When will the moonface go away?

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Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/20/2009 1:07 PM (GMT -6)   
Hi guys,
 
I quit taking Pred around 5 weeks ago after I took it for almost three months and my initial dose was 40 mg.
 
Even after 5 weeks, I still have a moonface and raging fits/unexplained cry spells. The moonface has improved, but it has not completely gone away.
 
Any insight when I can expect to have a normal-shaped face again? Am I too impatient? I took Pred for the first time, thus I lack experience with the "aftermath".
 
Any idea would be great!
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/20/2009 2:37 PM (GMT -6)   
I think you just need to give it more time. I've heard of moonface taking up to 6 months or longer to go away. I believe it depends on the dose. Higher the dose and the length of time you took it can be a big factor.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
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unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/20/2009 2:45 PM (GMT -6)   
6 months? Geesh... AM just starting my taper and hoped the moon face would go away soon. Sorry, was a question I was interested in and was waiting for someone to give the poster an idea so I had one also. LOL. also was on 40mg (since aug ) and finally down to 20. this could take a year.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/20/2009 2:50 PM (GMT -6)   
Some people start to lose their moonface while tapering; personally it took about two months after stopping for all my side effects (including moonface) to go away. Definitely frustrating.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/20/2009 2:54 PM (GMT -6)   
I just got off pred. in December and my moon face is gone =] So I think it just depends on the dose. I was on 20mg foreverrr! Give it a few more weeks. Patience is the key =] and I know thats hard..I thought mine would go away like the week I got off pred. Wouldn't that be sweet?
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 1/20/2009 3:09 PM (GMT -6)   
I lost my moonface by drinking cinnamon tea.

Place 1 cinnamon bark stick in a cup of boiling water. Cover the top of the opening of the cup with a saucer. After 20 minutes you remove the saucer and drink the tea. No need for sugar. Its very tasty as well

Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 1/20/2009 3:26 PM (GMT -6)   

Mine usually starts to be less noticeable when I am half way through my taper (20 mg-ish) . . . but then again I should add that my face is somewhat round to begin with.  tongue


 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 2 pills/3 times a day. 
Flaring and back on Prednisone.  Big sigh . . . . . .


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/20/2009 5:06 PM (GMT -6)   

Thank you for your responses. Guess I will have to be patient which is unfortunately not my strength. My face is also round to begin with, but I look like Alvin the Chipmunk and as if I'm hiding chestnuts or acorns in my cheeks.

What is the connection between cinnamon and Prednisone/cortisol? Don't get it.


Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/20/2009 5:40 PM (GMT -6)   
There are worse things to worry about than the moon face. The moon face is temporary. It's not harmful. And it will eventually go away. On the other hand, prednisone accelerates the aging process of the body. It breaks down connective tissue, which leads to osteoporosis and cataracts.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners

Post Edited (subdued) : 1/20/2009 3:43:58 PM (GMT-7)


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/20/2009 7:30 PM (GMT -6)   

Where did I say that I worry about the moonface? Just a question, that's all. eyes

But thanks, now I shall worry about cataracts and osteoporosis and not worry about my outer appearance. Jeeeez.


Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


sunshine82
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 1/20/2009 9:48 PM (GMT -6)   
My moon face started to go down when I got under 10mg of Pred, I am now off it for 1 week, and it is still the same, i stayed at 5mg and 2.5mg forever, but the moonface is still present, and so is the rest of the upper body swelling, around my neck and collerbones. Im hoping it will go way soon..

piccolobellezza
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 1/21/2009 12:46 AM (GMT -6)   
Oh man, all in all I think it took around 6 months for my moonface to disappear. I know its hard not to worry about it, its like the icing on the cake feeling terrible on the inside and getting no relief by looking on the outside. My moonface probably made me cry more than anything, but now that I've been on pred numerous times I've noticed that the moonface doesn't appear anymore. Well, atleast with doses 40mg and lower. Now of course "shock therapy" of 300-600mg of pred daily while in the hospital is SURELY to bring it right back. Sometimes I convince myself that the fat cheeks are cute...until my dad says hey what are you storing in there, nuts?! hahaha

I hope it goes away soon!!
21, female
Diagnosed September 2007
Remicade
Prednisone
Rowasa
Asacol
Protonix
Bentyl
Lomotil
Lasix
Zofran


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 1/21/2009 10:04 AM (GMT -6)   
Moonface was never a side effect for me with Prednisone.
Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day
 
 
 
 


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 403
   Posted 1/21/2009 10:35 AM (GMT -6)   
When I was on Pred I'd find my face so oily, I had to wash with a salicyclic-acid face wash in the morning, then I had to bring some in and wash at work in the afternoon, and then again before bed. I think it helped.
12 Asacol
100 mg Imuran


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/21/2009 10:40 AM (GMT -6)   
I just started tapering off yesterday. So I guess I'll see if it goes sooner or later and cinnamon tea might not be bad...
Imuran 150 mgs/day
Prednisone 15 mgs/day
Diagnosed UC Sept. 2007
Cal-Mag and Iron supps


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/21/2009 2:07 PM (GMT -6)   
Scarlet504 said...
Where did I say that I worry about the moonface? Just a question, that's all. [img]/community/emoticons/eyes.gif[/img]

But thanks, now I shall worry about cataracts and osteoporosis and not worry about my outer appearance. Jeeeez.


Sorry if I offended you Scarlet. I was talking in general, not to anyone in specific.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/21/2009 3:29 PM (GMT -6)   
However long I'm on Pred is how long it takes for my face to go back to normal.  If I'm on it 3 months, it takes 3 months for my face to be completely back to normal.  It's such a horrible side effect isn't it?  As if having the disease isn't bad enough but then the medicine has to give us a funky/huge face.  It's very embarrassing to me, I hate the moon face!!! lol.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/21/2009 5:18 PM (GMT -6)   
Thanks again for the replies and as I said, I took Pred for the first time and will never take it again as long as it is not about life and death, because it didn't do much benefit for me. Anyway, YES I feel bad about my looks. I always had a chubby face. It is almost like you put a balloon on a match stick. I am not match stick thin (never have been, never will), but it is pretty frustrating to have a face double the size when you have a chubby face no matter what your weight is anyway! My weak spot is also that I was always bullied as a kid because I had a chubby face and it is just that I want it to go away. I am pretty self-conscious about my face, but I will stop whining now and thanks for the replies. Now I will sit in front of the mirror and trace my face with a pen and do that every day and see if it is deflating (of course, I am kidding!)
 
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/21/2009 6:36 PM (GMT -6)   
Heheh, that's actually a good idea Scarlett! I took before and after pics when I was on prednisone. Before taking it when I was really sick and really skinny, during taking it when my face ballooned up, and after when it had finally gone down AND I was healthier. I didn't even realize how chubby my face looked until I saw the pictures later and compared. It was depressing!!

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/21/2009 6:42 PM (GMT -6)   
I find it goes away a little faster when I have a massage. Seems a good excuse to have one, anyway!
Otherwise, maybe 4-8 weeks. I know it is depressing to look so bloated. Self-tanning lotion helps make your face look slimmer, try that!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

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