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revfg
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/17/2009 8:27 PM (GMT -6)   
I was wondering if anyone else experiences a worsening of symptoms when under a lot of stress.  My hubby died last april and in July I had a mild flare that went away in 10 days.  then in September I began a major flare and amd still having problems.  it seems when something stressful happens, I get sicker.  yesterday I had a very stressful event take place and today I have been really suffering with D.  Anyone else like this?

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/17/2009 8:36 PM (GMT -6)   
I think it's a rule of thumb that stress equals flare...I'm sorry about your loss and stressful times. My original flare began shortly after our wedding...and then it got super worse when we also immediately after the diagnosis learned we were pregnant. : ) However, my current never-ending flare does get worse when I'm under pressure/stress. The holidays were fun but hectic...so once everything was said and done with I was exhausted and suffering horribly.

Managing your stress is very important...do yoga...take peaceful walks...meditate...read...sew...bake/cook...whatever it is that sooths your soul. When/if these methods do not do the trick you may want to talk with your doctor about a medication. I love Paxil...and when that no longer does the job I go to Effexor. I have a good little system with my medications, and they are changed depending on the situation.

Anyway, I wish you luck with your flares...hopefully you can maintain a decent remission and focus on other things that are going on.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Meeting with a surgeon next week...and hopefully scheduling the surgery by the end of the month!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/17/2009 10:55 PM (GMT -6)   
I've not had the kind of stress you must have experienced, but oddly enough when under stress I do better. It's when I can relax that my body weakens, it seems.
I hope you are able to avoid stressful times and find more peace.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ElizaLily
Regular Member


Date Joined Dec 2008
Total Posts : 34
   Posted 1/17/2009 11:51 PM (GMT -6)   
about a year ago I had an incredibly stressful period and I have no question it was this experience that brought on the bad flare I'm in now. I believe that for me, the stress can bring it on and then it's extremely difficult to get things under control. I have to find a way to never let myself get to the point of sheer stress like it was a year ago. Don't know how to do this but if anyone has an idea, I'd welcome it. Maybe some ideas will help you too Revfg. I'm sorry for your loss and the stress you've been through. Hope it gets better really soon.
43 year old female
Left sided UC for 25 years
Remission with 6MP for the last 6 years - until now.
Flaring for several months - worst flare ever.
Meds:
4 Salofalk/day
6MP 4x a week
Golimumab Study
Currently trying the sunflower/spinach diet (thanks, cfromutah!)
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/18/2009 12:57 AM (GMT -6)   
I have also gone through some very stressful times recently. I am very sorry for the loss of your husband...the stress and depression from that could definitely bring on a flare....My wife had a miscarriage, a month later my mom had an intra-cerebral hemorrhage and is now permanently disabled, loosing her house and business, no transportation or income.... a month after that our house was burglarized and ransacked....

anyway - not to elaborate on my period of stress - it definitely brought on my most recent flare.....I ate a bowl of chili too....but more than likely the stress wore me down first....

when flaring, every day stress does cause issues for me too.... some days are better than others.....
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 40mg pred (as of 12/16/08), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 1/18/2009 8:22 AM (GMT -6)   
Yes, definitely. Last year I was going through a stressful period with my daughter being in rehab and dealing with all of that -- I lost 20 lbs in about six weeks, was weak, flaring wildly. And in the flare I had to drive an hour each way two to three times per week to participate in her recovery (meeting with therapists, doctors, teachers, etc.). Besides having less hours available to work, I had to work more hours anyway to PAY for the darn thing!! It was a nightmare, that, thankfully, seems to be behind us. But what was even more stressful I think was my own mother's comments on how the stress was affecting me. CONSTANTLY harping on it until I told her I simply couldn't handle her calls anymore (they were the one thing I COULD control, not taking them).

Anyway, I was handling the stress as best as I could. But it was what it was. My daughter had some serious issues, we were getting her help, the place was a good place, but we had to deal with the ramifications of the situation. My flaring certainly wasn't helping matters any and was certainly adding to the stress, so that kind of snowballed, until I started taking Xanax. So, ironically enough, dealing with my daughter's substance abuse took, well, drugs.

You just have to do your best and try to at least not stress about the stress, you know?

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
12 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; 12/20/98; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 1/18/2009 12:36 PM (GMT -6)   
Welcome to the forum...my deepest condolences to you regarding the death of your husband.


Emotional stress/distress would get me eventually, depending on how long it's continued and what I can do about it...but it would be more of an impact if I were tapering the rectal meds or on maintenance.

If my husband died...I'd probably be in a flare for a year...or in the hospital.
One of my biggest fears...more than dying myself.

quincy
*Heather* Status..Asacol  (3 twice daily); flaring /Dec 22, tapered to every 3rd nite/ Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


revfg
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/19/2009 9:57 AM (GMT -6)   

Thanks so much for all the replies...they have been helpful! wink I am dealing with so much right now and then there is this problem with my gut that seems to take priority over all else.  I have been to the doctor so much lately that I can't stand the thought of going again so I decided to find a group of like sufferers to talk to.  I was on target!  I have a few more questions and I hope that I do not become a bother to you all.  I know that there will be a loss of appetite and subsequently weight loss.  (not much...just 10 pounds in 8 months)  But my biggest question is...does anyone else have pencil or ribbon stools all the time?  I rarely have what would be considered a normal BM.  thanks everyone for listening and answering!

Revfg


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/19/2009 1:53 PM (GMT -6)   
Stress is definitely a factor, although for me, it tends to be a delayed reaction. I stay strong through the worst of a crisis, but can have problems afterwards.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 1/19/2009 2:13 PM (GMT -6)   
     My condolences rev.  Yes, while flaring my stools are ribbon like with blood.  Doctor explained to me that is due to the inflammation.  Stools very thin in order to get out of the rectum.
     I first was diagnosed in Sept of 1998.  That year in particular was not stressful, but from 1995 thru 1996 I had extreme stress.  Loss of both parents (I am an only child), oldest daughter got married, youngest daughter went off to college, etc..  In 1997 I exhibited what I thought to be IBS but full blown IBD in 1998.  Ever since then I do suffer flares during stressful times.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 1/19/2009 2:21 PM (GMT -6)   
revfg....are you not on any meds at this time?

Yes, I do sometimes have ribbon stools...I do have IBS as well, and it won't last too long once I start adding the Metamucil smooth. But if it is UC flaring, I know quite soon enough with my classic symptom of rectal white-knuckling pain while having a bm. No doubt it's a flare.

I do increase the rectal meds to nightly at that time...

Regarding the delayed effect that princesa mentioned....that seems to be the case with me as well...the calm after the storm albeit however subjective. I believe the adrenaline and other hormones in survival mechanisms to get through crisis. The body can only handle so much and be in full working order for so long...eventually something gives.

What's the doctor suggested for you during your visits?

Are you on any other meds, supplements..change in diet..etc?

Do you have a good support system through family and friends?

Hang tough....
quincy
*Heather* Status..Asacol  (3 twice daily); flaring /Dec 22, tapered to every 3rd nite/ Jan 13
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate).... @ bedtime
~various digestive enzymes as needed
~Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/20/2009 12:26 AM (GMT -6)   
Stress + IBD = FLARE
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 1/20/2009 1:44 AM (GMT -6)   

Dear Robin

I have joined just now and have found the site to be very informative. I have been a UC patient since October 1989. Underwent Total Proctocolectomy with J Pouch surgery in November 2005. My advice to everybody is to avoid surgery if possible, as the life becomes more painful. The sucess rate of surgery is very minimal and it takes number of years to get on with the life after that. I have been having lots of complications after surgery, which were not there with UC,  like a massive incisional hernia, which all surgeons say cannot be repaired. I have got horseshoe Fistula connecting to J pouch, which again cannot be repaired.

So avoid surgery and shift to alternate medicines, before it is too late. Best of luck.

 

 

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