I have had this disease with virtually no complete remission for more than 20 years and I’ve had more fun than most anybody I know! I think it has given me a remarkable sense of adventure, at least in regard to things I know I can do comfortably. I’ve been to every state in the United States except Alaska. I watched a Kansas City Royals game from George Brett’s box, had lunch at the top of the World Trade Center, lived in a hotel at the Meadowlands overlooking Manhattan for eight weeks, watched an Apollo liftoff in Florida, loaned Dan Quayle my makeup for a TV interview, had dinner with Luc Montagnier (who just won the Nobel Prize for discovering the AIDS virus), cheered for General Schwarzkopf in the parade down Constitution Avenue after Operation Desert Storm, visited Disney World at least 20 times and sang with Martina McBride (well, it was the national anthem…but she was at my table). I have season tickets to National Champion Kansas Jayhawks basketball. I’ve managed to meet the last four Presidents, and went to Ronald Reagan’s inaugural ball. I played St. Andrews golf club in Scotland, after I watched Tiger Woods win his first British open, flew with Jim Colbert in his private jet, watched the Bay Hill Invitational from Arnold Palmer’s hospitality tent, had my photograph taken chatting it up with Payne Stewart, talked law on the Golf Channel, and took private long drive lessons from Mr. California. For my precious girlfriends, I host Tea at the Ritz Carlton every Christmas, celebrate happy hour around my little pool whenever the mood strikes us, take Mondays off to play golf in the summer and rent a beach house every couple of years. I’ve had sex…well, I could go on and on.
Attitude is very, very important.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days.