I just wanted to come back to the forum to try to share some hope for anyone who -- like me -- thought that they'd never feel well again. I've had the best two months I've had in about a year. Of course, I hope this continues!
I'm taking 6MP (which I've taken for a couple years) but just added Lialda last Fall and recently the Asacol foam -- which, i'm sad to say is not available in the U.S. For the first time in a year, I've stopped using Cortifoam and am just using the Asacol foam. This is great because even though I know the Cortifoam isn't really, really bad for you, it's still not great and I've already got some bone density loss to worry about. If anyone in the US is really anxious to get the foam and can make the trip to another country to get it... well, I recommend it. Unfortunately, it's not exactly the kind of thing you can ask a friend to bring back from their business trip in the UK!
Here are some things I've noticed recently:
*If I skip my maintenance drugs, I notice it the next day.
* When I was at my worst, I concentrated on eating protein and spinach. It really helped.
* Now that I have a little less stress, I'm better in general.
* I still need a TON of sleep to feel rested. 9-10 hours
* I switched doctors after many years with the same GI just to get another approach. It helped because he could explain things to me in a new way and I got very optimistic. I'm sure that must have helped too.
I send everyone a lot of good wishes for feeling well.
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy