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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/17/2009 10:58 AM (GMT -6)   
Well my bleeding has stopped and the spasms following my BM are almost completely gone now thanks to the cortifoam.
 
My question to you guys is are any of you or did any of you suffer with very large bowel movements? Some days I just fill the bowl (with mostly normal looking stool with some mushier stuff toward the end) and I'm beginning to think this is a big part of my weight loss or in other words malabsorbtion...yes I take a very good digestive enzyme etc and the excessive amount of stool most mornings seem to be the culprit. I have mentioned this to my GI doc and she doesn't seem to worry about it so much but I'm dropping weight AGAIN : (  I went to my regular doc yesterday and she ordered lots of other test to see if anything else might be the cause of my weight loss but I'm sure I've figured it out that it's caused by malabsorbtion/large BMs and my UC.
 
 
I'd appreciate any feedbak please.
 
Thanks


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

Post Edited (bbc) : 1/17/2009 9:21:31 AM (GMT-7)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/17/2009 4:03 PM (GMT -6)   
I will have large bowl movements when I'm in remission. I think that means the colon is functioning properly. Nutrients and vitamins are absorbed in the small intestine. I don't have issues with malabsorption. I don't find it difficult to gain weight. I have to watch my diet and exercise to lose weight.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners

Post Edited (subdued) : 1/17/2009 2:25:21 PM (GMT-7)


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 1/17/2009 6:17 PM (GMT -6)   
I had those superpoos. Fill two bowls!
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 1/17/2009 6:19 PM (GMT -6)   
I often wonder where it all comes from.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/17/2009 8:36 PM (GMT -6)   
I get that sometimes too- mostly when I'm doing really well, or in the 2-3 weeks right after an infusion. My theory is that the colon doesn't work properly while inflamed, so it doesn't pass all the stuff it should. Hence, the tiny, thin UC poos. When the inflammation subsides, it can really get all the waste out. I don't mind them, the big bm's- it makes me feel like my body is working again!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/17/2009 8:55 PM (GMT -6)   
I think it's normal for normal people to have a large bm during the day...at least the men in my family do. : ) As for me...when I'm on a high dose of prednisone and my system pretends to be regular I do exactly what you describe...about two to three times a week.

I wish I had the problem of losing weight.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Meeting with a surgeon next week...and hopefully scheduling the surgery by the end of the month!


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/18/2009 12:36 AM (GMT -6)   
Eva Lou said...
I get that sometimes too- mostly when I'm doing really well, or in the 2-3 weeks right after an infusion. My theory is that the colon doesn't work properly while inflamed, so it doesn't pass all the stuff it should. Hence, the tiny, thin UC poos. When the inflammation subsides, it can really get all the waste out. I don't mind them, the big bm's- it makes me feel like my body is working again!


That's an interesting theory. I don't seem to poo enough when I'm flaring. Your theory would explain why I have quite a lot of poo right after a flare.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/18/2009 9:30 AM (GMT -6)   
right! Of course it's not based on any scientific theory whatsoever- just my own observations. But it makes sense, don't you think? I know when I'm flaring, the little amount of actual stool I pass is NOT equal to what I take in. It's mostly blood & mucous, & bloody clots & the like. And also, when we feel better we eat more, so the bm's would be larger.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/18/2009 11:45 AM (GMT -6)   
Any of you guys get the spasms after these giant bm's (mine can last 10 hours somedays)?

thanks
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/18/2009 1:39 PM (GMT -6)   
no, I don't- thankfully! They sound awful. I've never had very painful UC of any sort.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Vibrant2
New Member


Date Joined Jan 2009
Total Posts : 11
   Posted 1/18/2009 1:46 PM (GMT -6)   
I used to have these ups and downs with flare ups. The meds weren't healing me. They were just masking the situation. I walked away from the meds and surgery and went down the route of healing myself and am just getting better and better.
Contact me via e-mail or MSN.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/18/2009 7:30 PM (GMT -6)   
Vibrant2, please share your thoughts here for all to benefit from...thanks
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/19/2009 7:52 AM (GMT -6)   
I too have large amounts of movement most days - formed and then soft, but not D. It does amaze me in that I have lost my appetite again so there is very little food in me. For example, yesterday all I could handle was 1/2 of a turkey sandwitch and this a.m. I have gone 3 times so far - amazing.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/19/2009 11:26 AM (GMT -6)   
I believe the large BMs is whats keeping all my weight off as I evacuate twice as much as a normal person should in one sitting and even though it's mostly formed stool if it leaves your body too early it is not allowing the nutrients to be absorbed properly. It sounds like we are about 70% of the way towards remission and need some more tweaking of meds etc. Curious, why are you off all meds if you're still flarring?
Gigi1227 said...
I too have large amounts of movement most days - formed and then soft, but not D. It does amaze me in that I have lost my appetite again so there is very little food in me. For example, yesterday all I could handle was 1/2 of a turkey sandwitch and this a.m. I have gone 3 times so far - amazing.

Gigi1227



Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

Post Edited (bbc) : 1/19/2009 9:29:06 AM (GMT-7)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/19/2009 1:13 PM (GMT -6)   
But bbc, if it's formed stool, wouldn't that mean it's not leaving the body too soon, not passing thru too fast??? Know what I mean? I was always under the impression that diarrhea (with UC) was because of stuff going thru too quickly. But if it can stay in your body long enough to become solid & formed, that means most of the water has been taken out, & most of the nutrients have also. Cause you figure the nutrients come out thru the small intestine, the water & a few other vitamins thru the large- so if the stool is able to come thru the large intestine, & really firm up, you'd think it would be overall passing slowly enough to get the nutrition. Who knows!?!?!?!?! Good question for a GI! Are you actively losing weight, or just unable to gain? I have a hard time gaining- I haven't lost any pounds in a while, but I eat a lot, & not a lot of good stuff too, & don't really put any weight on. I think my metabolism has changed- whether due to age, the drugs, childbirth, whatever. My body seems to have found a new "set point" & that's it.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/19/2009 2:30 PM (GMT -6)   
If you're pumping out alot more than a normal daily amount of stool it's not staying in long enough and that's what I believe is causing my continued weight issue even though the stool is formed etc as three + consecutive days of normal stool amounts and I start putting on weight again. I think if the sigmoid and or rectum are inflammed or having spasms it causes too much stool to come out making us feel we should keep moving our bowels vs stopping after the right amount in the first place
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!
01/03/09 Trying a few new things...I'll report back after 90 days

Post Edited (bbc) : 1/19/2009 12:33:17 PM (GMT-7)

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