What do I stock up on food-wise if I'm going to try going Gluten Free?

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ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/16/2009 6:56 PM (GMT -6)   
I think I'm going to give it a try...the more I read and get a sense of my body the more I lean towards this being part of my issues besides my "moderate" UP.
 
Blood test last week, results not until 27th or so. That will be the earliest that I will have a real idea but I think I'm prepared to give this a go.
 
Any suggestions would be much appreciated! 

Teebs
New Member


Date Joined Jan 2009
Total Posts : 13
   Posted 1/16/2009 7:19 PM (GMT -6)   
It really depends upon what you like to eat.  I was a carb freek, so it was really hard for me.  I found Bunny Love noodles are very good.  Really watch how you cook them.  For bread this was tricky: tapioca bread from ener-G was okay, light brown rice bread was tollerable if toasted, Kinnikwick (not sure on spelling) was decent but goes bad really fast. Ener-G pretzels are great.
I love sweets and found Anna's breads (pumpkin and banana were great) along with Namaste (their chocolate cake was unbelievable) For the sweets I used to make them into cupcakes so I could freeze them and have a few at a time out.  They are really tasty frozen also. tongue
If you are really going to do this 100% be ready to call makers of products to find out about their malted products and other ingredients.  Read some of the web sites that give you specific words to look for. 
Good luck!!
UC diagnosed in 2004
total collectomy in 2008
awaiting reconnection


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 1/16/2009 8:03 PM (GMT -6)   

There are some good sites on the internet. http://www.andreasfinefoods.com/ is a good site.

 

 
 
Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day, .625-0750mg clonazepam, 6mg Lexapro
1,000mg canasa suppositories (PM),
 Fioricet-Migraines, Nexium 40mg(Heartburn/GERD), Triple Strength Fish Oils
Colonoscopies-4
Upper GI and Bowel Series 11/08


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/16/2009 9:47 PM (GMT -6)   
If you have tested negative for celiac then there's no need to eliminate gluten and if you haven't been teted then please do so.

Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 1/17/2009 8:39 AM (GMT -6)   
I had the blood work completed earlier in the week for a Celiac Screen and the results are forthcoming. I just thought I'd start looking into jumping onto the Gluten Free train and get a better understanding of what I can really eat. My diet right now consist very much of wheat based products, bread, pasta, etc.
 
I guess maybe what I can start doing is continue to eat "everything" in the interim but read every label as I go along and keep a diary of what does and doesn't have gluten. Thay may be a good way to start.
 
Thanks for the food suggestions. (I am from Canada by the way, so if anyone knows if some or any of the products mentioned can be obtained up here, that would be great) 

unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/17/2009 9:22 AM (GMT -6)   
According to my GI doc and other sites on the net... you can test negative for a gluten allergy and still have it bother you. they call this not a gluten allergy but a gluten intolerance. Still I agree, its not an easy diet to follow. but if you decide to then you have to be willing to replace those grains with others. I would stock up on brown rice, and oatmeal. Also lean meats, and fresh veggies. as for bread, I bought rice flour and other ingredients xanthum gum or guar gum) yeast and such and made my own bread. Also even made gluten free pizza crusts. You don't have to "do with out" on this diet you just have to be willing to search and/or cook your own. I personally am not allergic to gluten, but found a gluten free diet helped and I noticed a difference in my flare with-in about 2 weeks. Personally following this diet cut my flare symptoms in half within two weeks. But Thats just how it affected me... you might be different. after two weeks I also started the spinach/sunflower regime. As this is also gluten free I figured it was a nice fit and had been helping lots of other on here.
Either way you go, your right in that a food journal is a must. My GI doc also said that once you are out of your flare ( if you're just intolerant) then you can start adding small amounts of gluten back into your diet. Basically, be religious when flaring, be very moderate when in remission. Hope this helps.
Rice pasta is not bad.... more expensive, but not bad. today I'm having chicken BBQ, pasta salad, pickled eggs, and a spinach salad. A pretty normal meal except with planning its all gluten free.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


talliecat
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/17/2009 9:36 AM (GMT -6)   
I tried going Gluten free for a while, Gluten seems to pop up in so many foods. I was kind of into this blog( you can google "Gluten Free Girl") which had great recipes and ideas etc. You may want to try it. The Tapioca bread is not so bad if its toasted. Good Luck and I hope you feel better

jones_77
Regular Member


Date Joined Dec 2005
Total Posts : 77
   Posted 1/17/2009 10:55 AM (GMT -6)   
I've been GF for 4 years because I've found it really helps my UC - I also didn't test positive for celiac, but gluten can be an irritant for me. And it's really not difficult! Once you get used to not eating wheat/gluten, you just stop seeing it as an option, and it's less and less of a temptation (especially if you remember what can happen when you DO eat it). Here's what really helped me:

- Tinkyada rice pasta (no other rice pasta compares!)
- Pamela's cookies and pancake mix. Yum.
- Deland Bakery - based in Florida - (our local Whole Foods carries them) has the BEST bread I've ever found. Good toast! Once you've got that, the rest is cake ;)
- Watch for wheaty-y products - like soy sauce, oats - that you can definitely find alternatives to
- As unclebubba says - keep a store of GF flours on hand so you can easily replace them in recipes

Glutenfreegirl.com (mentioned below) has great recipes. http://www.latartinegourmande.com/ has beautiful GF food for inspiration, and The Gluten Free Gourmet has several cookbooks that have been terrific.

Once you get used to a GF diet and find foods you are truly excited about (rather than always feeling like you're not permitted certain things), it stops feeling like deprivation. Good luck!

Jones

________
Left-sided UC Dx'ed 2003
Remicade every 10 weeks, Chinese herbs, fish pills, D3

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 1/17/2009 11:14 AM (GMT -6)   
Superstore has a section dedicated to gluten free products.
Health food stores could cost you a bit more...but you'd have to do the shopping regarding that.

The gluten issue would be separate from UC...

q
*Heather* Status..Asacol  (3 twice daily); flaring /Dec 22, tapered to every 3rd nite/ Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/17/2009 1:19 PM (GMT -6)   
Thanks for the tip about the rice pasta...as the others I've tried are terrible. Why are you considering oats to be wheaty?

jones_77 said...
I've been GF for 4 years because I've found it really helps my UC - I also didn't test positive for celiac, but gluten can be an irritant for me. And it's really not difficult! Once you get used to not eating wheat/gluten, you just stop seeing it as an option, and it's less and less of a temptation (especially if you remember what can happen when you DO eat it). Here's what really helped me:

- Tinkyada rice pasta (no other rice pasta compares!)
- Pamela's cookies and pancake mix. Yum.
- Deland Bakery - based in Florida - (our local Whole Foods carries them) has the BEST bread I've ever found. Good toast! Once you've got that, the rest is cake ;)
- Watch for wheaty-y products - like soy sauce, oats - that you can definitely find alternatives to
- As unclebubba says - keep a store of GF flours on hand so you can easily replace them in recipes

Glutenfreegirl.com (mentioned below) has great recipes. http://www.latartinegourmande.com/ has beautiful GF food for inspiration, and The Gluten Free Gourmet has several cookbooks that have been terrific.

Once you get used to a GF diet and find foods you are truly excited about (rather than always feeling like you're not permitted certain things), it stops feeling like deprivation. Good luck!

Jones

________
Left-sided UC Dx'ed 2003
Remicade every 10 weeks, Chinese herbs, fish pills, D3

Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


jones_77
Regular Member


Date Joined Dec 2005
Total Posts : 77
   Posted 1/18/2009 4:42 PM (GMT -6)   
Hi BBC,

Thanks for getting me to clarify - it's true that oats aren't wheaty, but they've often been found to be contaminated with gluten, and those on a strict GF diet will want to make sure that they're getting "pure oats." They're a source of a lot of controversy, and I've heard most GF dieters treat oats with real caution. Hope this helps!

Jones

Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 1/18/2009 6:23 PM (GMT -6)   
I agree with jones_77--Tinkyada pasta is the best out there. It does not mush. It was the easiest transition food for me.

For bread I would reccomend Ener-G High Fibre or Ener-G Seattle Brown. Seattle brown is VERY moist for gluten free and goes great with a burger.
The problem with gluten free breads is that if you want a sandwich you MUST lightly toast it or else it is too dry to eat. http://www.ener-g.com

Eating gluten free is very hard a first...but you get used to it. Now I don't know any better...for the most part.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/18/2009 6:40 PM (GMT -6)   
My test for wheat sensitivity was realy high, like 900.

The breads are universally awful. The only decent bread item I've found was a frozen french toast, which you can drown in syrup.

SUSHI!! You can buy soy sauce that is wheat-free, bring it with you to a restaurant. Or I can just use a little wasabi or wasabi/horseradish sauce. Don't eat the fake crab though, it has wheat in it.

DeBoles corn spaghetti, tastes the same to me.
Amy's frozen Mac & cheese, yummy.
Pamela's cookies, especially the espresso chocolate chip and the pecan shortbread.
Potato chips, Fritos, Tostitos.
Potato flour, for coating chicken or whatever you would use flour for.

Really the easiest and healthiest diet is just meat and veggies. Not casseroles.
I would just google whatever food I had a question about and "gluten" and could find an answer.
Let us know if it helps!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

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