstuffs.

Thanks for your answers. Once again - being not English/American - I have a little language question. What is "uncooked doughy breadstuffs" ??

mudua
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Date Joined Apr 2007
Total Posts : 459
   Posted 1/16/2009 12:09 PM (GMT -6)   
Corn is worse than poison to me

ucwarrior
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Date Joined Jul 2008
Total Posts : 298
   Posted 1/16/2009 12:12 PM (GMT -6)   
Usually breads that have that uncooked dough taste when you bite into them. I know the yeast has not been killed off completely and don't want to eat them. I try to limit and/or avoid most fermented breads that use yeast to rise them.

I like to stick to breads and buttermilk mixes that use levening agents like baking powder for the texture rather than yeast.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 1/16/2009 1:14 PM (GMT -6)   
Don't let yourself be paralyzed by options and conflicting information. I see you've posted alot of threads on this lately, sometimes asking the same questions. Some of these are actually subsets of the others or are overlapping. SCD is a very strict form of antifungal diet. It also is gluten free.

You've done the smart thing... you've compared the approaches and have found the common thread among them. That should be your base. From there, you can experiment with eliminating and adding foods back in and see what works for you personally.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


subdued
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Date Joined Dec 2008
Total Posts : 3231
   Posted 1/16/2009 1:33 PM (GMT -6)   
Anti-inflammatory diet (which includes lots of spinach).
Avoid pro-inflammatory foods.
Avoid foods that bother my colon (Foods with HFCS in them or foods high in fructose. Artificial sweeteners.)
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 3:22 PM (GMT -6)   
princesa said...
Don't let yourself be paralyzed by options and conflicting information. I see you've posted alot of threads on this lately, sometimes asking the same questions. Some of these are actually subsets of the others or are overlapping. SCD is a very strict form of antifungal diet. It also is gluten free.

You've done the smart thing... you've compared the approaches and have found the common thread among them. That should be your base. From there, you can experiment with eliminating and adding foods back in and see what works for you personally.

Yes, I know I've asked a lot lately, trying to figure this out.
My problem is that I don't really react directly to anything it seems. I can about eating everything for like 6-12 months, even sugar and stuff. But then suddenly I flare can I see in the toilet. No stomach reactions etc. to reveal it though - just mush or a little blood.
So far..... my fear of course being that it will worsen in the future!!

Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 1/16/2009 3:42 PM (GMT -6)   
maybe your flares aren't in relation to what you are eating??? If you find you can eat anything for months on end with no problems, then suddenly flare-up out of the blue, what makes you think food is related to your UC? Again, some perspective- for every person on here who swears there is a food correlation with their UC, there are just as many of us who swear that food is unrelated.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/16/2009 4:10 PM (GMT -6)   
I can see where u are coming from with the assumption that it may be diet-based. When I was first dx'd with UC I was almost certain it had something to do with stuff i was eating. It comes from some primitive inner feeling that when something is coming out wrong, the stuff going in must be the problem.
You must, in fact, come to realize the bigger scope of this disease. The all-out efforts to find just the right diet is merely scratching the surface of this disease. Other pieces of the puzzle are being left out by focusing too much in one area and this eventually leads to frustration and desperation.

My solution to your current dilemma: Try them all. Use what works for you. Experiment. Put it all on paper. Time will give you the answers you are looking for.

Don't concern yourself with testimonies, power diets, and finding the perfect ones. Take advice from the people here and there, but use it as a guideline to format your own plan of action.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


subdued
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Date Joined Dec 2008
Total Posts : 3231
   Posted 1/16/2009 4:20 PM (GMT -6)   
Qvist said...
Yes, I know I've asked a lot lately, trying to figure this out.
My problem is that I don't really react directly to anything it seems.


That must be very frustrating. All I can suggest is to keep trying. You might find something that helps--vitamins, Probiotics, stress-reduction, ... ..., if not food. Are you genetically predisposed to Colitis?
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 4:20 PM (GMT -6)   
ucwarrior said...
The all-out efforts to find just the right diet is merely scratching the surface of this disease. Other pieces of the puzzle are being left out by focusing too much in one area and this eventually leads to frustration and desperation.


Hmm, what else can it be besides "food allergy"? I mean, now I am confused. Are there other recognised variables than
- Diet and
- Stress/lifestyle?


I have read of people getting help from zone therapy/acupuncture .... but assumed that is just because it strengthens the immune system ....?

My own theory is when I eat too much sugar combined with a lot of stress. Last 2 flares where following a period of long term stress + eating much candy and stuff.
So if that's the case, then I think that fixing my diet will allow more stress - which is really difficult to avoid with my job + 3 small children + my personality in general ........

Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/16/2009 4:22 PM (GMT -6)   
subdued said...
....Are you genetically predisposed to Colitis?


I don't know? No family members have it.
I got it a age 30. Always been eating a lot and unhealthy + working alot + being a person speculating a lot.

Always found it strange I got it so late in life

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 1/16/2009 4:45 PM (GMT -6)   
If you think its food allergies, get tested.

If you think its intolerances or enzyme deficiencies, see a naturopath.

If you think its stress, meditate and/or learn ways to handle stress positively.

It could be all. It could be none. Welcome to the ugly mystery that is UC!

I have had many many many theories on my own personal Dr. Jekyl, Mr. Hyde battles with UC and they all come up bust. But I learn from them... you will too.
After many years with this disease it could even be caused by phases of the moon. Instead of turning into a werewolf, I turn into a bathroom hog.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/16/2009 5:00 PM (GMT -6)   
Or it could be a lack of good gut bacteria and an overgrowth of bad.

Or it could be an unidentified infection of some sort - viral or bacterial.

Or it could be a combination of some or all of these things. That's why I've found it takes more than just dietary changes alone to see improvement.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Happychic
Regular Member


Date Joined Dec 2008
Total Posts : 44
   Posted 1/16/2009 5:09 PM (GMT -6)   
I understand your confusion. I didn't know anything about these diets until I got on this forum. I always eat what I want unless I am flaring. Although, I do stay away from fried and super spicey foods (I love jalapenos though and eat them a lot! :)). My GI has always told me that my diet will not affect my UC and to just eat healthy, smaller portions, etc. I don't know if I totally buy into his opinion as I know if I eat the wrong things I feel it in the days to follow (not always, but sometimes). That being said I don't think that ,for me , going on a special diet would keep my UC from flaring again. I just think that this is a highly individualized disease. Unfortunately what works for some does not work for others. It would be great to say "eat this" or "take this" and that would be the end of our problems. I guess that's what keeps us looking and hoping. I've read it hundreds of times here, " you have to find what works for you," which can be quite frustrating and confusing! Keep in mind that you aren't the only one in this situation - that is the beauty of HW!!!
As for the age thing - I was diagnosed 3 years ago at 35 and it was the first time I had even heard of UC! Lucky ME!!
Angela - 38 yr old female
Diagnosed 2005
Currently taking Lialda(2 each am), multivitamin,and Biotin
In remission since June '08


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 1/16/2009 5:40 PM (GMT -6)   
I have tried SCD and low residue diets and I didn't see too much improvement with either. The one thing that does seem to help me is avoiding corn and corn syrups. I don't think a flare would be averted by not eating corn but I do notice a significant decrease in bathroom trips when I eat less corn.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/16/2009 9:27 PM (GMT -6)   
ucwarrior said...

Don't concern yourself with testimonies, power diets, and finding the perfect ones. Take advice from the people here and there, but use it as a guideline to format your own plan of action.

 
Very well said, uc warrior.... Anecdotal, and for that matter, even evidence-based therapies are meaningless if they don't work on us personally.  Ultimately one has to do some trial and error, and ideally one must keep some other variables fixed.  Ironically, when most of us become desperate enough to try some wacky treatment, we have already been pounding down some powerful meds and it's hard to really know what made the difference.  Or even worse, one tries five or six new things at the same time and then you never have a clue which was the magic bukllet.  If you start and stop something and start it again, you can often notice the correlations better.  For example, I noticed this with pig whipworm (TSO)- just as I notice it with low carbing- they both help (helped in the case of TSO) and dampen the UC substantially for me, but just not enough to prevent full blown flares without (unacceptable, I know) maintenance levels of prednisone.

Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
15ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 

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