According to my GI doc and other sites on the net... you can test negative for a gluten allergy and still have it bother you. they call this not a gluten allergy but a gluten intolerance. Still I agree, its not an easy diet to follow. but if you decide to then you have to be willing to replace those grains with others. I would stock up on brown rice, and oatmeal. Also lean meats, and fresh veggies. as for bread, I bought rice flour and other ingredients xanthum gum or guar gum) yeast and such and made my own bread. Also even made gluten free pizza crusts. You don't have to "do with out" on this diet you just have to be willing to search and/or cook your own. I personally am not allergic to gluten, but found a gluten free diet helped and I noticed a difference in my flare with-in about 2 weeks. Personally following this diet cut my flare symptoms in half within two weeks. But Thats just how it affected me... you might be different. after two weeks I also started the spinach/sunflower regime. As this is also gluten free I figured it was a nice fit and had been helping lots of other on here.
Either way you go, your right in that a food journal is a must. My GI doc also said that once you are out of your flare ( if you're just intolerant) then you can start adding small amounts of gluten back into your diet. Basically, be religious when flaring, be very moderate when in remission. Hope this helps.
Rice pasta is not bad.... more expensive, but not bad. today I'm having chicken BBQ, pasta salad, pickled eggs, and a spinach salad. A pretty normal meal except with planning its all gluten free.
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol